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cyclophosphamide?
Hi everyone, My renal consultant and rheumatologist have been monitoring me for quite a while now but are concerned that my condition is still not controlled. I have SLE, lupus nephritis, raynauds phenomenon and a mixed connective tissue disorder, but it is obviously the lupus nephritis they are focusing
Hi everyone, My renal consultant and rheumatologist have been monitoring me for quite a while now but are concerned that my condition is still not controlled. I have SLE, lupus nephritis, raynauds phenomenon and a mixed connective tissue disorder, but it is obviously the lupus nephritis they are focusing
Priya_S
in
LUPUS UK
10 years ago
Raynauds symptoms not diagnosed as primary or secondary yet. What is the concensus re: Nifedipine, I do have high BP?
I am from USA and cannot find a good forum like this one.
I am from USA and cannot find a good forum like this one.
Ema2
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Is it normal to feel really ill on nifedipine?
Hi, I had my first appointment with a rheumatologist last Monday and have been told I have undifferentiated connective tissue disease. She has carried out lots of tests which I am waiting for the results of but in the meantime has prescribed nifedipine for my raynauds. I am on 20mg twice a dsy and have
Hi, I had my first appointment with a rheumatologist last Monday and have been told I have undifferentiated connective tissue disease. She has carried out lots of tests which I am waiting for the results of but in the meantime has prescribed nifedipine for my raynauds. I am on 20mg twice a dsy and have
Katt
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
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Raynauds
Hi I am new on here I have had Raynauds for about a year now and have been coping ok until the weather got colder in October. My hands and feet are very cold and painful, I have been given Nifedipine 5mg but am getting migraine headaches so have stopped taking them on my GPs advice. I am looking at
Hi I am new on here I have had Raynauds for about a year now and have been coping ok until the weather got colder in October. My hands and feet are very cold and painful, I have been given Nifedipine 5mg but am getting migraine headaches so have stopped taking them on my GPs advice. I am looking at
Nansue
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
New to Raynauds, any mums out there? Any financial help eg Disability Living Allowance for children?
Hi my daughter who is 12 nearly 13 has been diagnosed with Raynauds Disease and has also had coeliac disease since she was 6. I noticed in June even on a hot day on the tube in London Ellas feet bright red, purple, white sploges etc. She was diagnosed at the end of June and has nifedipine but this
Hi my daughter who is 12 nearly 13 has been diagnosed with Raynauds Disease and has also had coeliac disease since she was 6. I noticed in June even on a hot day on the tube in London Ellas feet bright red, purple, white sploges etc. She was diagnosed at the end of June and has nifedipine but this
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
primary raynoids with new symptoms
hi I have been to see a rheumatoligist doctor a few years back and was diagnosed with primary raynoids just in my feet he put me on nifedipine 5mg twice daily and discharged me, this year I'm getting more symptoms extreme pain in my legs so went bk to my gp and she has upped my dose of nifedipine and
hi I have been to see a rheumatoligist doctor a few years back and was diagnosed with primary raynoids just in my feet he put me on nifedipine 5mg twice daily and discharged me, this year I'm getting more symptoms extreme pain in my legs so went bk to my gp and she has upped my dose of nifedipine and
Emma020884
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
help with day to day living with raynoids? ?
was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor it was severe primary raynoids, I am on nifedipine to help but I find even taking my child to school is getting to hard for me to do now her school is a half hour walk n in the winter months I suffer so bad and was wondering
was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor it was severe primary raynoids, I am on nifedipine to help but I find even taking my child to school is getting to hard for me to do now her school is a half hour walk n in the winter months I suffer so bad and was wondering
Emma020884
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
help with day to day living with raynoids? ?
I was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor it was severe primary raynoids, I am on nifedipine to help but I find even taking my child to school is getting to hard for me to do now her school is a half hour walk n in the winter months I suffer so bad and was wondering
I was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor it was severe primary raynoids, I am on nifedipine to help but I find even taking my child to school is getting to hard for me to do now her school is a half hour walk n in the winter months I suffer so bad and was wondering
Emma020884
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Strange sensations
Does anyone else with Raynauds & Limited Systemic Sclerosis experience this? I can only describe it as a fizzy sensation in the large vein that runs from the thumb up the side of the wrist of my hand. The vein had become very prominent. I'm unable to take Nifedipine & waiting for a prescription for
Does anyone else with Raynauds & Limited Systemic Sclerosis experience this? I can only describe it as a fizzy sensation in the large vein that runs from the thumb up the side of the wrist of my hand. The vein had become very prominent. I'm unable to take Nifedipine & waiting for a prescription for
Madge51
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Does anyone take fluoxetine for raynauds and does it help at all?
Hi, I was previously taking nifedipine for my raynauds but had to come off that as my blood pressure was too low and it caused dizziness. My rheumy today prescribed fluoxetine instead but I'm worried about taking it as it's an anti depressant and I'm not depressed! She didn't explain how it would help
Hi, I was previously taking nifedipine for my raynauds but had to come off that as my blood pressure was too low and it caused dizziness. My rheumy today prescribed fluoxetine instead but I'm worried about taking it as it's an anti depressant and I'm not depressed! She didn't explain how it would help
Belee
in
LUPUS UK
11 years ago
Confusing S-APS/SLE diagnosis/symptoms? Spasmodic dysphonia part of APS/SLE?
I get spasmodic dysphonia each time I have some sort of attack. I'll kinda zone out, my legs will go cold and then my throat will feel like someone is strangling me :(.. then I can't talk or when I do it's just a strangled voice. I'm a bit lost in terms of my diagnosis. I'm on clexane injections which
I get spasmodic dysphonia each time I have some sort of attack. I'll kinda zone out, my legs will go cold and then my throat will feel like someone is strangling me :(.. then I can't talk or when I do it's just a strangled voice. I'm a bit lost in terms of my diagnosis. I'm on clexane injections which
medsoph
in
Hughes Syndrome APS Forum
11 years ago
8 year old with Raynauds. Need advice how to keep in uniform.
Hello, This is my first post. My eight year old daughter has had Raynauds for almost five years. She finds it difficult to keep to uniform In school as its a skirt and tights don't help him much. She is under the care of a rheumatologist and has tried NifedIpine but it made the pain worse. The teacher
Hello, This is my first post. My eight year old daughter has had Raynauds for almost five years. She finds it difficult to keep to uniform In school as its a skirt and tights don't help him much. She is under the care of a rheumatologist and has tried NifedIpine but it made the pain worse. The teacher
Carrie37
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Painful toes :(
Hi all I'm at my wits end with the pain I've been in all weekend, been told I have more than likely got Raynaud's just waiting on the MRI results before the doc confirms it all!! All weekend I've had horrible pain in my toes which is where I have Raynaud's, it's a constant ache which I can just about
Hi all I'm at my wits end with the pain I've been in all weekend, been told I have more than likely got Raynaud's just waiting on the MRI results before the doc confirms it all!! All weekend I've had horrible pain in my toes which is where I have Raynaud's, it's a constant ache which I can just about
jogoody
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Understanding Raynauds
Hi All, I have been a member of this group for a while and found everyone's posts very informative and helpful. Thank you so much. it's reassuring that Raynauds isn't just a case of "cold hands" which a lot of people seem to think. My doctor suspected I had Raynauds last June when I started getting
Hi All, I have been a member of this group for a while and found everyone's posts very informative and helpful. Thank you so much. it's reassuring that Raynauds isn't just a case of "cold hands" which a lot of people seem to think. My doctor suspected I had Raynauds last June when I started getting
Panda25
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Adalat nifedipine
Hi I've been prescribed adalat nifedipine today, I've been reading through the leaflet and am shocked by the side effects, is anyone else taking them or had them before? What side effects did you have?
Hi I've been prescribed adalat nifedipine today, I've been reading through the leaflet and am shocked by the side effects, is anyone else taking them or had them before? What side effects did you have?
jogoody
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
I don't understand anything about this condition and cant seem to find any answers can anyone please help cos its driving me mad..
I had never heard of Raynauds til I was told I had it,about 4 years ago i was 36 when I got it, I went away for a weekend and for no reason 3 of my fingers on my left hand looked like they had died I rushed to hospital thought I was dying, they said it was raynauds and to see my own GP so I went to
I had never heard of Raynauds til I was told I had it,about 4 years ago i was 36 when I got it, I went away for a weekend and for no reason 3 of my fingers on my left hand looked like they had died I rushed to hospital thought I was dying, they said it was raynauds and to see my own GP so I went to
TanyaSmith
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
First step
Hi all I've finally been diagnosed as having Raynauds today after struggling to get a "routine" appointment with our GP. I guess I've always known I've got Raynauds but now its official. The doctor must also be pretty concerned as I've ben prescribed Nifedipine which I have to take three times a day
Hi all I've finally been diagnosed as having Raynauds today after struggling to get a "routine" appointment with our GP. I guess I've always known I've got Raynauds but now its official. The doctor must also be pretty concerned as I've ben prescribed Nifedipine which I have to take three times a day
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Finally People who are like me
Hi everyone, I am new to this site and I am so grateful to Nicola Whitehill who told me about this site. I have suffered for years with Raynaud's but have only just found out I have it after my wonderful new GP finally listened and knew what was wrong right away. I am 29 years old at the moment and feel
Hi everyone, I am new to this site and I am so grateful to Nicola Whitehill who told me about this site. I have suffered for years with Raynaud's but have only just found out I have it after my wonderful new GP finally listened and knew what was wrong right away. I am 29 years old at the moment and feel
plum3010
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Intro by new reynards sufferer and IVF question
Hi all, My name is Dan and i am 39 and have just been diagnosed with primary reynards, I have it in my fingers only so far which went white especially outdoors and having visited my supportive doctor a few times I was prescribed nifedipine which did make the attacks less and for shorter duration
Hi all, My name is Dan and i am 39 and have just been diagnosed with primary reynards, I have it in my fingers only so far which went white especially outdoors and having visited my supportive doctor a few times I was prescribed nifedipine which did make the attacks less and for shorter duration
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
****UPDATE 15/04/2013**** Diagnosed - official Raynauds sufferer, but can't thank my GP enough!
***UPDATED 15 APRIL 2013*** Thank you all for your comments. A quick update from Friday when I started taking the Nifedipine - amazing difference! As soon as I took the first tablet I could tell the difference, my feet became warm for a start off and my hands and nose have been
***UPDATED 15 APRIL 2013*** Thank you all for your comments. A quick update from Friday when I started taking the Nifedipine - amazing difference! As soon as I took the first tablet I could tell the difference, my feet became warm for a start off and my hands and nose have been
marshall-williams
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
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