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Scleroderma & Raynaud's UK (SRUK)

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Adalat nifedipine

jogoody profile image
8 Replies

Hi I've been prescribed adalat nifedipine today, I've been reading through the leaflet and am shocked by the side effects, is anyone else taking them or had them before? What side effects did you have?

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jogoody profile image
jogoody
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8 Replies
zenabb profile image
zenabb

Nifedipine is the standard medication for Raynaud's because it dialates the blood vessels and allows the blood to reach the extremities. At first a small dose is given which is ten increased as you get used to it. I have had it for very many years. Sometimes it needs to be decreased as the weather gets warmer.

kimpush profile image
kimpush in reply to zenabb

take 1 aday your taking to much

Yes was prescribed them but for me the side effects were just too much, headaches, migraines, swollen dilated veins pulsating and lots of fainting spells. That was the first 5 days, took a break from them for a few days, tried again for a further two weeks. So no longer take them.

fruitpastle profile image
fruitpastle

Hi I was on it for 2 yrs past its never gave me any probs Ive only been recently changed onto another med called diltiazem as the nifedipine wasnt given me enough time between the doses and my raynaurd attacks were more frequent but i think that was due to the really cold weather i would try it for few wks it really does work..when i started it ti gave me mild headaches u might not get them but then as i got used to it i never had headaches your face mightbe wee bit flushed u feel warm my feet and thighs were red in colour due to the blood rush only lasted 5 mins but i liked it as i felt nice an warm i was an still am afraid of meds and side effects they can make u have its worked for me if it doesnt work for u there will be another that will but you should try iit an c its better that havn white freezn hands lol good luck

mrsqwerty11 profile image
mrsqwerty11

I hv been taking 30mg per day of nifedipine adalat LA for 10 yrs now, I hv been ok on these tabs the only side effect I got for the 1st couple of months was dizziness on standing, once the tabs was in system was ok, hope it works for you.

Daisy23 profile image
Daisy23

Hi. I get along fine with nifedipine and don't have any side effects at all. The first time I started taking it, though, it didn't really seem to be working and the rheumatologist switched me to losartan, then prozac, instead. I didn't get along with either of these and I now find that a combination of six-monthly Iloprost and 15mg per day of nifedipine is helping my symptoms (I should have increased the dose by now but there seems to currently be a shortage of nifedipine and my local pharmacists are struggling to get hold of it...)

It seems that everyone responds differently to the various medications that can help Raynauds so there often needs to be a bit of trial and error. Good luck with the treatment - hope it works and that you don't have side effects.

graygirl1 profile image
graygirl1

Hello there. I have been taking Nefedipine for over a year and has had no ill-effects. I find it to be very effective but I don't take it every day, mainly when going out. The problem with me is that I also suffer with excess sweating and take medication for that also. Sometimes I am both hot and cold at the same time and don't know wether I should take one or the other or both together. My friends and I have a good laugh about my dilemma. I was telling my doctor about this the other day. I laughed so much I was in tears. I don't know why I find this so funny and of course has nothing to do with your question. Anyway,back to your concerns about Nefedipine, the leaflets tend to make thing sound more drastic than the reality but the choice is yours. If you are unhappy about taking it, have a chat with your doctor whom I'm sure will be able to reassure you. Good luck!

a-jay profile image
a-jay

I would give it a try and see how you go. I have been on 20mg daily for the last 7 months and haven't had any side effects. It does not stop my attacks alltogether but i have noticed a dramatic decrese in what i call white attacks. Some people i have got to know through various different support groups can not take Nifedapine as they can't tolorate the side effects from it . Everyone reacts differently,but i would definatley give it a try if they don't agree with you your GP can perscribe other meds. Just trial and error i guess, hope it helps. :-)

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