Search
Search
About
Log in
Join
Experiences with
Neurodegenerative Disease
Posts
Communities
43,861 public posts
Filter results
Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Atrial Fibrillation (AF) Fact File
Atrial fibrillation (also referred to as AF) is an abnormality in the rhythm of the heart (an arrhythmia). For a full overview of AF from types of AF, diagnosis to managing symptoms, medication, cardioversion, catheter ablation …. And much more! Have you read our Atrial Fibrillation (AF) Fact File?
Atrial fibrillation (also referred to as AF) is an abnormality in the rhythm of the heart (an arrhythmia). For a full overview of AF from types of AF, diagnosis to managing symptoms, medication, cardioversion, catheter ablation …. And much more! Have you read our Atrial Fibrillation (AF) Fact File?
TracyAdmin
Partner
in
Atrial Fibrillation Support
2 months ago
Eliquis
Good Afternoon,I didn't want to hijack Calypso' s post but I also have an enquiry re Eliquis. I recently bit the bullet and as advised by my Cardiologist have started taking Eliquis. I am on PIP - Flecainide and Metropolol. As time has gone on, it's taking longer for me to revert to sinus rhythm.
Good Afternoon,I didn't want to hijack Calypso' s post but I also have an enquiry re Eliquis. I recently bit the bullet and as advised by my Cardiologist have started taking Eliquis. I am on PIP - Flecainide and Metropolol. As time has gone on, it's taking longer for me to revert to sinus rhythm.
Bhoyo
in
Atrial Fibrillation Support
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Liver hemangiona
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
helnetball
in
British Liver Trust
7 months ago
Investigational MS Med Nearly Eliminates Disease Activity on MRI
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
BettysMom
in
My MSAA Community
4 months ago
sudden fast heart rate help
Dear all I need some advice please. had my ablation 18months ago and still in SR all good. However today I was climbing a steep ramp at a station and at the top set off fast heart rate. It was over 102 which I know some might say isn’t dire but I felt AWFUL sitting waiting for my train. Got out and
Dear all I need some advice please. had my ablation 18months ago and still in SR all good. However today I was climbing a steep ramp at a station and at the top set off fast heart rate. It was over 102 which I know some might say isn’t dire but I felt AWFUL sitting waiting for my train. Got out and
foxglove1
in
Atrial Fibrillation Support
2 months ago
BP numbers 3 month post Ablation
Hi all,Hope everyone is as well as they could be and wish you all a Sinus beat. So I'm 3 months more or less without Amioderone. Last 24 hrs I had to pop over A&E as I didn't like my BP numbers. My average jumped and had a couple of concerning results Device is trustworthy Omron I did some gardening
Hi all,Hope everyone is as well as they could be and wish you all a Sinus beat. So I'm 3 months more or less without Amioderone. Last 24 hrs I had to pop over A&E as I didn't like my BP numbers. My average jumped and had a couple of concerning results Device is trustworthy Omron I did some gardening
Quest4NSR
in
Atrial Fibrillation Support
2 months ago
When to take PIP flecainide?
Unfortunately my paroxysmal AF has significantly worsened lately and I am awaiting an ablation. In the meantime my consultant has put me back on flecainide 50mg bi daily plus an additional up to 100mg as PIP if AF kicks in. I’m now in AF almost every week for a few hours. Before it starts I frequently
Unfortunately my paroxysmal AF has significantly worsened lately and I am awaiting an ablation. In the meantime my consultant has put me back on flecainide 50mg bi daily plus an additional up to 100mg as PIP if AF kicks in. I’m now in AF almost every week for a few hours. Before it starts I frequently
Daisy2908
in
Atrial Fibrillation Support
2 months ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
yewotc23
in
Thyroid UK
4 months ago
still anxious about pancreatic cancer
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
Megaaalee
in
British Liver Trust
4 months ago
New study of a ketogenic diet in Parkinson's
https://www.tandfonline.com/doi/full/10.1080/17582024.2024.2352394 [u]
Abstract
[/u]
Aim
: Evidence suggests low-carbohydrate diets (LCHF) may assist in treating
neurodegenerative
diseases such as Parkinson's
disease
(PD); however, gaps exist in the literature.
https://www.tandfonline.com/doi/full/10.1080/17582024.2024.2352394 [u]
Abstract
[/u]
Aim
: Evidence suggests low-carbohydrate diets (LCHF) may assist in treating
neurodegenerative
diseases such as Parkinson's
disease
(PD); however, gaps exist in the literature.
mitochondria
in
Cure Parkinson's
3 months ago
My Wife had a recent AF episode
My Wife woke up early morning 1am when her heart went into AF (I knew the symptom as I have suffered in the past with this but unrelated to hers) After several hours later a trip to A&E was suggested by 111. NHS were totally brilliant and within two hour was given a cardioversion which put her back into
My Wife woke up early morning 1am when her heart went into AF (I knew the symptom as I have suffered in the past with this but unrelated to hers) After several hours later a trip to A&E was suggested by 111. NHS were totally brilliant and within two hour was given a cardioversion which put her back into
minchern
in
Atrial Fibrillation Support
2 months ago
Coq10/Ubiquinol- is it ok or not ok to take ?
Dad takes coq10 as he also takes low dose statin since many years. I read someone on this Board write this on an earlier post - “I was advised not to take CQ10 since it helps the cancer cell recycle glutathione(GHS). Excess GSH promotes tumor progression, where elevated levels correlate with increased
Dad takes coq10 as he also takes low dose statin since many years. I read someone on this Board write this on an earlier post - “I was advised not to take CQ10 since it helps the cancer cell recycle glutathione(GHS). Excess GSH promotes tumor progression, where elevated levels correlate with increased
Tinkudi
in
Advanced Prostate Cancer
2 months ago
self-inject intramuscular vitamin B12
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Tonyworks
in
Pernicious Anaemia Society
4 months ago
question/new info/latest
Helllo! Hoping everyone is doing ok and hanging in there. I had a positive echo stress test. My insurance denied the oncologists request so had an echo and the. A stress test. I failed it so they fought for the echo stress test. Now I need a catheterization because my heart isn’t pumping the way
Helllo! Hoping everyone is doing ok and hanging in there. I had a positive echo stress test. My insurance denied the oncologists request so had an echo and the. A stress test. I failed it so they fought for the echo stress test. Now I need a catheterization because my heart isn’t pumping the way
MPNJunebug
in
MPN Voice
2 months ago
B12 deficiency and night sweats query
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
rmros
in
Pernicious Anaemia Society
4 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
IVF - After a Miscarriage
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Heal-
in
LUPUS UK
4 months ago
Chemo progress
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
APK3
in
Advanced Prostate Cancer
7 months ago
autoimmune left or right bias?
Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial Cystitis and Lichen Sclerous. I have fungal nail disease on my left foot, gout in left toe, finger warts on my left hand, over growth of soft gum
Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial Cystitis and Lichen Sclerous. I have fungal nail disease on my left foot, gout in left toe, finger warts on my left hand, over growth of soft gum
Stills
in
PMRGCAuk
4 months ago
1
...
61
62
63
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5732 results
British Liver Trust
4582 results
Advanced Prostate Cancer
4547 results
View top 10 communities
Sort by
Most Relevant
Newest