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Auditory hallucinations
Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not always). I appreciate this is probably Parkinson’s related, and would like to hear from anyone else suffering a similar experience. She has been on
Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not always). I appreciate this is probably Parkinson’s related, and would like to hear from anyone else suffering a similar experience. She has been on
NJCOL
in
Cure Parkinson's
7 months ago
The Holidays can be hard!
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Jesmcd2
CommunityAmbassador
in
My MSAA Community
5 months ago
Medication and Memory
I was diagnosed with AFib in July and my daily medication is 12-5 Bisoprolol, as well as Digoxin, Rivaroxaban and Perindopril. I’ve always had a brilliant memory but have recently become concerned that I cannot retain information for very long at all. I also seem to get spurts of random, fleeting and
I was diagnosed with AFib in July and my daily medication is 12-5 Bisoprolol, as well as Digoxin, Rivaroxaban and Perindopril. I’ve always had a brilliant memory but have recently become concerned that I cannot retain information for very long at all. I also seem to get spurts of random, fleeting and
Jonhel
in
AF Association
4 months ago
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Feeling Sad and scared.
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
very
in
CLL Support
5 months ago
Too many vitamins ?
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
Raminagrobis
in
Advanced Prostate Cancer
8 months ago
Ablation question
Hi I’ had my 3rd CV last Thursday . It was reverted after 1st go, and everything was great first time in over 3 years in sinus ryrhmn, I was elated and loved checking my Kardia seeing HR in sinus rythmn! However today I’ve gone back to AF mode , whilst I’m pleased it lasted almost 6 days last two previous
Hi I’ had my 3rd CV last Thursday . It was reverted after 1st go, and everything was great first time in over 3 years in sinus ryrhmn, I was elated and loved checking my Kardia seeing HR in sinus rythmn! However today I’ve gone back to AF mode , whilst I’m pleased it lasted almost 6 days last two previous
Janelr
in
AF Association
4 months ago
Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
5 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
5 months ago
thyroid results need advice
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
elwins
in
Thyroid UK
5 months ago
NKF launches educational video series for lupus, lupus nephritis
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
PSA SCREEN VS SYMPTOMATIC
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
6357axbz
in
Advanced Prostate Cancer
8 months ago
Parkinson's medications and T3 interactions?
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
chrysalis56
in
Thyroid UK
8 months ago
Sticky blood! A thing or not?
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
jointpain
in
Arrhythmia Alliance
8 months ago
B1 Question ( nothing comes easy )
question at the bottom I have been reading everything I could get my hands on that was about vitamin B1 over the last couple years and I tried one B1 100 mg per day for one week about a year ago. It did not help and actually it seemed to make shaking worse. Finally I purchased Daphne Bryan's
question at the bottom I have been reading everything I could get my hands on that was about vitamin B1 over the last couple years and I tried one B1 100 mg per day for one week about a year ago. It did not help and actually it seemed to make shaking worse. Finally I purchased Daphne Bryan's
Gymsack
in
Cure Parkinson's
8 months ago
Best UK substitue for US Synthroid
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
SeedSensation
in
Thyroid UK
5 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
5 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
8 months ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
4 months ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
8 months ago
Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
4 months ago
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