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Viral Meningitis
Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not
Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not
Walkingintheforest
in
Meningitis Now
1 year ago
Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
4 months ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
4 months ago
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Thanks for the replies to my previous post
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
dragonsinger
in
British Heart Foundation
4 months ago
Pelvic pain and sex
Hi , sorry sounds like a stupid question - Does sex hurt with reoccurring pelvic pain ? Can it trigger the pain to come back or an infection to start if someone has abscess in pelvic area such as fallopian tubes or near ovaries?
Hi , sorry sounds like a stupid question - Does sex hurt with reoccurring pelvic pain ? Can it trigger the pain to come back or an infection to start if someone has abscess in pelvic area such as fallopian tubes or near ovaries?
Hannah818
in
Pelvic Pain Support Network
4 months ago
Very worried about Mom
Hello everyone - wish you all a healthy path.My Mother was admitted to the hospital Monday morning and we found out she had urinary infection that went to her kidney and then blood. She had stopped taking venetoclax since Sunday. They are giving her antibiotics but her blood counts are out of whack.
Hello everyone - wish you all a healthy path.My Mother was admitted to the hospital Monday morning and we found out she had urinary infection that went to her kidney and then blood. She had stopped taking venetoclax since Sunday. They are giving her antibiotics but her blood counts are out of whack.
Hidden
in
CLL Support
3 months ago
Hep B immunity blood test positive
Hi all I was asked by my clinic to do a Hep B core blood test which I believe is same as immunity one and I asked my GP for the tests. It’s come back as not immune to hep b. Does that mean I won’t be entitled to a donor egg treatment? I’m freaking out 😟 Please share your thoughts and experience
Hi all I was asked by my clinic to do a Hep B core blood test which I believe is same as immunity one and I asked my GP for the tests. It’s come back as not immune to hep b. Does that mean I won’t be entitled to a donor egg treatment? I’m freaking out 😟 Please share your thoughts and experience
Milo2011
in
Fertility Network UK
4 months ago
Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
5 months ago
Shingles
Has anyone had shingles? I've been hit with it, I havent had any treatment for my CLL, it's been 11 years. I need to know what to do about the shingles pain. In the almost 3 week.
Has anyone had shingles? I've been hit with it, I havent had any treatment for my CLL, it's been 11 years. I need to know what to do about the shingles pain. In the almost 3 week.
sallylou
in
CLL Support
4 months ago
First Injection of Pegasys
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
dogsandhorses
in
MPN Voice
4 months ago
INVOLVEMENT OPPORTUNITY: Have you been diagnosed with hepatitis C and interested in sharing your story? (England)
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
BritishLiverTrust1
Partner
in
British Liver Trust
4 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
4 months ago
Travel Vaccinations
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
grumpygirl
in
NRAS
4 months ago
Live vaccine for dengue fever
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
Graham64
in
CLL Support
4 months ago
My husband still on sedation after 30 days going in for a peritonitis
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
CarlMc116
in
ICUsteps
4 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
5 months ago
Does asthma severity tend to reflect that of sinuses?
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
Unfocusedarrow
in
Asthma Community Forum
4 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
5 months ago
trauma after icu stay
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
ZoeH1974
in
ICUsteps
5 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
5 months ago
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