Experiences with

Neutropenia

or is this mild neutropenia (1.5 to 1 threshold) is an absolute contraindication? My remission lasted seven years after the initial ATD course and I was hoping I can achieve it again. Many thanks for any comments!

Hi Dragonfly2007 Was really interesting to read your story, not being up with all your medical jargon I was a bit lost, but my WBC count has slowly been going down, and last test was a 2.9 reading, they have ruled out it being caused by any medication. I am seeing a heamatologist in September,

I had my fifth V & O infusion today. My pre infusion blood test showed that my neutrophils dropped from 2.1 to 1.37 in past month. I am back to weekly blood tests and more restrictions on fun things I can’t do. My Venetoclax will be reduced if I go below. This is first hiccup in my treatment. Has this

My query is, has anyone had neutropenia from carbimazole previously and then tried again and it be ok? I’m due to see the gp Friday to discuss but have been told I can start the medication now. Any advice appreciated. Thanks

Hello ladies, I am mid 1st line chemo treatment for hgsoc 3b, have completed 3 rounds of carbo and started nab-paclitaxel 2 weeks ago after bad reactions to 3 other drugs. I am struggling with low neutrophil count, on and off. Seems to also be related to catching colds. Today it was the lowest I’ve

I had CLL with anemia, neutropenia and felt like death but no night sweats at age 42. then it went into remission, asymptomatic, normal blood counts. has anyone had this happen and then have it come back? Were there any lingering symptoms in between? How does it exhibit when it returns?

I was diagnosed with Neutropenia in 2017 aged 46. Anyone else with neutropenia and thyroid problems? I'm sure I'm hypothyroid. My blood test kit has turned up today, so I will wait until Monday before doing the test and posting it off.

Apart from the neutropenia no side affects so far, only sometimes joint aches I think from the Letrozol. I could live a nearly normal life the last years, see my elder son graduate from school, was able to travel and I doing sports.

Ibrance dose reduced to 75 mg due to neutropenia. 3. Zoledronic acid every 3 months given aug 2024 4. radiation to spine. 5. Being followed by Dr. Chang from urology for retroperitoneal fibrosis. 6. Capecitabine cycle 22a, started June 2023. 7. Gets bone pain when she get

Has anybody any experience with neutropenia please ?

I’m currently off TCZ due to increased neutropenia, which is a bummer because that stuff WORKS!! for me. After initially increasing pred to 25mgs, I’m now down to 10mgs, after being at 4 and a couple of hiccups.

I’m almost 2 years out from my transplant with a bit of neutropenia and I am extremely hesitant to go but my husband has sacrificed so much for my health and his family is getting older and it would be a nice experience for him.

I could only take 100g of venetoclax because of my neutropenia. The only follow up I am receiving is 3 monthly blood tests plus consultation. My first consultation in December was telephone consultation lasting 4 minutes saying my blood results were fine.

Cabazitaxel Hematologic: High risk of neutropenia and febrile neutropenia. Renal: Rare nephrotoxicity unless compounded by dehydration or other drugs. Liver: Requires dose adjustments in hepatic impairment; moderate hepatotoxicity risk. Cardiovascular: Fluid retention, possible arrhythmias.

Hi I had 3 rounds FCR in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years later. Started V + O March 2023 for R/R.

Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked

Neutropenia, the most common adverse event of clinical interest of grade 3 or higher, was reported in 32.3%, 46.1%, and 43.2% in the three groups. Its a short read here: https://www.nejm.org/doi/full/10.1056/NEJMoa2409804?query=TOC&logout=true Jackie

White blood cell, red cell, and haemaglobin counts are still low and slow progressive neutropenia which could be due to the recent cidofovir infusions. Have gone back to 2 week consultations and if bloods look better, then they will push to 3-4 weeks.

saw private Endo few weeks ago who stopped Carbimazole due to neutropenia.

When on chemo, she developed neutropenia sepsis which has now effected her blood counts. My mum has developed a rash on the base of her legs, which she has developed before, which went. Please see photo. Has anyone else had this type of rash? Could it be sepsis related again? Any ideas anyone?