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Long Haul advice and prednisone, please.
I’m flying to Australia for a month tomorrow and wondered if I’ve ticked all the necessary boxes . It’s about a 23 hour flight . We’ve spent the kid’s inheritance and gone business class . I’ve organised assisted wheelchair boarding . I’ve got my blue badge packed . I’m hoping they recognise it in
I’m flying to Australia for a month tomorrow and wondered if I’ve ticked all the necessary boxes . It’s about a 23 hour flight . We’ve spent the kid’s inheritance and gone business class . I’ve organised assisted wheelchair boarding . I’ve got my blue badge packed . I’m hoping they recognise it in
katiemills
in
PMRGCAuk
7 months ago
ALMOST OFF PREDNISOLONE
Just thought I’d share my story with all you lovely people out there. I was diagnosed with GCA in March 2019 and started the long journey of taking Prednisolone starting at 60mg. I have finally reduced down to half a mg daily after a few flares in between. My Rheumatologist said I could have reduced
Just thought I’d share my story with all you lovely people out there. I was diagnosed with GCA in March 2019 and started the long journey of taking Prednisolone starting at 60mg. I have finally reduced down to half a mg daily after a few flares in between. My Rheumatologist said I could have reduced
Bird-67
in
PMRGCAuk
10 months ago
Regular Check-ups - What should be tested?
Hello All I was diagnnksosed with PMR in June 2022. I have paid for a couple of private Rheumy appointments but am still waiting for my first NHS appointment (referred June 2023, appointment notified for end March 2024). I have a GP appointment (not my usual GP) on Tuesday and would like to know what
Hello All I was diagnnksosed with PMR in June 2022. I have paid for a couple of private Rheumy appointments but am still waiting for my first NHS appointment (referred June 2023, appointment notified for end March 2024). I have a GP appointment (not my usual GP) on Tuesday and would like to know what
FleetRose
in
PMRGCAuk
10 months ago
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New to Prednisolone-information please
Biology withdrawn after two primary cancer diagnosis in last two years. Review only considered if 5 years cancer free. Body racked from 3 cancer surgeries and RA out of control. Trialing Prednisolone as options severely limited. Methotrexate did not work alone ir in combination. Consultant advised
Biology withdrawn after two primary cancer diagnosis in last two years. Review only considered if 5 years cancer free. Body racked from 3 cancer surgeries and RA out of control. Trialing Prednisolone as options severely limited. Methotrexate did not work alone ir in combination. Consultant advised
SALI
in
NRAS
10 months ago
Reducing prednisolone with Methotrexate- what happens after?
I am on 7 mg pred for PMR and it just about controls my symptoms though I get quite stiff in my hips and neck. I reduced to 5 mg in early 2022 having met my condition first in June 2021. I think I reduced too quickly and have since had several flares. My rheumatologist wants me to start methotrexate
I am on 7 mg pred for PMR and it just about controls my symptoms though I get quite stiff in my hips and neck. I reduced to 5 mg in early 2022 having met my condition first in June 2021. I think I reduced too quickly and have since had several flares. My rheumatologist wants me to start methotrexate
Smithie49
in
PMRGCAuk
10 months ago
has my sisters Polymyalgia returned?
hi, I have GCA, following Polymyalgia, I am worried about my sister who has successfully tapered of prednisone, then after a few months has it returned? she is in complete pain all over can hardly walk, blood test were taken and the inflammatory level was not raised, so the doctor said it wasn’t Polymyalgia
hi, I have GCA, following Polymyalgia, I am worried about my sister who has successfully tapered of prednisone, then after a few months has it returned? she is in complete pain all over can hardly walk, blood test were taken and the inflammatory level was not raised, so the doctor said it wasn’t Polymyalgia
Grey7
in
PMRGCAuk
7 months ago
Metastatic prostate cancer in the lungs
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
S4survivor
in
Advanced Prostate Cancer
7 months ago
Prednisone Tapering-what's going on?
Some of you have followed my posts for a while. Last post I spoke about yoyoing up and down, but each time I have tried to increased my dose temporarily 5mg, it seems I'm stuck there and can't even taper back down 1mg to get back to where I was previously before the temporary increase. I am currently
Some of you have followed my posts for a while. Last post I spoke about yoyoing up and down, but each time I have tried to increased my dose temporarily 5mg, it seems I'm stuck there and can't even taper back down 1mg to get back to where I was previously before the temporary increase. I am currently
RaisinBran
in
PMRGCAuk
7 months ago
PMR... back on 20mg
Thanks everyone for replies and suggestions after my post last Monday. Saw my GP on Tuesday, we discussed the pain, stiffness and fatigue I was experiencing since tapering off prednisone late last year. She agreed I should start at 20mg day, after bloods for Crp and ESR. The results: Crp 3 and ESR
Thanks everyone for replies and suggestions after my post last Monday. Saw my GP on Tuesday, we discussed the pain, stiffness and fatigue I was experiencing since tapering off prednisone late last year. She agreed I should start at 20mg day, after bloods for Crp and ESR. The results: Crp 3 and ESR
Biba5
in
PMRGCAuk
7 months ago
Colonoscopy and Prednisolone
I am booked for a colonoscopy on 21 December at 2:40 pm. I have no other details and await a nurse to ring prior to the procedure. This news has not helped my anxiety, which has, of late increased to a high level for various reasons. I’ve read, and heard from friends, many horror stories about the medication
I am booked for a colonoscopy on 21 December at 2:40 pm. I have no other details and await a nurse to ring prior to the procedure. This news has not helped my anxiety, which has, of late increased to a high level for various reasons. I’ve read, and heard from friends, many horror stories about the medication
Lclmlbls
in
PMRGCAuk
10 months ago
Azathioprine dose
First a little background: I have been on 200mg of Azathioprine, for a number of years. All that time my weight has been stable (too much but stable) at 17stone 3lb (110kg) but having been diagnosed with Type 2 Diabetes (since the pandemic) I have lost 2 stone (13kg) Azathioprine is dosed at between
First a little background: I have been on 200mg of Azathioprine, for a number of years. All that time my weight has been stable (too much but stable) at 17stone 3lb (110kg) but having been diagnosed with Type 2 Diabetes (since the pandemic) I have lost 2 stone (13kg) Azathioprine is dosed at between
WendyWoo50
in
Hughes Syndrome APS Forum
7 months ago
Starting Abiraterone with CRPC
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Water327
in
Advanced Prostate Cancer
7 months ago
Losing my hair
Hi Anyone losing their hair on prednisolone??
Hi Anyone losing their hair on prednisolone??
bookbear68
in
PMRGCAuk
10 months ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
10 months ago
was it the wrong time to take myself off ibandronic acid?
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
allofaquandry
in
PMRGCAuk
10 months ago
Polymyalgia
My husband has had polymylgia for about 6 years and started on 15mg prednisone and has only ever got down to 8mg but then can't cope so is now on 13mg . Consultant wants him to get down to 5mg .He would have no quality of life and would be in pain too much . He has tried other drugs but they didn't work
My husband has had polymylgia for about 6 years and started on 15mg prednisone and has only ever got down to 8mg but then can't cope so is now on 13mg . Consultant wants him to get down to 5mg .He would have no quality of life and would be in pain too much . He has tried other drugs but they didn't work
Caravanlover
in
PMRGCAuk
7 months ago
Highly elevated ESR and CRP but no symptoms of a flare
Hi All, I have gotten so much help from this forum - it is so incredibly valuable. I welcome your feedback on the issue I am currently experiencing. I've had PMR since 2018. I'm currently on 5mg prednisolone and 20mg of leflunomide (for almost 3 years). I have no other health issues. I work full
Hi All, I have gotten so much help from this forum - it is so incredibly valuable. I welcome your feedback on the issue I am currently experiencing. I've had PMR since 2018. I'm currently on 5mg prednisolone and 20mg of leflunomide (for almost 3 years). I have no other health issues. I work full
Travisdecember
in
PMRGCAuk
10 months ago
Concerning Micro clots?
Hello friends, I have had some recent events I wanted to run by you all to get your thoughts. I had 3 mini strokes before I was diagnosed with APS some 20 plus years ago. Prior to the mini strokes I had lots of little sharp events mostly in my left temple but sometimes in my right temple. They were
Hello friends, I have had some recent events I wanted to run by you all to get your thoughts. I had 3 mini strokes before I was diagnosed with APS some 20 plus years ago. Prior to the mini strokes I had lots of little sharp events mostly in my left temple but sometimes in my right temple. They were
prj789
in
Hughes Syndrome APS Forum
8 months ago
PMR type pain with normal blood labs
Hi. I just found this site and hoping to get some insight. The posts and advise I've read so far are outstanding and I wish I had found this site earlier. I have had PMR since December 2020. I've tapered down to 2 mg 2-3 times now. When I get below 4mg, the pain in my arms returns. I have assumed
Hi. I just found this site and hoping to get some insight. The posts and advise I've read so far are outstanding and I wish I had found this site earlier. I have had PMR since December 2020. I've tapered down to 2 mg 2-3 times now. When I get below 4mg, the pain in my arms returns. I have assumed
Italybound62
in
PMRGCAuk
8 months ago
Raised calcium levels on prednisolone for pmr and long term lithium
my calcium levels are raised and have been for some time. At the last blood test they were 0.61. They have been 0.64. I’m not sure when the alarm bells will ring for the medical profession. A GP at our practice would not refer me to an NHS endocrinologist. I have been to see one privately. I have done
my calcium levels are raised and have been for some time. At the last blood test they were 0.61. They have been 0.64. I’m not sure when the alarm bells will ring for the medical profession. A GP at our practice would not refer me to an NHS endocrinologist. I have been to see one privately. I have done
Elizabethjane7861
in
PMRGCAuk
10 months ago
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