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Nimodipine
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Nifedipine - how do YOU take it?
Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying strength, frequency etc. This is to combat what I think is worsening Raynaud’s in my hands - permanently wrinkled fingertips as if I’ve just come out
Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying strength, frequency etc. This is to combat what I think is worsening Raynaud’s in my hands - permanently wrinkled fingertips as if I’ve just come out
Purple_Badgers
in
Scleroderma & Raynaud's UK (SRUK)
15 days ago
access to blood test results
OK - so I have had my rheumatology appointment and gallons of blood has been taken. I have been offered Nifedipine for the winter. She told me about the limitations and that it might cause , YES!! You've guessed it: HEADACHES. I really don't need any more headaches and I think it would f******
OK - so I have had my rheumatology appointment and gallons of blood has been taken. I have been offered Nifedipine for the winter. She told me about the limitations and that it might cause , YES!! You've guessed it: HEADACHES. I really don't need any more headaches and I think it would f******
Brychni
in
LUPUS UK
17 days ago
Hyponatremia, Raynaud's and P.S.V.T
I recently was taken to hospital with a bad episode of P.S.V.T., a condition I've had since I was eight. Blood tests showed that my sodium level was a bit low. It has been at the sub-clinical level for some time. Raynaud's which I have had since my 20's suddenly began to cause me problems: Pains and
I recently was taken to hospital with a bad episode of P.S.V.T., a condition I've had since I was eight. Blood tests showed that my sodium level was a bit low. It has been at the sub-clinical level for some time. Raynaud's which I have had since my 20's suddenly began to cause me problems: Pains and
Mstislav
in
British Heart Foundation
3 months ago
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Nifedipine/blood pressure
it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma
it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Has anyone been prescribed Fluoxetine for Raynaud's?
I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3 phase Raynaud's attacks these days but my fingers are often blue for long periods of time despite being in a warm environment and my feet suffer
I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3 phase Raynaud's attacks these days but my fingers are often blue for long periods of time despite being in a warm environment and my feet suffer
lynntregaron
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Secondary Raynauds , haemorrhaged capillaries near fingernails
I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaroscopy and thermology (just told bluntly that my capillaries are abnormal) I've had all sorts of issues from it like poor/distorted nail growth, white fingers when cold and red puffy fingers when warm, chillblains, red skin
I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaroscopy and thermology (just told bluntly that my capillaries are abnormal) I've had all sorts of issues from it like poor/distorted nail growth, white fingers when cold and red puffy fingers when warm, chillblains, red skin
andy7551
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Nifedipine for pink face!
Hi, I've a slightly pink face and have been prescribed Nifedipine even though my blood pressure wasnt tested by the doc. i've tested at home and indeed it's normal. would people here say it's ok to take this drug if my blood pressure is normal and if so should I! advice most welcome!
Hi, I've a slightly pink face and have been prescribed Nifedipine even though my blood pressure wasnt tested by the doc. i've tested at home and indeed it's normal. would people here say it's ok to take this drug if my blood pressure is normal and if so should I! advice most welcome!
PinkFace
in
High Blood Pressure Support
5 months ago
Chillblains
Hi, I have just been diagnosed with primary raynauds after years of suffering with winter chillblains. In November my chillblains got really bad on my toes and they turned into blisters and were stopping me sleep at night I even got chillblains on my fingers for the first time and some of my fingers
Hi, I have just been diagnosed with primary raynauds after years of suffering with winter chillblains. In November my chillblains got really bad on my toes and they turned into blisters and were stopping me sleep at night I even got chillblains on my fingers for the first time and some of my fingers
Teeny8
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Raynaud's without colour changes
Hello, my hands are very sensitive to cold weather and temperatures. This has been going on for years and I do take Nifedipine, except during summer, to ease the symptoms. However, I have never had my fingers or toes change colour ever. They just feel cold. Is this really Raynaud's? I've told my
Hello, my hands are very sensitive to cold weather and temperatures. This has been going on for years and I do take Nifedipine, except during summer, to ease the symptoms. However, I have never had my fingers or toes change colour ever. They just feel cold. Is this really Raynaud's? I've told my
mike444
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
Nifedipine mr
Hi I'm taking nifedipine for reynauds/ scleroderma again after not being successful with it in the past ... also just been given siledipine 25mg 3 times daily .I'm not really getting any side affects yet as it's only been a few days on both together .. last time I tried nifedipine MR I found it made
Hi I'm taking nifedipine for reynauds/ scleroderma again after not being successful with it in the past ... also just been given siledipine 25mg 3 times daily .I'm not really getting any side affects yet as it's only been a few days on both together .. last time I tried nifedipine MR I found it made
Tmontana
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
Newly diagnosed!
Hi ..I have had reynauds for the last 9 years but this has nasty become bad with ulcers on fingers ,spider veins on face and weak and achy muscles .. am now undergoing tests for schleroderma .I've been subscribed nifedipine 10mg twice daily and sildenafil 25mg 3×daily ..I'm finding that these seem to
Hi ..I have had reynauds for the last 9 years but this has nasty become bad with ulcers on fingers ,spider veins on face and weak and achy muscles .. am now undergoing tests for schleroderma .I've been subscribed nifedipine 10mg twice daily and sildenafil 25mg 3×daily ..I'm finding that these seem to
Tmontana
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
Sildenafil
I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine and losartan with no noticeable effect.Any advice?? Interestingly the leaflet accompanying the tablets,says not to be taken by women🤔
I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine and losartan with no noticeable effect.Any advice?? Interestingly the leaflet accompanying the tablets,says not to be taken by women🤔
KathleenMary
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
Reducing Nifedipine dose for the warmer months?
I am on 20mg x 2 daily Nifedipine for secondary Raynauds, I started in the Autumn last year. I know I need to consult my Rheumatologist about this but wondered if others do the same ? Now the weather is warming up, I'm finding it's very easy to go into overheat mode, in that my hands start to swell
I am on 20mg x 2 daily Nifedipine for secondary Raynauds, I started in the Autumn last year. I know I need to consult my Rheumatologist about this but wondered if others do the same ? Now the weather is warming up, I'm finding it's very easy to go into overheat mode, in that my hands start to swell
andy7551
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Nifedipine side effects/fluoxetine
Hi everyone, after 3 weeks on Nifedipine my GP has stopped it due to side effects migraines, light-headedness and gastro issues(stomach pain,increased belching/flatulence)They have suggested Fluoxetine as an alternative.Anyone else on here suffer similar symptoms with Nifedipine and has anyone tried
Hi everyone, after 3 weeks on Nifedipine my GP has stopped it due to side effects migraines, light-headedness and gastro issues(stomach pain,increased belching/flatulence)They have suggested Fluoxetine as an alternative.Anyone else on here suffer similar symptoms with Nifedipine and has anyone tried
SovietSong
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Raynauds and Nifedipine
This last winter I suffered terribly with the cold. All my life I have suffered with Raynauds Syndrome and winters have always been difficult for me with regards to my extremities (fingers, toes and nose) being cold and often painful. Even in summer having warm feet and toes has been a rare occurence
This last winter I suffered terribly with the cold. All my life I have suffered with Raynauds Syndrome and winters have always been difficult for me with regards to my extremities (fingers, toes and nose) being cold and often painful. Even in summer having warm feet and toes has been a rare occurence
MountainGoat52
in
British Heart Foundation
1 year ago
Can Raynauds cause symptoms elsewhere in body?
Hi everyone,as well as the classic signs on the fingers etc can Raynauds cause migranes(which radiates into ear/jaw area and gastro issues(burping after eating/drinking?I was recently diagnosed and rheumatologist has trialled me on 5mg nifedipine 3 times daily.I am one week into the meds and as yet have
Hi everyone,as well as the classic signs on the fingers etc can Raynauds cause migranes(which radiates into ear/jaw area and gastro issues(burping after eating/drinking?I was recently diagnosed and rheumatologist has trialled me on 5mg nifedipine 3 times daily.I am one week into the meds and as yet have
SovietSong
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Angina treatment
Hello, I know I need to speak to my GP regarding this but would appreciate some advice / experiences from you lovely people please. I have had 2 x minor heart attacks, 2020 and 2021. Coronary arteries not obstructed, last angio July 2022. Medication: Atorvastatin, Nifedipine, Isosorbide mononitrate
Hello, I know I need to speak to my GP regarding this but would appreciate some advice / experiences from you lovely people please. I have had 2 x minor heart attacks, 2020 and 2021. Coronary arteries not obstructed, last angio July 2022. Medication: Atorvastatin, Nifedipine, Isosorbide mononitrate
LSCE
in
British Heart Foundation
1 year ago
more better days and update the
Taking
Nimodipine
twice a day and Zoloft once a day and both have made a huge difference. Still hace my pain and bad days but am feeling like a different person with hope. I keep praying to have more better days. 💗
Taking
Nimodipine
twice a day and Zoloft once a day and both have made a huge difference. Still hace my pain and bad days but am feeling like a different person with hope. I keep praying to have more better days. 💗
JennaShi
in
LUPUS UK
2 years ago
Scleroderma
Does any one know if high blood pressure is something that goes with scleroderma am on blood pressure meds losartan and nifedipine and for long time this has worked for me but last 2 weeks blood pressure readings have been 180 and 190 gp says monitor for a week thanks.
Does any one know if high blood pressure is something that goes with scleroderma am on blood pressure meds losartan and nifedipine and for long time this has worked for me but last 2 weeks blood pressure readings have been 180 and 190 gp says monitor for a week thanks.
Gran54
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Tocilizumab for systemic sclerosis (with mild ILD) - any skin improvement?
Hello dear community, I have systemic sclerosis with mild ILD. Although my lung fibrosis is mild, my skin situation is getting worse. Initially I was recommended to start Rituximab (both by rheumatologist and respiratory doctor) , now a few days ago I received a call from Dr. to tell me that the final
Hello dear community, I have systemic sclerosis with mild ILD. Although my lung fibrosis is mild, my skin situation is getting worse. Initially I was recommended to start Rituximab (both by rheumatologist and respiratory doctor) , now a few days ago I received a call from Dr. to tell me that the final
FelixFelicis
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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