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Vision 18 months after surgery
I had surgery to remove my 2cm
neuroma
(translabyrinthe) in April 2021. All went well and my recovery was erratic but I’m as ‘normal’ as I can be now. Over the last 3 months or so, my vision on the side of the tumour gets quite blurry by the end of the day.
I had surgery to remove my 2cm
neuroma
(translabyrinthe) in April 2021. All went well and my recovery was erratic but I’m as ‘normal’ as I can be now. Over the last 3 months or so, my vision on the side of the tumour gets quite blurry by the end of the day.
Gardener21
in
Acoustic Neuroma Support
2 years ago
introduction
Hi All Just a quick introduction and saying helllo My Name is Rob I’m approaching my 60th birthday at the end of February and live in North Nottinghamshire in the Uk, 17 miles from Sheffield, I think this site is fab and have learned a lot from other contributors experiences and comments , my story
Hi All Just a quick introduction and saying helllo My Name is Rob I’m approaching my 60th birthday at the end of February and live in North Nottinghamshire in the Uk, 17 miles from Sheffield, I think this site is fab and have learned a lot from other contributors experiences and comments , my story
Rob2563
in
Acoustic Neuroma Support
2 years ago
New AN diagnosis
Had the contract MRI this week now waiting to hear back . First MRI in Nov22 said it was 10mm not sure what the contract MRI will show ? or what to expect next . I have had tinnitus for years and started to lose my hearing in one ear about 10 months ago, thought it was age but now know its AN. Not sure
Had the contract MRI this week now waiting to hear back . First MRI in Nov22 said it was 10mm not sure what the contract MRI will show ? or what to expect next . I have had tinnitus for years and started to lose my hearing in one ear about 10 months ago, thought it was age but now know its AN. Not sure
Ear23
in
Acoustic Neuroma Support
2 years ago
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Annual MRI scan for AN after surgery
Hi all, 2 weeks ago i had my 2nd MRI scan to check on signs of any tumour regrowth since my surgery Aug 21. I thought i would receive my results via letter but instead i have an appointment to see the Neurosurgeon. Is this the normal procedure for everyone as i'm alittle anxious that maybe they need
Hi all, 2 weeks ago i had my 2nd MRI scan to check on signs of any tumour regrowth since my surgery Aug 21. I thought i would receive my results via letter but instead i have an appointment to see the Neurosurgeon. Is this the normal procedure for everyone as i'm alittle anxious that maybe they need
Pinkrose1
in
Acoustic Neuroma Support
2 years ago
New old boy
I have a intracanalicular vestibular schwannoma, more commonly know as an AN :) I am in the monitoring process of annual MRI scans. The tumour grew 2mm last year. Got the feeling that the consultant now feels that something will need to be done as the emphasis at my last meeting was more on side effects
I have a intracanalicular vestibular schwannoma, more commonly know as an AN :) I am in the monitoring process of annual MRI scans. The tumour grew 2mm last year. Got the feeling that the consultant now feels that something will need to be done as the emphasis at my last meeting was more on side effects
HBS68
in
Acoustic Neuroma Support
2 years ago
Concentration
I am very concerned as my tumour is only 1 cm but I am now feeling very ill with the tinnitus and I feel that I just can’t cope with it , round my ear also feels numb. I feel it make me unable to concentrate. Does anyone else have this problem I am 68 years old.
I am very concerned as my tumour is only 1 cm but I am now feeling very ill with the tinnitus and I feel that I just can’t cope with it , round my ear also feels numb. I feel it make me unable to concentrate. Does anyone else have this problem I am 68 years old.
Ballantyne56
in
Acoustic Neuroma Support
2 years ago
Facial drop and AN
I completed 6 weeks radiotherapy for a 2.5cm AN back in 2021 and am due my next MRI on 11th Jan with follow up consultant appointment at end of Feb. Pre and post the radiotherapy I've always had facial numbness and twitches / ticks but these have now started to increase in regularity and extent rather
I completed 6 weeks radiotherapy for a 2.5cm AN back in 2021 and am due my next MRI on 11th Jan with follow up consultant appointment at end of Feb. Pre and post the radiotherapy I've always had facial numbness and twitches / ticks but these have now started to increase in regularity and extent rather
Smiffy65
in
Acoustic Neuroma Support
2 years ago
Where next?
ENT feels its not ear related at all, and that it's retro-cochlear, and spoke to me about acoustic
neuroma
. GP reception has just advised MRI normal. Where do I go from here? Ask for MRI with contrast? Neuro referral?
ENT feels its not ear related at all, and that it's retro-cochlear, and spoke to me about acoustic
neuroma
. GP reception has just advised MRI normal. Where do I go from here? Ask for MRI with contrast? Neuro referral?
Kenmore78
in
Acoustic Neuroma Support
2 years ago
nausea and mild temperature.
My vestibular
neuroma
is just 7mm but I have almost continuous low energy and dizziness starting every afternoon and a slight temperature every evening. This occurs regularly and lasts for more than a month at a time for the last 3 years. Multiple blood tests reveal nothing. Any thoughts?
My vestibular
neuroma
is just 7mm but I have almost continuous low energy and dizziness starting every afternoon and a slight temperature every evening. This occurs regularly and lasts for more than a month at a time for the last 3 years. Multiple blood tests reveal nothing. Any thoughts?
Trevor5555
in
Acoustic Neuroma Support
2 years ago
Timing of bloods when taking alternate daily levo dose please?
Im still feeling rubbish on 100/125mcgs..but ENT are sending me for a brain MRI to exclude acoustic
neuroma
so mb just worrying about that. Appreciate any advice, thank you :)
Im still feeling rubbish on 100/125mcgs..but ENT are sending me for a brain MRI to exclude acoustic
neuroma
so mb just worrying about that. Appreciate any advice, thank you :)
fluffyhat
in
Thyroid UK
2 years ago
acoustic neuroma 1.9cm
I have been diagnosed with an acoustic
neuroma
that was 1.9cm in February but didn’t receive my results until June. I have seen a neurosurgeon at royal london hospital who has advised me that i will require active treatment due to my age. Either radiotherapy or surgery.
I have been diagnosed with an acoustic
neuroma
that was 1.9cm in February but didn’t receive my results until June. I have seen a neurosurgeon at royal london hospital who has advised me that i will require active treatment due to my age. Either radiotherapy or surgery.
Hlondon87
in
Acoustic Neuroma Support
2 years ago
Best Surgeon for an Acoustic Neuroma
Hello everyone. I found this forum and it looks like it could be of real help. 4 years ago my wife was diagnosed with an AN and, following 6-8 months of monitoring, was given radiotherapy (at Addenbrookes) to treat it. To cut a very long story short, she has suffered distessing symptoms ever since
Hello everyone. I found this forum and it looks like it could be of real help. 4 years ago my wife was diagnosed with an AN and, following 6-8 months of monitoring, was given radiotherapy (at Addenbrookes) to treat it. To cut a very long story short, she has suffered distessing symptoms ever since
WhBoSc
in
Acoustic Neuroma Support
2 years ago
newly diagnosed
hi! .. Following an MRI in April, they found (incidentally) a CPR tumour. I was advised at the time that it was likely benign but I would be sent for a CT scan for my chest abdomen and pelvis to make sure no other lesions. Thankfully this was clear. I then had another MRI in September which has shown
hi! .. Following an MRI in April, they found (incidentally) a CPR tumour. I was advised at the time that it was likely benign but I would be sent for a CT scan for my chest abdomen and pelvis to make sure no other lesions. Thankfully this was clear. I then had another MRI in September which has shown
Sorcha77
in
Acoustic Neuroma Support
2 years ago
Mortons neuroma
The cardiologist diagnosed Mortons
neuroma
. Just wondered if anybody has the same thing and if there is any connection with R A? Which I have had for 10 years. It is pretty uncomfortable making sleep difficult which we all know added to fatigue is not the best.
The cardiologist diagnosed Mortons
neuroma
. Just wondered if anybody has the same thing and if there is any connection with R A? Which I have had for 10 years. It is pretty uncomfortable making sleep difficult which we all know added to fatigue is not the best.
Bhasvic64
in
NRAS
2 years ago
Newbie awaiting an MRI
Me being me, I started googling the reasons for this 🫤and I now have some knowledge on Acoustic
Neuroma
etc. I stumbled across this site, and read through some of the posts.
Me being me, I started googling the reasons for this 🫤and I now have some knowledge on Acoustic
Neuroma
etc. I stumbled across this site, and read through some of the posts.
CG55
in
Acoustic Neuroma Support
2 years ago
Awaiting results of MRI
The results came back with an incidental finding of a 5.6mm lesion on my 7/8 nerve suspected acoustic
neuroma
. I was sent for a further MRI with contrast and I am now waiting results.
The results came back with an incidental finding of a 5.6mm lesion on my 7/8 nerve suspected acoustic
neuroma
. I was sent for a further MRI with contrast and I am now waiting results.
Sherwood
in
Acoustic Neuroma Support
2 years ago
brain tumour
Hi, I have a 9mm acoustic
neuroma
I had a CT scan done this April I was told in July that it has grown but in the last 8 weeks I have had headaches every day and night.
Hi, I have a 9mm acoustic
neuroma
I had a CT scan done this April I was told in July that it has grown but in the last 8 weeks I have had headaches every day and night.
Ballantyne56
in
Acoustic Neuroma Support
2 years ago
Growth
Hi everyone, I have an acoustic
neuroma
of 6mm and it’s been unchanged in size for 2 years. What’s the chances it will start to grow if it’s been stable for 2 years. Does anyone have any experience with this?
Hi everyone, I have an acoustic
neuroma
of 6mm and it’s been unchanged in size for 2 years. What’s the chances it will start to grow if it’s been stable for 2 years. Does anyone have any experience with this?
Sherwood
in
Acoustic Neuroma Support
2 years ago
Two Cuties
Ive just seen the surgeon and he's advised one last steroid injection for this
neuroma
. If pain returns then its an op with a 73%success rate to stop this painful nerve. Luckily, it's worked so 🤞it stays that way!. Still awaiting result of ct scan.
Ive just seen the surgeon and he's advised one last steroid injection for this
neuroma
. If pain returns then its an op with a 73%success rate to stop this painful nerve. Luckily, it's worked so 🤞it stays that way!. Still awaiting result of ct scan.
misty14
in
LUPUS UK
2 years ago
New Member
I was diagnosed with an Acoustic
Neuroma
, but after my surgery the doctors told me I have a brain stem tumor. Most of it was resectioned, but the surgery left me with right-sided facial paralysis, deafness, and a spinning and bobbing world.
I was diagnosed with an Acoustic
Neuroma
, but after my surgery the doctors told me I have a brain stem tumor. Most of it was resectioned, but the surgery left me with right-sided facial paralysis, deafness, and a spinning and bobbing world.
MimiSpree
in
The Brain Tumour Charity
2 years ago
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