Good information available

[whitefishbay]

Hello fellow AN sufferers,

I get emails from the Acoustic Neuroma Association (in the USA). I am not a member but their AN Video Library is available. Might answer some questions and give reassurance no matter where you are. Knowledge is power.

anausa.org/learn-about-acou...

Whitefish xx

[bypass]

ANA is indeed a useful resource HOWEVER you do need to always remember that the medical system in the USA is quite different to the UK when consulting it and that their system can be influenced by different issues to ours.

[whitefishbay in reply to bypass]

True but it is at least medical information which I don't get in the UK. Obviously it is general but it fills in some gaps. Thanks.

[bypass in reply to whitefishbay]

Don't forget that we also have BANA in the UK

[Smiffy65]

Thank you for sharing, I have just had a look and already found it really useful. Am going to share the link to the neurocognitive effects of an AN video with my employer HR to support what I am trying to say about some of my difficulties with my symptoms at present.I am a member of BANA too but any extra information that I can share with work from my point is a plus

[whitefishbay in reply to Smiffy65]

Obviously one to one with a specialist is the thing we all want but it's great to be pre pared and learn things the doctor might not say (as they see you for @ 3 minutes). It fills in some gaps. (Mind the gap).

[FERNBROOK]

Many thanks Whitefishbay for the link. It's true here in the UK the healthcare route differs from the USA but many of the trials sourced on this site are from the UK and around the world which level it out. I found the discussion around post surgical dizziness and QOL helpful as 7 months after retrosigmoid I thought my recovery was too slow in these areas..now I gather it's common to still experience symptoms..there's no magic bullet!