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Head tingling face, legs, and arms
I'm now waiting to see ENT Consultant for a suspected
Neuroma
. I have never felt this ill and am heavily congested and always sound like I have a cold. No appetite and am loosing weight. Also can't stand any loud noises and like to be quiet, alos my sense of smell and taste has changed.
I'm now waiting to see ENT Consultant for a suspected
Neuroma
. I have never felt this ill and am heavily congested and always sound like I have a cold. No appetite and am loosing weight. Also can't stand any loud noises and like to be quiet, alos my sense of smell and taste has changed.
bubbatetley
in
Acoustic Neuroma Support
8 months ago
Is anyone aware of any trials in Austria?
I have an acoustic
neuroma
in my left ear which is causing extreme tinnitus in my left ear. I have been unable to find a doctor in Austria that treats this effectively. Is anyone aware of anyone near Linz that does?
I have an acoustic
neuroma
in my left ear which is causing extreme tinnitus in my left ear. I have been unable to find a doctor in Austria that treats this effectively. Is anyone aware of anyone near Linz that does?
itguy2000
in
Tinnitus UK
1 year ago
Acoustic Neuroma
Can you please share your experience with small acoustic
neuroma
? Also, What treatment you went with? I am really afraid that doctor will choose radiation.
Can you please share your experience with small acoustic
neuroma
? Also, What treatment you went with? I am really afraid that doctor will choose radiation.
Jowita1991
in
Acoustic Neuroma Support
1 year ago
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Leflunomide and surgery..
I’m having surgery next Wednesday on my right foot for Morton’s
neuroma
(had left foot excision 6 months ago). At the pre-op the nurse had never heard of Leflunomide and had to google it as to whether it needs to be ceased pre-surgery. She couldn’t find definitive answer so contacted my surgeon.
I’m having surgery next Wednesday on my right foot for Morton’s
neuroma
(had left foot excision 6 months ago). At the pre-op the nurse had never heard of Leflunomide and had to google it as to whether it needs to be ceased pre-surgery. She couldn’t find definitive answer so contacted my surgeon.
Sapphire1701
in
NRAS
8 months ago
Headaches post Gamma knife surgery
6 weeks of headaches on the side of the tumour and they’ve been getting worse. I’m due to see the original ENT consultant on Wednesday next week but and ideas why now? It’s over 12 months since the Gamma knife and possibly due to Eustachian tube disfunction. The pain is sometimes sharp and intense
6 weeks of headaches on the side of the tumour and they’ve been getting worse. I’m due to see the original ENT consultant on Wednesday next week but and ideas why now? It’s over 12 months since the Gamma knife and possibly due to Eustachian tube disfunction. The pain is sometimes sharp and intense
GGourmet
in
Acoustic Neuroma Support
1 year ago
Good information available
https://www.anausa.org/learn-about-acoustic-
neuroma
/video-library Whitefish xx
https://www.anausa.org/learn-about-acoustic-
neuroma
/video-library Whitefish xx
whitefishbay
in
Acoustic Neuroma Support
1 year ago
Strange sounds 10 years post-op
Ive had vestibular schwannoma /acoustic
neuroma
removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds.
Ive had vestibular schwannoma /acoustic
neuroma
removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds.
Wounded101
in
Acoustic Neuroma Support
2 years ago
Driving
I noticed people have mentioned difficulties driving at night .Is this another symptom of having an acoustic
neuroma
or just an age thing ?
I noticed people have mentioned difficulties driving at night .Is this another symptom of having an acoustic
neuroma
or just an age thing ?
Pungwe19
in
Acoustic Neuroma Support
2 years ago
unilateral hearing loss
I’m going to see a private ENT tomorrow, could I possibly have an acoustic
neuroma
or is it unlikely ?
I’m going to see a private ENT tomorrow, could I possibly have an acoustic
neuroma
or is it unlikely ?
sazzabeezle
in
Acoustic Neuroma Support
1 year ago
Insurance headache
Hi All, I was diagnosed with AN in March 2022 at a referral to the hospital following a health check up in December 2021 during which a difference in my hearing between left and right ear was detected. AN measured 11x13 mm on MRI scan and I was referred to skullbase surgeon who recommended watch and
Hi All, I was diagnosed with AN in March 2022 at a referral to the hospital following a health check up in December 2021 during which a difference in my hearing between left and right ear was detected. AN measured 11x13 mm on MRI scan and I was referred to skullbase surgeon who recommended watch and
roland0302
in
Acoustic Neuroma Support
1 year ago
migraines
days recently , i get a pulsating throbbing sensation in my head when i stand feel very off balance , my hearing gets very distorted and muffled and i get pain behind my eyes , the only way i can get it to go is spend a few hours in bed in a dark room and double up on medication, i have an accoustic
neuroma
days recently , i get a pulsating throbbing sensation in my head when i stand feel very off balance , my hearing gets very distorted and muffled and i get pain behind my eyes , the only way i can get it to go is spend a few hours in bed in a dark room and double up on medication, i have an accoustic
neuroma
Freddy1000
in
Migraine Support
1 year ago
large neuroma needs surgery 😬
Hi All Due to mistakes and covid by the time I saw consultant my tumour was 29x25x23.5 so surgery is only option.. obviously I’m pretty scared.Scheduled for 17april if they can get team together.im nearly deaf in my left ear with tinnitus and bit wobbly on my feet . My main concern is recovery,my daughter
Hi All Due to mistakes and covid by the time I saw consultant my tumour was 29x25x23.5 so surgery is only option.. obviously I’m pretty scared.Scheduled for 17april if they can get team together.im nearly deaf in my left ear with tinnitus and bit wobbly on my feet . My main concern is recovery,my daughter
Ayanne
in
Acoustic Neuroma Support
2 years ago
How to register with a neuroma?
In 2013, I underwent radiosurgery for a brain
neuroma
. How can I now register and be examined in the UK? GP sent me to a neurologist and said that I had to wait 51 weeks for an appointment. Is it possible to get an examination faster?
In 2013, I underwent radiosurgery for a brain
neuroma
. How can I now register and be examined in the UK? GP sent me to a neurologist and said that I had to wait 51 weeks for an appointment. Is it possible to get an examination faster?
Serhii
in
Acoustic Neuroma Support
1 year ago
struggling with pain in stomach from Prednisone
carefully - trying to calm my stomach and not put my feet/ankles in jeopardy since they are doing much better ( I have ankle tape on them and wear boots that support them and often now thanks to the PT strengthening can wear sandals that hold the ankle and are not flat and the open toe sandals minimize
neuroma
carefully - trying to calm my stomach and not put my feet/ankles in jeopardy since they are doing much better ( I have ankle tape on them and wear boots that support them and often now thanks to the PT strengthening can wear sandals that hold the ankle and are not flat and the open toe sandals minimize
neuroma
bluegirl7
in
PMRGCAuk
3 months ago
hearing/ear issues
Hi, I’ve developed hearing loss/tinnitus in one ear and am waiting for an MRI to exclude an acoustic
neuroma
. I have mixed connective tissue disease and so one of the other possibilities is that these symptoms are due to an autimmune process. I wondered if anyone had any similar experiences?
Hi, I’ve developed hearing loss/tinnitus in one ear and am waiting for an MRI to exclude an acoustic
neuroma
. I have mixed connective tissue disease and so one of the other possibilities is that these symptoms are due to an autimmune process. I wondered if anyone had any similar experiences?
Mindfullmum
in
LUPUS UK
1 year ago
Flying with suspected AN ??
Under investigation fr Acoustic
Neuroma
had ENT appo5 days ago hearing is fine , Dr suggested an MRI asap but I'm flying 10 hr to Mexico in 3 days . Slightly concerned as my holiday insurer will not cover me as its presently an undiagnosed condition so wondered if anyone knew if its safe to fly ??
Under investigation fr Acoustic
Neuroma
had ENT appo5 days ago hearing is fine , Dr suggested an MRI asap but I'm flying 10 hr to Mexico in 3 days . Slightly concerned as my holiday insurer will not cover me as its presently an undiagnosed condition so wondered if anyone knew if its safe to fly ??
Bvulgari1
in
Acoustic Neuroma Support
2 years ago
Mortons Neuroma
Hi All I'm having a guided by ultrasound steroid injection for
neuroma
in my foot. Really not looking forward to this but hopefully it will help. Can I just ask what footwear I should wear to the procedure and how well will I be able to walk afterwards?
Hi All I'm having a guided by ultrasound steroid injection for
neuroma
in my foot. Really not looking forward to this but hopefully it will help. Can I just ask what footwear I should wear to the procedure and how well will I be able to walk afterwards?
sklitch
in
Arthritis Action
1 year ago
Mortons Neuroma
Hi All I'm having a guided by ultrasound steroid injection for
neuroma
in my foot. Really not looking forward to this but hopefully it will help. Can I just ask what footwear I should wear to the procedure and how well will I be able to walk afterwards?
Hi All I'm having a guided by ultrasound steroid injection for
neuroma
in my foot. Really not looking forward to this but hopefully it will help. Can I just ask what footwear I should wear to the procedure and how well will I be able to walk afterwards?
sklitch
in
NRAS
1 year ago
New Diagnosis of Acoustic Neuroma
I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he
I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he
Nikzstew
in
Acoustic Neuroma Support
2 years ago
2.5cm A.N has just been found - Facial Palsy appt
Hi everyone, I'm in a bit of shock, last Friday, I receive a phone call from ENT saying my MRI showed a 2.5cm acoustic
neuroma
was found and I've now been referred to a multi disciplinary group at the Q.E hospital.
Hi everyone, I'm in a bit of shock, last Friday, I receive a phone call from ENT saying my MRI showed a 2.5cm acoustic
neuroma
was found and I've now been referred to a multi disciplinary group at the Q.E hospital.
Idris2023
in
Acoustic Neuroma Support
2 years ago
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