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Neomycin / Prednisolone
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PMR pain or Adrenal issue
Hello, I have not had PMR pain in over a year. I do have GCA too. I just reduced my prednisone by a half mg a few days ago. My hips and knees are bothering me today. Could this be due my reduction of prednisone and my Adrenals stating to work? Should I go with it for a few days to see if it gets better
Hello, I have not had PMR pain in over a year. I do have GCA too. I just reduced my prednisone by a half mg a few days ago. My hips and knees are bothering me today. Could this be due my reduction of prednisone and my Adrenals stating to work? Should I go with it for a few days to see if it gets better
Plains
in
PMRGCAuk
3 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
3 months ago
Melanoma Surgery while taking Actemra and Prednisone
Hello, I have GCA/PMR and currently on 2.5mg prednisone and Actemra every other week. I just found out I have to have a melanoma surgery, and a surgery called “lymph node biopsy” where they remove some lymph nodes to determine if cancer has spread. My question is: should I increase/decrease prednisone
Hello, I have GCA/PMR and currently on 2.5mg prednisone and Actemra every other week. I just found out I have to have a melanoma surgery, and a surgery called “lymph node biopsy” where they remove some lymph nodes to determine if cancer has spread. My question is: should I increase/decrease prednisone
Pamk1949
in
PMRGCAuk
3 months ago
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weight and breakfast
Hi me againI was wondering wat ya guys ate with your prednisone due to work hours I often don't eat till 10/11 am and am struggling to take the pills due to taste be ok if they were chocolate flavoured.. also any tips on diet food I'm over weight and have bèn told to watch this due to meds .. Thank
Hi me againI was wondering wat ya guys ate with your prednisone due to work hours I often don't eat till 10/11 am and am struggling to take the pills due to taste be ok if they were chocolate flavoured.. also any tips on diet food I'm over weight and have bèn told to watch this due to meds .. Thank
Alliekat65
in
PMRGCAuk
3 months ago
Statins and Prednisone
I’ve gone from 20mg Prednisone to now working on 7-1/2mg so far no problems But now my GP recommends Statins for my high Cholesterol …Is this good idea? I've read different reports and would welcome any advice the Statins scare me……my bloodwork is now good only high cholesterol … I really
I’ve gone from 20mg Prednisone to now working on 7-1/2mg so far no problems But now my GP recommends Statins for my high Cholesterol …Is this good idea? I've read different reports and would welcome any advice the Statins scare me……my bloodwork is now good only high cholesterol … I really
Januzzi
in
PMRGCAuk
3 months ago
Mr Basil Charles
I was diagnosed with mestatic prostate cancer, PSA 29.1Spread to lymph node & bones in rib and spine My treatment plan 4 Abiraterone tablets 250gm & 1 Prednisone daily With a hormonal injection and bone strengthening drip quarterly After 2 years PSA dropped to 0.06 now it's 10.2 Lutetium 177 was
I was diagnosed with mestatic prostate cancer, PSA 29.1Spread to lymph node & bones in rib and spine My treatment plan 4 Abiraterone tablets 250gm & 1 Prednisone daily With a hormonal injection and bone strengthening drip quarterly After 2 years PSA dropped to 0.06 now it's 10.2 Lutetium 177 was
154Eleventh
in
Advanced Prostate Cancer
3 months ago
Relugolix/Orgovyx or Enzalutamide/Xtandi?
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
FaithOverFear104
in
Advanced Prostate Cancer
3 months ago
Giant Cell Arteritis
I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my vision. Right eye still 20/20 thank god! Started with 60 mg Prednisone and slowly decreased after 2 months added Actemra injections once a week. Now done with Prednisone and on Actemra only. I’m doing
I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my vision. Right eye still 20/20 thank god! Started with 60 mg Prednisone and slowly decreased after 2 months added Actemra injections once a week. Now done with Prednisone and on Actemra only. I’m doing
LRevell
in
PMRGCAuk
3 months ago
Pet Scan = "disease not detected"
Ok folks, has anyone come across something like this?...early 2018, PSA in the 50's, biopsy came back negative, a few months later PSA in the 60's, again, another biopsy and a negative finding, 3rd time in the 80's with yet another negative biopsy, then nuclear imaging and bam...stage 4 metastatic, this
Ok folks, has anyone come across something like this?...early 2018, PSA in the 50's, biopsy came back negative, a few months later PSA in the 60's, again, another biopsy and a negative finding, 3rd time in the 80's with yet another negative biopsy, then nuclear imaging and bam...stage 4 metastatic, this
GreyDragon55
in
Advanced Prostate Cancer
3 months ago
Flare Strategy?
After having a flare 4 months ago and going from 4.5 mg to 10 for a week, then dropping back to 5.5 for 5 weeks, I have now tapered down to 5mg, where I have been for 10 weeks. My doctor seems fine with my staying at 5 for awhile longer. Three days ago and coinciding with much colder weather, I experienced
After having a flare 4 months ago and going from 4.5 mg to 10 for a week, then dropping back to 5.5 for 5 weeks, I have now tapered down to 5mg, where I have been for 10 weeks. My doctor seems fine with my staying at 5 for awhile longer. Three days ago and coinciding with much colder weather, I experienced
Donna5658
in
PMRGCAuk
3 months ago
New diagnosis
Hi I got my diagnosis today and feel crappyheadaches and the n loss vision in bottom half left eye. 1st told it was NAION but then had 2nd scan and Biopsy 2 weeks ago.results today....prednisone calcium D omeprazole and one pill for blood pressure..GCA.... Tomorrow I have occie health talking to me about
Hi I got my diagnosis today and feel crappyheadaches and the n loss vision in bottom half left eye. 1st told it was NAION but then had 2nd scan and Biopsy 2 weeks ago.results today....prednisone calcium D omeprazole and one pill for blood pressure..GCA.... Tomorrow I have occie health talking to me about
Alliekat65
in
PMRGCAuk
3 months ago
why am I so tired
I was diagnosed with GCA in November. I have been reducing Prednisone every 2 weeks. I started on 40mg and I am now on 12.5mg. I have steroid induced diabetis and my readings have been very erratic. They seem to be settling down a bit. I am taking 160mg and 80mg of Gliclazide, I have also been prescribed
I was diagnosed with GCA in November. I have been reducing Prednisone every 2 weeks. I started on 40mg and I am now on 12.5mg. I have steroid induced diabetis and my readings have been very erratic. They seem to be settling down a bit. I am taking 160mg and 80mg of Gliclazide, I have also been prescribed
Ambatu
in
PMRGCAuk
3 months ago
In so much pain and feeling poorly
Hi folks, Last Friday while squeazing the edge of the mattress into the corner of a fitted sheet I had an excruciating shooting pain across the middle of my back. After that I could barely do anything without serious pain. Ever since, I've been falling asleep all day, had nausea, bloating & painful
Hi folks, Last Friday while squeazing the edge of the mattress into the corner of a fitted sheet I had an excruciating shooting pain across the middle of my back. After that I could barely do anything without serious pain. Ever since, I've been falling asleep all day, had nausea, bloating & painful
strawclutching
in
PMRGCAuk
7 months ago
Actemra and Extremely Fast Taper off of Prednisone
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
newsusy
in
PMRGCAuk
3 months ago
Baseline PSMA-Pet scan?
My MO has given me instructions to end treatment 7/31. I've been on Lupron & Zytiga/5mg prednisone since 8/1/2022. I started out with Gleason (3+4) 7. Last May I had pelvic radiation to hit lymph nodes as per a 2021 PSMA-Pet scan. Now it's time to stop all treatment at the 2 year mark. My MO just kind
My MO has given me instructions to end treatment 7/31. I've been on Lupron & Zytiga/5mg prednisone since 8/1/2022. I started out with Gleason (3+4) 7. Last May I had pelvic radiation to hit lymph nodes as per a 2021 PSMA-Pet scan. Now it's time to stop all treatment at the 2 year mark. My MO just kind
duxlubber
in
Advanced Prostate Cancer
3 months ago
flare concern
I am continuing to deal with my latest flare. You good folks gave me some advice a week or two ago. When trying to reduce from 2.5 mg of prednisone to 2 it created more stiffness. However for the month of January at 2.5 mg I was probably all along more sore than I should have been. Two weeks ago I
I am continuing to deal with my latest flare. You good folks gave me some advice a week or two ago. When trying to reduce from 2.5 mg of prednisone to 2 it created more stiffness. However for the month of January at 2.5 mg I was probably all along more sore than I should have been. Two weeks ago I
Skier321
in
PMRGCAuk
3 months ago
Adrenal insufficiency and dosage
I searched this site but didn't find this article. For me the top takeaway was "[i]Mean prednisolone dose the last 3 months and basal P-cortisol were the best and simplest predictors of adrenal function."[/i] This conclusion seems to support the DSNS protocol(which I am using with success so far--thank
I searched this site but didn't find this article. For me the top takeaway was "[i]Mean prednisolone dose the last 3 months and basal P-cortisol were the best and simplest predictors of adrenal function."[/i] This conclusion seems to support the DSNS protocol(which I am using with success so far--thank
papadapadoo
in
PMRGCAuk
7 months ago
Familiar pains
I am having back pain ,hip pains and arms.This feels like when I first got diagnosed.I know stress has caused this but not sure how much I should increase my Prednisone?I was on 7 mg.but just for a week.I can hardly walk and I care for my husband.So frustrated with this disease.
I am having back pain ,hip pains and arms.This feels like when I first got diagnosed.I know stress has caused this but not sure how much I should increase my Prednisone?I was on 7 mg.but just for a week.I can hardly walk and I care for my husband.So frustrated with this disease.
Hunter134
in
PMRGCAuk
3 months ago
possible flare or low cortisol
Hi, reduced my prednisolone about 2 weeks ago to 4.5mg from 5mg and have been okay until today. A couple of twinges here and there but manageable. Today I’m feeling awful, headache, pain in back, legs, feet and shoulders/neck. Absolutely exhausted and feeling tearful. Could this be a flare do you think
Hi, reduced my prednisolone about 2 weeks ago to 4.5mg from 5mg and have been okay until today. A couple of twinges here and there but manageable. Today I’m feeling awful, headache, pain in back, legs, feet and shoulders/neck. Absolutely exhausted and feeling tearful. Could this be a flare do you think
Abcd123455
in
PMRGCAuk
7 months ago
Is it tapering or adrenals?
I'm in hols at the moment, so probably have doing a bit too much! However, today I have shortness of breath doing the slightest thing, even sitting down, and feeling faint and wobbly. I'm a bit better now I've rested all day.Do you think I just need to up my steroids for a couple of days(I've been
I'm in hols at the moment, so probably have doing a bit too much! However, today I have shortness of breath doing the slightest thing, even sitting down, and feeling faint and wobbly. I'm a bit better now I've rested all day.Do you think I just need to up my steroids for a couple of days(I've been
CoziNess
in
PMRGCAuk
7 months ago
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