Experiences with

Nimodipine

Good morning everyone. I am on 3 ×5mg Nifedipine and still get some Raynaud's in fingers (I am using an electric blanket in the photo as gas in the UK is now far too expensive) and in cold weather in feet, outside. Does anyone have the same problem?

Isn’t that an 80s song? Hmm. Having some issues from bp meds. I don’t know enough about them. I’m on Candesartan 32mg 1xDay; Metoprolol 200mg XL 2XDay; it’s STILL too high so the third drug is the one we are trying to replace. I did fine on Doxazosin 2mg, 1XDay, for 4 weeks. Then, we decided (my

Any advice about diagnosis would be much appreciated...I have RA and Raynards. Over the past 2 years, my symptoms have widened. My hands have become increasingly red and swollen sometimes swollen with ulcers and splitting skin. I was prescribed Nifedipine which has helped a bit but my face is constantly

Had scleroderma for 10 years suffer with calcinosis on hands just been put on nifedipine for better circulation xxxhaving problems with bleeding hemoroids when I go to toilet xx. Tried creams and witch hazel but antibiotics only thing that heals the tissue xx can anyone recommend anything that will help

hi , Just wondering people’s thoughts and experiences . It’s a last resort for me I’ve tried everything else . Is it useful for attacks ? Side effects ? getting frequent attacks and fingers are so sore now TIA

Hello everyone, Has anyone found Nifedipine or Minitran patches helpful for Raynaud's? And if you are using these, do you experience really bad side effects? 💚

I have had Bradycardia for as long as I can remember. Although the figures are alarming (42bpm, and 36bpm when asleep) they pose me no problem. I do not suffer with breathlessness, fainting or dizzy spells). I have seen or communicated with Cardiologists on a a number of occasions and they are not concerned

Hi folks, does the brand of nifedipine matter? I see on some NHS prescribing guidelines that the same brand should be supplied if possible, eg Adapine, corectan, but I'm not sure if that applies to Ryenaud's people. I have been prescribed nifedipine MR 20 by my consultant for winter. The GP specified

Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying strength, frequency etc. This is to combat what I think is worsening Raynaud’s in my hands - permanently wrinkled fingertips as if I’ve just come out

OK - so I have had my rheumatology appointment and gallons of blood has been taken. I have been offered Nifedipine for the winter. She told me about the limitations and that it might cause , YES!! You've guessed it: HEADACHES. I really don't need any more headaches and I think it would f******

I recently was taken to hospital with a bad episode of P.S.V.T., a condition I've had since I was eight. Blood tests showed that my sodium level was a bit low. It has been at the sub-clinical level for some time. Raynaud's which I have had since my 20's suddenly began to cause me problems: Pains and

it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma

I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3 phase Raynaud's attacks these days but my fingers are often blue for long periods of time despite being in a warm environment and my feet suffer

I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaroscopy and thermology (just told bluntly that my capillaries are abnormal) I've had all sorts of issues from it like poor/distorted nail growth, white fingers when cold and red puffy fingers when warm, chillblains, red skin

Hi, I've a slightly pink face and have been prescribed Nifedipine even though my blood pressure wasnt tested by the doc. i've tested at home and indeed it's normal. would people here say it's ok to take this drug if my blood pressure is normal and if so should I! advice most welcome!

Hi, I have just been diagnosed with primary raynauds after years of suffering with winter chillblains. In November my chillblains got really bad on my toes and they turned into blisters and were stopping me sleep at night I even got chillblains on my fingers for the first time and some of my fingers

Hello, my hands are very sensitive to cold weather and temperatures. This has been going on for years and I do take Nifedipine, except during summer, to ease the symptoms. However, I have never had my fingers or toes change colour ever. They just feel cold. Is this really Raynaud's? I've told my

Hi I'm taking nifedipine for reynauds/ scleroderma again after not being successful with it in the past ... also just been given siledipine 25mg 3 times daily .I'm not really getting any side affects yet as it's only been a few days on both together .. last time I tried nifedipine MR I found it made

Hi ..I have had reynauds for the last 9 years but this has nasty become bad with ulcers on fingers ,spider veins on face and weak and achy muscles .. am now undergoing tests for schleroderma .I've been subscribed nifedipine 10mg twice daily and sildenafil 25mg 3×daily ..I'm finding that these seem to

I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine and losartan with no noticeable effect.Any advice?? Interestingly the leaflet accompanying the tablets,says not to be taken by women🤔