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CoVid 19 and CLL
I underwent 3 rounds of FCR Chemo in early 2018, stopped because of profound
neutropenia
for another 9 months.
I underwent 3 rounds of FCR Chemo in early 2018, stopped because of profound
neutropenia
for another 9 months.
skipro
in
CLL Support
2 years ago
From one thing to another. I guess I now post n the wrong forum?
I return with the news that I have colorectal cancer (Ascending) (I never did like lifts) Today, I received a letter from the consultant Anaesthetist, during our meeting, he mentioned that I have
Neutropenia
and Pantopenia. The list of eight medical conditions, I shall leave out, unless ask for.
I return with the news that I have colorectal cancer (Ascending) (I never did like lifts) Today, I received a letter from the consultant Anaesthetist, during our meeting, he mentioned that I have
Neutropenia
and Pantopenia. The list of eight medical conditions, I shall leave out, unless ask for.
JonBechstein
in
British Liver Trust
2 years ago
With CLL, infections can be fatal. Why hasn't rapid sequencing for serious infections and sepsis (Metagenomics) become standard of care?
[/i] (This has been my experience several times now when I've been admitted for febrile
neutropenia
or some unknown infection and I know from other posts, that this is indeed the standard approach as Dr Topol states.)
[/i] (This has been my experience several times now when I've been admitted for febrile
neutropenia
or some unknown infection and I know from other posts, that this is indeed the standard approach as Dr Topol states.)
AussieNeil
Partner
in
CLL Support
2 years ago
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Trip to Spain - warning - photos!
I was just sure I wasn’t ill with
neutropenia
. I went along to A&E when I got home just to be sure). We went by Eurostar to Paris, then TGV to Barcelona and fast trains to Madrid and Valladolid. We also hired a car and driver (luxury!!) for a day trip to Avila.
I was just sure I wasn’t ill with
neutropenia
. I went along to A&E when I got home just to be sure). We went by Eurostar to Paris, then TGV to Barcelona and fast trains to Madrid and Valladolid. We also hired a car and driver (luxury!!) for a day trip to Avila.
Ursula_I
in
SHARE Metastatic Breast Cancer
2 years ago
Alternative dosing for IBrance , 5 days on/ 2 days off
So here we are…https://www.practiceupdate.com/content/efficacy-of-an-alternative-schedule-of-palbociclib-in-reducing-the-incidence-of-grade-3-or-above-
neutropenia
/138078 Apparently the alternative dosing is safe and does alleviate the problems with
neutropenia
.
So here we are…https://www.practiceupdate.com/content/efficacy-of-an-alternative-schedule-of-palbociclib-in-reducing-the-incidence-of-grade-3-or-above-
neutropenia
/138078 Apparently the alternative dosing is safe and does alleviate the problems with
neutropenia
.
Dragonfly2
in
SHARE Metastatic Breast Cancer
2 years ago
FOUR MONTHLY BLOOD TEST WORRYING RESULTS
Platelet count has dropped from 111 to 86 and I also have
Neutropenia
going from 4.33 to 0.86. My WBC has also gone up 72.20 to 85.51 although I know that it does fluctuate. In the past my platelets have bounced around a bit but never below 100 and my neutrophil levels have always been normal.
Platelet count has dropped from 111 to 86 and I also have
Neutropenia
going from 4.33 to 0.86. My WBC has also gone up 72.20 to 85.51 although I know that it does fluctuate. In the past my platelets have bounced around a bit but never below 100 and my neutrophil levels have always been normal.
Strech51
in
CLL Support
2 years ago
Kadcyla - should I really be travelling? New lump on lymph node.
The consent form I signed did talk of risk of
neutropenia
, need to take my temperature every day etc... I desperately want to go and it has cost us £000s... but what is the risk of complications, with Kadcyla? Can anyone advise? My three boys will be so upset if we don't go.
The consent form I signed did talk of risk of
neutropenia
, need to take my temperature every day etc... I desperately want to go and it has cost us £000s... but what is the risk of complications, with Kadcyla? Can anyone advise? My three boys will be so upset if we don't go.
Ursula_I
in
SHARE Metastatic Breast Cancer
2 years ago
VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
for more vaccination information for those with
neutropenia
or those receiving IVIG/SCIG.
for more vaccination information for those with
neutropenia
or those receiving IVIG/SCIG.
CLLerinOz
Administrator
in
CLL Support
2 years ago
For those of you with horrible side effects on Ibrance!
The investigators hypothesize that the 5 days on and 2 days off schedule is more tolerable with less frequent high grade
neutropenia
and dose interruption/reduction.
The investigators hypothesize that the 5 days on and 2 days off schedule is more tolerable with less frequent high grade
neutropenia
and dose interruption/reduction.
SunShineEveryDay
in
SHARE Metastatic Breast Cancer
2 years ago
Update 6.7
I am now consistently in
Neutropenia
at 1.38. The MPN Specialist does not want to see the Neutrophils drop below 1.00 as that would compromise my immune system too much. It seems that 150mcg is the max dose of Besremi that I can tolerate.
I am now consistently in
Neutropenia
at 1.38. The MPN Specialist does not want to see the Neutrophils drop below 1.00 as that would compromise my immune system too much. It seems that 150mcg is the max dose of Besremi that I can tolerate.
hunter5582
in
MPN Voice
2 years ago
Update 6.5
We do not want the lymphopenia to get any worse nor for the borderline
neutropenia
to get too severe either. My goal is to control the HCT with medication-only. We will see if that works out. I have also experienced some itching with the Besremi (Pegasys too).
We do not want the lymphopenia to get any worse nor for the borderline
neutropenia
to get too severe either. My goal is to control the HCT with medication-only. We will see if that works out. I have also experienced some itching with the Besremi (Pegasys too).
hunter5582
in
MPN Voice
2 years ago
VERU-111 sounds promising, and may be a Godsend for those with very low blood counts who can't get other treatments
Highlights of final results from the Phase 1b/2 clinical study are as follows: Safety- Sabizabulin 63mg oral daily dosing was well tolerated with no clinically significant reports of neurotoxicity or
neutropenia
.
Highlights of final results from the Phase 1b/2 clinical study are as follows: Safety- Sabizabulin 63mg oral daily dosing was well tolerated with no clinically significant reports of neurotoxicity or
neutropenia
.
JLS1
in
Advanced Prostate Cancer
2 years ago
Neutropenia post Rituximab and Covid Jabs
After routine blood test last week I have Zero Neutrophils count! I was sent to hospital for further tests and then given a week of antibiotics. Could this be due to Covid jabs ? My Rituximab Infusion was in June. I have been told to stop Methotrexate and isolate. Anyone had a similar experience? Thanks
After routine blood test last week I have Zero Neutrophils count! I was sent to hospital for further tests and then given a week of antibiotics. Could this be due to Covid jabs ? My Rituximab Infusion was in June. I have been told to stop Methotrexate and isolate. Anyone had a similar experience? Thanks
annekelt
in
NRAS
2 years ago
VERU-111 (sabizabulin)
But
neutropenia
and neuropathathy, which can be troubling side effects of taxane chemo, were not seen. They have adjusted the dose and give it with anti-diarrheal medication in new trials.
But
neutropenia
and neuropathathy, which can be troubling side effects of taxane chemo, were not seen. They have adjusted the dose and give it with anti-diarrheal medication in new trials.
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
biology drugs not helping
I'm struggling with
neutropenia
and am now on a low strength of Ibrance (100mg). My last blood showed mild
neutropenia
. In the last month, I started to have severe pain and another infected lymph node was discovered in my armpit.
I'm struggling with
neutropenia
and am now on a low strength of Ibrance (100mg). My last blood showed mild
neutropenia
. In the last month, I started to have severe pain and another infected lymph node was discovered in my armpit.
Rona777
in
SHARE Metastatic Breast Cancer
2 years ago
Severe Neutropenia 2 months after reaching UMRD?
Many of you have heard my saga with husband's CLL journey. Was able to stop treatment in November when blood work and bone marrow biopsy confirmed he had reached undetected minimal residual disease. He had become very neutropenic during the final weeks of receiving Venclexa which led first to dose reduction
Many of you have heard my saga with husband's CLL journey. Was able to stop treatment in November when blood work and bone marrow biopsy confirmed he had reached undetected minimal residual disease. He had become very neutropenic during the final weeks of receiving Venclexa which led first to dose reduction
Palmetto
in
CLL Support
2 years ago
Another victory for "triplet"therapy for newly diagnosed metastatic men.
) • DARO delayed time to castration resistance by 64% • DARO delayed time to pain progression by 21% • DARO delayed time to first skeletal event/fracture • DARO delayed time to next chemotherapy • Treatment-related adverse events were similar and were highest during the time chemo was given (mainly
neutropenia
) • DARO delayed time to castration resistance by 64% • DARO delayed time to pain progression by 21% • DARO delayed time to first skeletal event/fracture • DARO delayed time to next chemotherapy • Treatment-related adverse events were similar and were highest during the time chemo was given (mainly
neutropenia
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Does anyone have experience of neutropenia? Especially due to Sulfasalazine and/or Tocilizmub?
Low neutrophils/
neutropenia
on TCZ? Hi folks, I was wondering if anyone who has experienced this happening can give me some of idea how long it will take to increase? It’s worrying as I’ve had to stop my Sulfasalazine and TCZ (weekly injections) this week. I take both for RA and LVV/GCA .
Low neutrophils/
neutropenia
on TCZ? Hi folks, I was wondering if anyone who has experienced this happening can give me some of idea how long it will take to increase? It’s worrying as I’ve had to stop my Sulfasalazine and TCZ (weekly injections) this week. I take both for RA and LVV/GCA .
Erikaknitssocks
in
Vasculitis UK
2 years ago
Low neutrophils/ neutropenia on TCZ. How long till neutrophil levels get back up?
Low neutrophils/
neutropenia
on TCZ? Hi folks, I was wondering if anyone who has experienced this happening can give me some of idea how long it will take to increase? It’s worrying as I’ve had to stop my Sulfasalazine and TCZ (weekly injections) this week. I take both for RA and LVV/GCA .
Low neutrophils/
neutropenia
on TCZ? Hi folks, I was wondering if anyone who has experienced this happening can give me some of idea how long it will take to increase? It’s worrying as I’ve had to stop my Sulfasalazine and TCZ (weekly injections) this week. I take both for RA and LVV/GCA .
Erikaknitssocks
in
PMRGCAuk
2 years ago
Post rituximab drop in immunoglobulins
I am now back in mild
neutropenia
and my immunoglobulins have dropped below the lower limit of normal. Have othes seen this?
I am now back in mild
neutropenia
and my immunoglobulins have dropped below the lower limit of normal. Have othes seen this?
timmay111
in
NRAS
3 years ago
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