Search
Search
About
Log in
Join
Experiences with
Neutropenia
Posts
Communities
403 public posts
Filter results
Question about Dexamethasone with O&V
She is saying its because I had auto-immune
neutropenia
. This doesn't make much sense to me given the results of steroids so far (as above). I'm aware high dose steroids have side effects and personally I hate the insomnia etc. Any thoughts?
She is saying its because I had auto-immune
neutropenia
. This doesn't make much sense to me given the results of steroids so far (as above). I'm aware high dose steroids have side effects and personally I hate the insomnia etc. Any thoughts?
Greenbunnies
in
CLL Support
1 year ago
Possibly Failing Calquence - what’s next?
Was in remission till 2017, I opted for venetoclax, drug had to be dicontinued due to adverse reaction and
neutropenia
, but I achieved remission. In 2019 had another node biopsy in neck, cll related, pet scan numerous nodes above and below diaphragm.
Was in remission till 2017, I opted for venetoclax, drug had to be dicontinued due to adverse reaction and
neutropenia
, but I achieved remission. In 2019 had another node biopsy in neck, cll related, pet scan numerous nodes above and below diaphragm.
ReneeSusan
in
CLL Support
1 year ago
IBrance alternative dosing schedule : (5 on 2 off) another trial in the works
The investigators hypothesize that the 5 days on and 2 days off schedule is more tolerable with less frequent high grade
neutropenia
and dose interruption/reduction.
The investigators hypothesize that the 5 days on and 2 days off schedule is more tolerable with less frequent high grade
neutropenia
and dose interruption/reduction.
Dragonfly2
in
SHARE Metastatic Breast Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Real-World Outcomes of First-Line Ribociclib Plus Aromatase Inhibitor in Patients With HR+/HER2− MBC
"A total of 56% of patients had at least 1 dose reduction, with
neutropenia
(68%) and abnormal liver enzymes (17%) the most common reasons." "Median PFS (
progression-free survival
) was not reached, with PFS at 12 months and 18 months being 76% and 67%".
"A total of 56% of patients had at least 1 dose reduction, with
neutropenia
(68%) and abnormal liver enzymes (17%) the most common reasons." "Median PFS (
progression-free survival
) was not reached, with PFS at 12 months and 18 months being 76% and 67%".
Hazelgreen
in
SHARE Metastatic Breast Cancer
1 year ago
Husband FINALLY got last O infusion after Neutro bump in the road!
Neutropenia
meant that he was even MORE immune compromised now than he was then. These silent conditions make me nuts. Will it return? When? If? How? So many questions that only labwork can answer. This means that we BOTH have modified bubbles once again.
Neutropenia
meant that he was even MORE immune compromised now than he was then. These silent conditions make me nuts. Will it return? When? If? How? So many questions that only labwork can answer. This means that we BOTH have modified bubbles once again.
lisakc1
in
CLL Support
1 year ago
Watch and Wait on Acalabrutinib
Severe
neutropenia
, the reason I started treatment, is “tenuously improved” (words of my specialist) at around 1.25 and over the magic 1.0 for the last 6 months or so. I feel better than I have in years.
Severe
neutropenia
, the reason I started treatment, is “tenuously improved” (words of my specialist) at around 1.25 and over the magic 1.0 for the last 6 months or so. I feel better than I have in years.
Vizilo
in
CLL Support
2 years ago
CAR-T for CLL Hits Goal of Mid-Stage Trial - All patients had progressed on BTK inhibitors & most had failed venetoclax - MedPageToday, 6/12
[/i] [i]In the full safety set of 117 patients, 92% experienced grade ≥3 treatment-emergent adverse events (TEAEs), with the most common including
neutropenia
(61%), anemia (52%), and thrombocytopenia (41%). Of the five deaths that were due to TEAEs, one was considered related to liso-cel.
[/i] [i]In the full safety set of 117 patients, 92% experienced grade ≥3 treatment-emergent adverse events (TEAEs), with the most common including
neutropenia
(61%), anemia (52%), and thrombocytopenia (41%). Of the five deaths that were due to TEAEs, one was considered related to liso-cel.
cujoe
in
CLL Support
1 year ago
NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14
Other than
neutropenia
, and having to get a monthly neulasta injection, my blood counts have continued trending to normal levels.
Other than
neutropenia
, and having to get a monthly neulasta injection, my blood counts have continued trending to normal levels.
steve5441
in
CLL Support
2 years ago
Bumps In The Road
I was there being treated for a few days for the
neutropenia
and monitoring the Covid situation. I was sent home on New Year's Eve and went to see my treatment/trial team a couple of days later.
I was there being treated for a few days for the
neutropenia
and monitoring the Covid situation. I was sent home on New Year's Eve and went to see my treatment/trial team a couple of days later.
Jmiah717
in
CLL Support
1 year ago
Rising platelet count whilst on hydroxy
It initially brought my platelet count right down, but it also reduced my neutrophils and I have had
neutropenia
for at least 2 years. They have been experimentally reducing my HU each visit to see if they can raise my neutrophils, but they are sitting at 1.2 and 1.3 .
It initially brought my platelet count right down, but it also reduced my neutrophils and I have had
neutropenia
for at least 2 years. They have been experimentally reducing my HU each visit to see if they can raise my neutrophils, but they are sitting at 1.2 and 1.3 .
UKZA
in
MPN Voice
2 years ago
Robust PSA Drops With Radionuclide Therapy in CRPCa— All but one patient had a PSA decline after a fractionated dose of 225Ac-J591
Grade 3/4 AEs associated with fractionated dosing included thrombocytopenia (9% grade 3 and 13% grade 4),
neutropenia
(22% and 0%), and anemia (17% and 0%). No patient developed grade 3/4 nonhematologic AEs.
Grade 3/4 AEs associated with fractionated dosing included thrombocytopenia (9% grade 3 and 13% grade 4),
neutropenia
(22% and 0%), and anemia (17% and 0%). No patient developed grade 3/4 nonhematologic AEs.
cujoe
in
Fight Prostate Cancer
1 year ago
Trial of Deferiprone in Parkinson’s Disease (Iron Chelation) Complete: Looks like it made PD worse...
The main serious adverse events with deferiprone were agranulocytosis in 2 participants and
neutropenia
in 3 participants.
The main serious adverse events with deferiprone were agranulocytosis in 2 participants and
neutropenia
in 3 participants.
Bolt_Upright
in
Cure Parkinson's
2 years ago
Neutropenia
After my RT in March I’m still low in WBC (
Neutropenia
). Yesterdays result show 2.6, lowest normal is 4.0. The value didn’t change compared to two months ago. I‘m thinking about my 4th Covid shot but don’t know if that’s good as long as WBC is as low. Any recommendations or hints, how to recover.
After my RT in March I’m still low in WBC (
Neutropenia
). Yesterdays result show 2.6, lowest normal is 4.0. The value didn’t change compared to two months ago. I‘m thinking about my 4th Covid shot but don’t know if that’s good as long as WBC is as low. Any recommendations or hints, how to recover.
Nusch
in
Advanced Prostate Cancer
2 years ago
CAR T-cell therapy
Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous R-CHOP), the drug start to make a side effects after I got infected with COVID-19 , I had a recurrent infection for 6-7 months after with sever
neutropenia
.
Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous R-CHOP), the drug start to make a side effects after I got infected with COVID-19 , I had a recurrent infection for 6-7 months after with sever
neutropenia
.
htam
in
Non Hodgkin's Lymphoma Friends
2 years ago
CAR T-cell therapy
Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous R-CHOP), the drug start to make a side effects after I got infected with COVID-19 , I had a recurrent infection for 6-7 months after with sever
neutropenia
.
Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous R-CHOP), the drug start to make a side effects after I got infected with COVID-19 , I had a recurrent infection for 6-7 months after with sever
neutropenia
.
htam
in
CLL Support
2 years ago
Neutropenia and its effects.....
I have had mild
neutropenia
on several occasions during the past five years . I am now wondering whether the
neutropenia
is causing the dizziness, light-headedness, fatigue and headache. Does anyone have any experience, or thoughts on that possibility?
I have had mild
neutropenia
on several occasions during the past five years . I am now wondering whether the
neutropenia
is causing the dizziness, light-headedness, fatigue and headache. Does anyone have any experience, or thoughts on that possibility?
Ophelia1
in
LUPUS UK
2 years ago
Evusheld anyone?
I’m currently on Ibrance and Faslodex with chronic
neutropenia
so would like better immunity to current Covid strain (had 2 & 2 shots).
I’m currently on Ibrance and Faslodex with chronic
neutropenia
so would like better immunity to current Covid strain (had 2 & 2 shots).
Beattheodds
in
SHARE Metastatic Breast Cancer
2 years ago
Venetoclax for dummies
While many, if not most people, tolerate venetioclax very well, when I added it I had stomach problems and
neutropenia
.
While many, if not most people, tolerate venetioclax very well, when I added it I had stomach problems and
neutropenia
.
cajunjeff
in
CLL Support
1 year ago
Risk of surgery?
Hello, my husband has chronic liver disease and splenomegaly , thrombocytopenia and
neutropenia
associated with haemachromatosis and NAFLD, he is due to have a hip replacement in the next few weeks and I’m worried about his risk.
Hello, my husband has chronic liver disease and splenomegaly , thrombocytopenia and
neutropenia
associated with haemachromatosis and NAFLD, he is due to have a hip replacement in the next few weeks and I’m worried about his risk.
Ellabella1
in
British Liver Trust
2 years ago
Neutropenia after 1st chemo
So my CBC is back 1 week post 1st Docetaxel chemo. My WBC is 0.8 (normal range is 3.4 - 10.8) and Neutrophils (absolute) is 0.1 (normal is 1.4 - 7). Waiting to hear from M.D. but are these numbers a source for worry? No fever or any issues.
So my CBC is back 1 week post 1st Docetaxel chemo. My WBC is 0.8 (normal range is 3.4 - 10.8) and Neutrophils (absolute) is 0.1 (normal is 1.4 - 7). Waiting to hear from M.D. but are these numbers a source for worry? No fever or any issues.
rsgdmd
in
Advanced Prostate Cancer
2 years ago
1
...
3
4
5
...
21
Next page
10
20
Filter results
Clear filters
Posted in
All communities
CLL Support
132 results
Advanced Prostate Cancer
59 results
Thyroid UK
51 results
View top 10 communities
Sort by
Most Relevant
Newest