Experiences with

Neutropenia

Hi Dragonfly2007 Was really interesting to read your story, not being up with all your medical jargon I was a bit lost, but my WBC count has slowly been going down, and last test was a 2.9 reading, they have ruled out it being caused by any medication. I am seeing a heamatologist in September,

I had my fifth V & O infusion today. My pre infusion blood test showed that my neutrophils dropped from 2.1 to 1.37 in past month. I am back to weekly blood tests and more restrictions on fun things I can’t do. My Venetoclax will be reduced if I go below. This is first hiccup in my treatment. Has this

I was diagnosed with Neutropenia in 2017 aged 46. Anyone else with neutropenia and thyroid problems? I'm sure I'm hypothyroid. My blood test kit has turned up today, so I will wait until Monday before doing the test and posting it off.

Hello ladies, I am mid 1st line chemo treatment for hgsoc 3b, have completed 3 rounds of carbo and started nab-paclitaxel 2 weeks ago after bad reactions to 3 other drugs. I am struggling with low neutrophil count, on and off. Seems to also be related to catching colds. Today it was the lowest I’ve

Has anybody any experience with neutropenia please ?

Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked

Hi I had 3 rounds FCR in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years later. Started V + O March 2023 for R/R.

saw private Endo few weeks ago who stopped Carbimazole due to neutropenia.

Cabazitaxel Hematologic: High risk of neutropenia and febrile neutropenia. Renal: Rare nephrotoxicity unless compounded by dehydration or other drugs. Liver: Requires dose adjustments in hepatic impairment; moderate hepatotoxicity risk. Cardiovascular: Fluid retention, possible arrhythmias.

Previously I was on Sulfasalazine.I suffered severe neutropenia from Sulfasalazine and had to stop immediately. I have dropped my hydroxychloroquine to 200mg a day hoping this will help with the blood platelets but I can't get in touch with the RA nurses until Tuesday to ok this.

When on chemo, she developed neutropenia sepsis which has now effected her blood counts. My mum has developed a rash on the base of her legs, which she has developed before, which went. Please see photo. Has anyone else had this type of rash? Could it be sepsis related again? Any ideas anyone?

When on chemo, she developed neutropenia sepsis which has now effected her blood counts. My mum has developed a rash on the base of her legs, which she has developed before, which went. Please see photo. Has anyone else had this type of rash? Could it be sepsis related again? Any ideas anyone?

When on chemo, she developed neutropenia sepsis which has now effected her blood counts. My mum has developed a rash on the base of her legs, which she has developed before, which went. Please see photo. Has anyone else had this type of rash? Could it be sepsis related again? Any ideas anyone?

I only managed 1 cycle of chemo before spending 13 days in hosp with severe neutropenia...no more chemo but completed my 30 radiotherapy sessions last august.

Hi all, I have posted previously about being diagnosed hyperthyroid and started on Carbimazole, this was stopped due to persistent neutropenia, then i swung to hypothyroid and now 7 weeks later I’ve had another blood test and everything’s normal!

I have Neutropenia and the usual pains in joints etc. I am getting really fed up with this now and don't know what to do .. Is it the same everywhere or have I just been forgotten as I don't jump up and down screaming and shouting!!! Any advice greatly appreciated

My only frustration is that if I have chemo, the pathway for neutropenia is visiting A&E Having already spent many hours waiting, I’m not sure I want to go through that. Perhaps I’ll give carboplatin a go nonetheless. Still feeling blessed and grateful and finding magic in the mundane.

She’s upped the tcz to weekly, aware that I get neutropenia initially, but she’s not concerned and will monitor with weekly bloods. She’s ordered a CT angiogram for neck, and the rest, down to lower limbs arteries to ascertain if there is stenoses or aneurysms.

Has had neutropenia sepsis, a blood transfusion and sodium supplements. She has had a cough for 8 weeks now and it's confirmed a bacteria infection, which I know can be caused by the chemo. She is now on antibiotics again.

Has had neutropenia sepsis, a blood transfusion and sodium supplements. She has had a cough for 8 weeks now and it's confirmed a bacteria infection, which I know can be caused by the chemo. She is now on antibiotics again.