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Support for men living with lupus
We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we will be inviting eight men living with lupus to join an online listening group to share and explore the physical and emotional impact of living
We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we will be inviting eight men living with lupus to join an online listening group to share and explore the physical and emotional impact of living
nakita_cambow
Moderator
in
LUPUS UK
19 days ago
?PMR onset Rheumatoid Arthritis
I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all
I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all
bronigel
in
PMRGCAuk
19 days ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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Anaemia anyone?
I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm
I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm
DogAgilityObsessed
in
PMRGCAuk
20 days ago
Fatique, Liothyronine, dosage and bloodtest results.
Hello, I hope all are well. Reposting as I've finally managed to secure my bloodtest results as a system issue between hospital pathology and patient access.. I'm still under the local Endocrine consultant, finding the right dose of liothyronine. My last amendment saw my dose decreased from 60 mcg
Hello, I hope all are well. Reposting as I've finally managed to secure my bloodtest results as a system issue between hospital pathology and patient access.. I'm still under the local Endocrine consultant, finding the right dose of liothyronine. My last amendment saw my dose decreased from 60 mcg
Hoopy83
in
Thyroid UK
20 days ago
Has anyone had these symptoms?
I’m on 200 Levothyroxine and just had a blood test. It’s out of range again. I’ve developed bad joint pains in pretty much all joints and it’s got progressively worse. In addition I’m getting cold hands and feet with pins and needles that also is causing pain. Felt very dizzy last week and ended up
I’m on 200 Levothyroxine and just had a blood test. It’s out of range again. I’ve developed bad joint pains in pretty much all joints and it’s got progressively worse. In addition I’m getting cold hands and feet with pins and needles that also is causing pain. Felt very dizzy last week and ended up
Pinkbutton
in
NRAS
21 days ago
Underactive thyroid
I've had an underactive thyroid for 20 years, lm on 100mg thyroxine but last years and this years test show lm abnormal readings of TSH level 0.35 - 5.5, should my dose be increased as my health this year feels dreadful hair falling out, extreme fatigue and other bloods this test have affected my liver
I've had an underactive thyroid for 20 years, lm on 100mg thyroxine but last years and this years test show lm abnormal readings of TSH level 0.35 - 5.5, should my dose be increased as my health this year feels dreadful hair falling out, extreme fatigue and other bloods this test have affected my liver
Linann
in
Thyroid UK
22 days ago
Watch Now - Successful Travel with MS
MSAA's newest webinar is now available to watch on our video page! Traveling with multiple sclerosis can present some unique challenges. Watch this discussion with Dr. Yolanda Wheeler for helpful tips to make your trip by boat, bus, plane, or even cruise ship enjoyable. Watch now by visiting MSAA's
MSAA's newest webinar is now available to watch on our video page! Traveling with multiple sclerosis can present some unique challenges. Watch this discussion with Dr. Yolanda Wheeler for helpful tips to make your trip by boat, bus, plane, or even cruise ship enjoyable. Watch now by visiting MSAA's
DanaMSAA
Partner
in
My MSAA Community
22 days ago
UCTD?
Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but didn't know what it was? And only talked about MCTD? Is UCTD still a recognised lupus connected diagnosis?
Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but didn't know what it was? And only talked about MCTD? Is UCTD still a recognised lupus connected diagnosis?
Narni21
in
LUPUS UK
22 days ago
Osteo or rheumatoid arthritis in fingers
At the same time as being diagnosed with rheumatoid arthritis, I started getting sharp pain and swelling in the joints closest to finger tips. I was told this is osteoarthritis (while it is also acknowledged that RA can affect any joint). The pain is getting worse and I expect that if I do contact my
At the same time as being diagnosed with rheumatoid arthritis, I started getting sharp pain and swelling in the joints closest to finger tips. I was told this is osteoarthritis (while it is also acknowledged that RA can affect any joint). The pain is getting worse and I expect that if I do contact my
Gottarelax
in
NRAS
23 days ago
confused about high b12 but now have PA
I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just
I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just
SunriseDaily
in
Pernicious Anaemia Society
23 days ago
What type of hypothyroidism do I have,?
My mother had a goitre and my sister born with no functioning thyroid. I realise I had thyroid problems from childhood but not treated until nearly 50 50 is this hashimotos or autoimmune considering familial connection?
My mother had a goitre and my sister born with no functioning thyroid. I realise I had thyroid problems from childhood but not treated until nearly 50 50 is this hashimotos or autoimmune considering familial connection?
Dodds
in
Thyroid UK
23 days ago
Blood Test Results advice please!
I have now had Blue Horizon Thyroid and Vitamin test results. Blood was taken 24 hrs after last Thyroxine and early in morning on Sept 3rd). I am on 75gms Thyroxine daily for Underactive Thyroid and am currently not taking any Vitamins or supplements. Vit D(25 OH)
I have now had Blue Horizon Thyroid and Vitamin test results. Blood was taken 24 hrs after last Thyroxine and early in morning on Sept 3rd). I am on 75gms Thyroxine daily for Underactive Thyroid and am currently not taking any Vitamins or supplements. Vit D(25 OH)
Rolbo
in
Thyroid UK
23 days ago
Advice for blood-test redo after loading doses
Hi you lovely lot! I posted in July regarding my symptoms and your kind words helped give me the motivation to continue pushing my doctor surgery before they finally agreed to give me B12 injections. They started on 6 loading doses which I've just finished and now I need to wait the dreaded 12 weeks
Hi you lovely lot! I posted in July regarding my symptoms and your kind words helped give me the motivation to continue pushing my doctor surgery before they finally agreed to give me B12 injections. They started on 6 loading doses which I've just finished and now I need to wait the dreaded 12 weeks
Battypatty2
in
Pernicious Anaemia Society
23 days ago
Lab results. Please help!!!
Hi all. I have a question to ask, because my gp wasn't very helpfull as we all experienced that. I just done my thyroid bloods with medichecks. Results are back and I would like to share tho with you ask for advice what to do. I am not feeling well myself. I have heat intolerance, sweeting a lot. I am
Hi all. I have a question to ask, because my gp wasn't very helpfull as we all experienced that. I just done my thyroid bloods with medichecks. Results are back and I would like to share tho with you ask for advice what to do. I am not feeling well myself. I have heat intolerance, sweeting a lot. I am
ErikaGJ
in
Thyroid UK
25 days ago
test result gluten
coeliac test came back fine , so can I still have gluten with hashimotos?
coeliac test came back fine , so can I still have gluten with hashimotos?
Prosecco1997
in
Thyroid UK
25 days ago
Will Anti TPO - Thyroid peroxidase antibodies show the same thing as Thyroglobulin antibodies ?
Years ago I had a full thyroid panel which included tsh , free t4 , free t3 and Thyroid Peroxidase Ab IU/mL . My result was : 0.84 IU/mL The Range: 0 - 5 IU/mL But my GP didn’t check thyroglobulin antibody levels surely if I had any autoimmune thyroid problems wouldn’t the Thyroid peroxidase pick
Years ago I had a full thyroid panel which included tsh , free t4 , free t3 and Thyroid Peroxidase Ab IU/mL . My result was : 0.84 IU/mL The Range: 0 - 5 IU/mL But my GP didn’t check thyroglobulin antibody levels surely if I had any autoimmune thyroid problems wouldn’t the Thyroid peroxidase pick
Watermelonsugarr
in
Thyroid UK
26 days ago
Bone metastasis good news: OsteoDex got to phase 3 at last
in phase 2 it behaved well, now starting phase 3 https://healthunlocked.com/advanced-prostate-cancer/posts/150487940/osteodex-for-mcrpc-bone-metastasis
in phase 2 it behaved well, now starting phase 3 https://healthunlocked.com/advanced-prostate-cancer/posts/150487940/osteodex-for-mcrpc-bone-metastasis
Maxone73
in
Advanced Prostate Cancer
6 months ago
blood test results for liver. Advice welcome please
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
Doraflora
in
British Liver Trust
6 months ago
Just a touch away: CT-optimal touch perception and its influence on pain and itch
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Esperanto
in
Cure Parkinson's
6 months ago
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