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Neomycin / Prednisolone
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My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
1 year ago
Painful feet, back, thighs
It is now 1 1/2 years since I was diagnosed with GCA. I started on 60mg prednisolone and have now reduced to 7mg/6mg with the help of Tocilizumab/Actemra injections for one year, now stopped, and methotrexate 10mg per week, which I am still on. I have had one relaps last summer but have been ok since
It is now 1 1/2 years since I was diagnosed with GCA. I started on 60mg prednisolone and have now reduced to 7mg/6mg with the help of Tocilizumab/Actemra injections for one year, now stopped, and methotrexate 10mg per week, which I am still on. I have had one relaps last summer but have been ok since
Antschi
in
PMRGCAuk
1 year ago
Tapering
Hello everyone, it's me again. Following on from my telepephone conversations wih 2 GPs at my practice last week and this week, and my own GP subsequently referring me to a rheumatologist because of concern about the level of prednisolone I am on after 4 years, I am seriously considering tapering despite
Hello everyone, it's me again. Following on from my telepephone conversations wih 2 GPs at my practice last week and this week, and my own GP subsequently referring me to a rheumatologist because of concern about the level of prednisolone I am on after 4 years, I am seriously considering tapering despite
caftan
in
PMRGCAuk
1 year ago
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My pred experience scares me.
I really need some help understanding what's going on in my body. In late April I had been at 25 mg for a while with mild PMR-like symptoms. Then, one day all my symptoms went away after I made a big positive life change. I then tapered down to 6 mg over a three month period without any problems.
I really need some help understanding what's going on in my body. In late April I had been at 25 mg for a while with mild PMR-like symptoms. Then, one day all my symptoms went away after I made a big positive life change. I then tapered down to 6 mg over a three month period without any problems.
sferios
in
PMRGCAuk
1 year ago
Abiraterone side effect
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
GrantB47
in
Advanced Prostate Cancer
1 year ago
Possible GCA?
Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left temporal artery is puffy and tender. No scalp tenderness. No fever, though I may have had a slight one last night. I woke up with a random sore throat
Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left temporal artery is puffy and tender. No scalp tenderness. No fever, though I may have had a slight one last night. I woke up with a random sore throat
Lenore58
in
PMRGCAuk
1 year ago
Real Nervous about Genomic Resuits, What type of Physician do I go to in NY who Specializes in Mutations w/ Advanced Prostate Cancer?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Shorehousejam
in
Fight Prostate Cancer
1 year ago
Does Prednisolone cause anxiety, panic and depression?
I’ve been diagnosed with lupus end of Jan 2023. Since then I have been on prednisone for 8 months, high dose 25 mg to start with now reduced considerably to 5mg. I also take a range of other medications like Hydroxychloroquine, Myfenax, Lansoproazole and Losartan potassium. I have been really struggling
I’ve been diagnosed with lupus end of Jan 2023. Since then I have been on prednisone for 8 months, high dose 25 mg to start with now reduced considerably to 5mg. I also take a range of other medications like Hydroxychloroquine, Myfenax, Lansoproazole and Losartan potassium. I have been really struggling
TomatoEater
in
LUPUS UK
1 year ago
Advice please! re inhalers, steroids, personality, voice... and breathing balance.
Any advice? I have been diagnosed with asthma. I also have past sinus polyps and take pantoprazole for stomach acid. I feel like I have inflammation from my ears to my insides. I get quite wheezy but mostly in throat and upper chest - sometimes sounds like I have a little bird cheeping in my throat
Any advice? I have been diagnosed with asthma. I also have past sinus polyps and take pantoprazole for stomach acid. I feel like I have inflammation from my ears to my insides. I get quite wheezy but mostly in throat and upper chest - sometimes sounds like I have a little bird cheeping in my throat
Leith24
in
Asthma Community Forum
1 year ago
Flare confirmed with PET scan
This is an update which I promised from my previous post and I have some questions at the end. About a month ago I reported that I had stopped Tocilizumab and I was waiting to see if the GCA had gone into remission. I had no GCA symptoms and no eye problems confirmed by the ophthalmologist. I felt better
This is an update which I promised from my previous post and I have some questions at the end. About a month ago I reported that I had stopped Tocilizumab and I was waiting to see if the GCA had gone into remission. I had no GCA symptoms and no eye problems confirmed by the ophthalmologist. I felt better
Frenchduck
in
PMRGCAuk
1 year ago
Bunion operation
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Nolsie
in
PMRGCAuk
1 year ago
URGENT - can I have elective surgery whilst RA is flaring ?
does anyone know what the recommended practice is regarding an RA flare and elective surgery? my RA is still flaring and I have yet to start a 3 week prednisolone course. is it considered safe to have elective surgery to my left wrist when I have active RA in my right elbow? I know if I take the
does anyone know what the recommended practice is regarding an RA flare and elective surgery? my RA is still flaring and I have yet to start a 3 week prednisolone course. is it considered safe to have elective surgery to my left wrist when I have active RA in my right elbow? I know if I take the
lindyloo2018
in
NRAS
1 year ago
I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
one step forward……..
just to complete the replacement of my right side joints I’m down for a reverse shoulder replacement in 6 months - strikes permitting! New shoulder will complement replaced knee and hip. But the irony for me was when she asked how many mgs of prednisone. I am currently on and I expected at least a tuttut
just to complete the replacement of my right side joints I’m down for a reverse shoulder replacement in 6 months - strikes permitting! New shoulder will complement replaced knee and hip. But the irony for me was when she asked how many mgs of prednisone. I am currently on and I expected at least a tuttut
AnniesRyder5
in
PMRGCAuk
1 year ago
Prednisone Tapering
I have been tapering using the DS method for 6 months. I am now tapering from 2mg to 1 1/2. In two days I will be @ 1 1/2 for seven days, then 1, back to 1 1/2 for 6 days and so on. While I am not in any muscle pain I am extremely fatigued. Does being extremely fatigued means I am having a flare
I have been tapering using the DS method for 6 months. I am now tapering from 2mg to 1 1/2. In two days I will be @ 1 1/2 for seven days, then 1, back to 1 1/2 for 6 days and so on. While I am not in any muscle pain I am extremely fatigued. Does being extremely fatigued means I am having a flare
RaisinBran
in
PMRGCAuk
1 year ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
1 year ago
Puppy sitting, infections, transplant impatience and the importance of taking photos
Another couple of months have flown by since my last post! Sadly no transplant calls in that time but I did have to go a short time off the list in order to kick a chest infection into touch. Over that now and back on the list which is great news. Doing my best to soldier on with the exercise but been
Another couple of months have flown by since my last post! Sadly no transplant calls in that time but I did have to go a short time off the list in order to kick a chest infection into touch. Over that now and back on the list which is great news. Doing my best to soldier on with the exercise but been
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Been at 1 mg prednisone for a week
Since going on meth and hydroxy, been able to steadily drop prednisone. Everything feels reasonably ok except for occasional morning stiffness which is odd as I dont feel stiff when I get up during the night like around 3 or 4 am. I still have awful and annoying middle fnger issues, the right one can
Since going on meth and hydroxy, been able to steadily drop prednisone. Everything feels reasonably ok except for occasional morning stiffness which is odd as I dont feel stiff when I get up during the night like around 3 or 4 am. I still have awful and annoying middle fnger issues, the right one can
sdowney717
in
PMRGCAuk
1 year ago
update on dissolving prednisolone
this is the make of prednisolone that I have discovered will dissolve in a little water. Maybe some other sufferers have been given these recently but don’t realise they dissolve. They are bitter though.
this is the make of prednisolone that I have discovered will dissolve in a little water. Maybe some other sufferers have been given these recently but don’t realise they dissolve. They are bitter though.
Nanatoo
in
PMRGCAuk
1 year ago
Immune system
Had PMR for 3.5 years and on 9.5mg Prednisolone. Had a few flares.I have noticed I have had a few infections and wondered what I could take to improve my immune system that has worked for others ?
Had PMR for 3.5 years and on 9.5mg Prednisolone. Had a few flares.I have noticed I have had a few infections and wondered what I could take to improve my immune system that has worked for others ?
choirsinger1986
in
PBC Foundation
1 year ago
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