Advice Needed!!!! : Hello ladies, Sorry for... - Endometriosis UK

Endometriosis UK

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Advice Needed!!!!

Embobjimmyjam profile image
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Hello ladies,

Sorry for the long rant but I Really need some advice!!! I've been under the care of a consultant at Louth hospital but haven't actually seen my consultant since my op last year I've only had follow up appointments with understudies or trainee doctors one of which I saw beginning of January this year she put me on a 3 month trial of zoladex injections as my mirena coil wasn't working for me as well as they'd liked I was then told to return after the three month trial to see if the injections helped or not and to know for sure wether my pain I was still having was because of my endo or something else. If they worked I was to continue with another three injections until I'd had 6 in total. the zoladex worked for me and I felt like my old self again, however when I went back after the three months the consultant I saw told me to go home that day buy folic acid start taking it once a day for the next three months have my coil removed loose 5 stone and have a baby and discharged me!!!! 😱 I was as you can imagine shocked, angry and upset me and my partner are no way considering having a baby at the moment!! so I went to my GP and asked to be referred else where to which my GP said I will email your consultant on your behalf and ask for her to arrange an app with her herself to follow up your treatment. he then prescribed me another three zoladex injections so I could continue with the treatment. 4+ weeks I hadn't heard anything so when I went for my last injection a week or so ago I mentioned about not having heard anything from my consultant after the GP had emailed so the nurse said she would get the app depart to chase it up. I finally got a phone call this morning about being referred elsewhere as my consultant now has a massive waiting list and the shortest waiting list available is three months to see a consultant at Lincoln hospital and was also told that I might not even have my app with her I will probs see a trainee or someone who works under her!! so now I don't know what to do?? I have no consultant at the moment no treatment plan what happens when my zoladex wears off and my periods return with a horrible vengeance?? do I wait for an appointment to maybe come through in the next three months or do I go to my GP and ask to be referred elsewhere and can the referral to Lincoln?? I'm just in limbo at the moment 😢😰😱😖 💛

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