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Experiences with
Neutropenia
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Palliative Care- is chemo a necessary evil?
The Consultant has told us that radiotherapy isn't appropriate and they may have a problem with which chemo regimen to offer as Bob developed saddle PEs and
neutropenia
after ECF and the adenocarcinoma is aggressive.
The Consultant has told us that radiotherapy isn't appropriate and they may have a problem with which chemo regimen to offer as Bob developed saddle PEs and
neutropenia
after ECF and the adenocarcinoma is aggressive.
nidbib
in
OPA Palliative Care & Guidance
10 years ago
UPDATE ON NEUTROPENIA AND MIRENA COIL
I HAVE DEVELOPED SEVERE CHRONIC
NEUTROPENIA
AND MY NEUTROPHILS HAVE BEEN VERY LOW THROUGHOUT THAT TIME. HIGHEST POINT 0.8 LOWEST POINT (AT PRESENT 0.1). THEY PUT IT DOWN TO MY RA BUT I AM NOT CONVINCED. I HAVE HAD RA FOR 25 PLUS YEARS BUT NOT ALWAYS BAD. I DONT THINK I HAVE A PROPER DIAGNOSIS YET.
I HAVE DEVELOPED SEVERE CHRONIC
NEUTROPENIA
AND MY NEUTROPHILS HAVE BEEN VERY LOW THROUGHOUT THAT TIME. HIGHEST POINT 0.8 LOWEST POINT (AT PRESENT 0.1). THEY PUT IT DOWN TO MY RA BUT I AM NOT CONVINCED. I HAVE HAD RA FOR 25 PLUS YEARS BUT NOT ALWAYS BAD. I DONT THINK I HAVE A PROPER DIAGNOSIS YET.
anneileen
in
NRAS
11 years ago
Low temperature causing low white blood cell count?
Also, have been googling several permutations of "low temperature and
neutropenia
" etc..etc.. "Bone marrow optimum temperature" just got me a load of cookery stuff. It seems bone marrow is a trendy dish at the moment!
Also, have been googling several permutations of "low temperature and
neutropenia
" etc..etc.. "Bone marrow optimum temperature" just got me a load of cookery stuff. It seems bone marrow is a trendy dish at the moment!
MacG
in
Thyroid UK
11 years ago
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CLL - a Cancer of the Immune System
Without treatment, you could be dead within hours from febrile
neutropenia
/neutropenic sepsis. Any high (and low!)
Without treatment, you could be dead within hours from febrile
neutropenia
/neutropenic sepsis. Any high (and low!)
AussieNeil
Partner
in
CLL Support
11 years ago
Dr Sharman on Monoclonal B Lymphocytosis (MBL), a sometimes precursor to CLL
- How to understand your complete blood count (CBC), which I've added below National Institutes of Health Education Paper on understanding your CBC http://www.cc.nih.gov/ccc/patient_education/pepubs/cbc97.pdf This paper also includes helpful information on how to live with
neutropenia
- How to understand your complete blood count (CBC), which I've added below National Institutes of Health Education Paper on understanding your CBC http://www.cc.nih.gov/ccc/patient_education/pepubs/cbc97.pdf This paper also includes helpful information on how to live with
neutropenia
AussieNeil
Partner
in
CLL Support
11 years ago
Adrenal Supplement
It came back that I had osteoporosis, and follow up blood tests revealed anaemia/
neutropenia
and hypothyroidism.
It came back that I had osteoporosis, and follow up blood tests revealed anaemia/
neutropenia
and hypothyroidism.
MacG
in
Thyroid UK
11 years ago
Finished FCR - precautions until blood counts stabilise?
Have heard of delayed
neutropenia
and was wondering how long we need to be really careful, we sort of live in a protective bubble now except for work.
Have heard of delayed
neutropenia
and was wondering how long we need to be really careful, we sort of live in a protective bubble now except for work.
mklukas
in
CLL Support
11 years ago
METHOTREXATE OR CICLOSPORIN?
Have severe chronic
neutropenia
for over a year now. The rheumatologist wants to put me on one of the above drugs in the hope it will help with the
neutropenia
.
Have severe chronic
neutropenia
for over a year now. The rheumatologist wants to put me on one of the above drugs in the hope it will help with the
neutropenia
.
anneileen
in
NRAS
11 years ago
SEVERE CHRONIC NEUTROPENIA AND R.A. versus MIRENA COIL!
They cant find a cause for the
neutropenia
except that it may be due to the R.A. ive had for the last 20+ years. Had a bone marrow biopsy which did not reveal much except to show immature white blood cells. Steroids did nothing to help either.
They cant find a cause for the
neutropenia
except that it may be due to the R.A. ive had for the last 20+ years. Had a bone marrow biopsy which did not reveal much except to show immature white blood cells. Steroids did nothing to help either.
anneileen
in
NRAS
11 years ago
Joint hypermobility syndrome and soft tissue rheumatism?
I also have APS, brochiectasis,
neutropenia
, B12 and folate deficiency which means im already on wafarin, longterm antibiotics, b12 injections and folic tabs, any information appreciated
I also have APS, brochiectasis,
neutropenia
, B12 and folate deficiency which means im already on wafarin, longterm antibiotics, b12 injections and folic tabs, any information appreciated
beckyb
in
Hughes Syndrome APS Forum
12 years ago
Post transplant sleep problems
We've spoken to Leeds but their first option would be to lower Tac and introduce MMF but she can't have MMF due to it giving her
neutropenia
previously. So I thought I'd ask if anyone found similar problems? from a very tired mummy zzzzzzzzzzz
We've spoken to Leeds but their first option would be to lower Tac and introduce MMF but she can't have MMF due to it giving her
neutropenia
previously. So I thought I'd ask if anyone found similar problems? from a very tired mummy zzzzzzzzzzz
kirsw
in
Children's Liver Disease Foundation
12 years ago
anyone on liquid T4 and if so, does it work for you?
Advice welcome, i also have iron def anaemia (take big dose daily but don't absorb it), persistent
neutropenia
, pernicious anaemia and coeliac.
Advice welcome, i also have iron def anaemia (take big dose daily but don't absorb it), persistent
neutropenia
, pernicious anaemia and coeliac.
Hidden
in
Thyroid UK
12 years ago
Anyone have any experience of acute neutropenia ?
Hidden
in
CLL Support
12 years ago
Does anyone experience a lull at the end of a Methotrexate week?
I take 10mg of methotrexate to control my SLE, in particular my autoimmune
neutropenia
and will be increasing the dose to 20mg within a fortnight and I am nervous that these symptoms could worsen.
I take 10mg of methotrexate to control my SLE, in particular my autoimmune
neutropenia
and will be increasing the dose to 20mg within a fortnight and I am nervous that these symptoms could worsen.
Chablis
in
LUPUS UK
12 years ago
How do I Tell my Family?
I am at peace and content. 15 months latter I develop
Neutropenia
. Whilst in hospital, when my wife was visiting, some bloody doctor opens her mouth before engaging her brain. Her expression betrayed her realisation. My outward response was polite and understanding.
I am at peace and content. 15 months latter I develop
Neutropenia
. Whilst in hospital, when my wife was visiting, some bloody doctor opens her mouth before engaging her brain. Her expression betrayed her realisation. My outward response was polite and understanding.
Hidden
in
CLL Support
12 years ago
HELP NEEDED WITH THE CURSE OF NEUTROPENIA.
Now have severe chronic
neutropenia
(not caused by meds but doc says its an off shoot of the RA). Neutrophils at 0.4 since January. In hospital 11 days with neutropenic sepsis.
Now have severe chronic
neutropenia
(not caused by meds but doc says its an off shoot of the RA). Neutrophils at 0.4 since January. In hospital 11 days with neutropenic sepsis.
anneileen
in
NRAS
12 years ago
Hi ho, hi ho - for Rituximab I go...
Have received my copy of consultants notes from beginning of month (July) it does amuse me the subtle changes of diagnosis each time, this time I have Feltys with
Neutropenia
and Lymphocytopenia, Cervical Spondylitis (?)
Have received my copy of consultants notes from beginning of month (July) it does amuse me the subtle changes of diagnosis each time, this time I have Feltys with
Neutropenia
and Lymphocytopenia, Cervical Spondylitis (?)
elrose
in
NRAS
12 years ago
Has anyone had had neutropenia .?
I have just got home from a week long stay in hospital as my neutrophil count was down to 0.1. I had a very strong course of antibiotics and the have now gone upb to 4. The doctors have said that I should not have been on azathioprine and mycofenelate, my dermatology doctor was over dowsing me. Has any
I have just got home from a week long stay in hospital as my neutrophil count was down to 0.1. I had a very strong course of antibiotics and the have now gone upb to 4. The doctors have said that I should not have been on azathioprine and mycofenelate, my dermatology doctor was over dowsing me. Has any
Mikki
in
Vasculitis UK
12 years ago
My Living Rheum :)
The combination has been wonderful and worked well alongside a maintenance dose of prednisolone, until … Early last year
Neutropenia
took hold; the body’s inability to produce sufficient neutrophils to fight infection. Cause … Methotrexate!
The combination has been wonderful and worked well alongside a maintenance dose of prednisolone, until … Early last year
Neutropenia
took hold; the body’s inability to produce sufficient neutrophils to fight infection. Cause … Methotrexate!
Hidden
in
NRAS
14 years ago
anyone had chemo delayed due to neutropenia?
has anybody had a chemo cycle delayed due to
neutropenia
? my neutraphills were 0.9 and im having daily injections now to boost my white blood cell production before they give me anymore chemo. im just worried about picking up an infection. any advice or has anyone else experienced this? x
has anybody had a chemo cycle delayed due to
neutropenia
? my neutraphills were 0.9 and im having daily injections now to boost my white blood cell production before they give me anymore chemo. im just worried about picking up an infection. any advice or has anyone else experienced this? x
Hidden
in
My Ovacome
14 years ago
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