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Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
4 months ago
Benfotiamine B1 5 Day Trial
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
UK based PN pain management Dr’s
Think I have narrowed it down to making a private appointment with either Dr.Baronowski or Dr.Kellow, has anyone had recent experiences with either of these Dr’s & if so would you recommend. I know from electromyography test recently performed that I have moderately inactive neuropathic findings supporting
Think I have narrowed it down to making a private appointment with either Dr.Baronowski or Dr.Kellow, has anyone had recent experiences with either of these Dr’s & if so would you recommend. I know from electromyography test recently performed that I have moderately inactive neuropathic findings supporting
Chocolategrigio
in
Pelvic Pain Support Network
4 months ago
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Littlejoy
I had pelvic prolapse, cystocele and rectocele. Had pelvic prolapse repair 1 year ago, they took out uterus and tightened vagina to hold bladder & bowel. When I came too after op, they said I had a cyst one my left ovary so would need another op yo remove this. I have been in pain since op, it depends
I had pelvic prolapse, cystocele and rectocele. Had pelvic prolapse repair 1 year ago, they took out uterus and tightened vagina to hold bladder & bowel. When I came too after op, they said I had a cyst one my left ovary so would need another op yo remove this. I have been in pain since op, it depends
Operation
in
Pelvic Pain Support Network
4 months ago
Just a touch away: CT-optimal touch perception and its influence on pain and itch
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Esperanto
in
Cure Parkinson's
4 months ago
Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
4 months ago
Help in understanding drugs in Parkinsons
I've recently been diagnosed with Parkinsons and have been prescribed LevaDopa -1/2 tablet (125mg) 4 times per day. I understand that there are complimentary drugs such MAO-B Inhibitors (such as Selegiline, Rasagiline, and Safinamide) I've done some cursory reseach which indicates that MAO-B inhibitors
I've recently been diagnosed with Parkinsons and have been prescribed LevaDopa -1/2 tablet (125mg) 4 times per day. I understand that there are complimentary drugs such MAO-B Inhibitors (such as Selegiline, Rasagiline, and Safinamide) I've done some cursory reseach which indicates that MAO-B inhibitors
Mezmerric
in
Cure Parkinson's
5 months ago
My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
5 months ago
not PCa related but promising in vivo therapy for cancer metastasis
”The polymer eliminates colorectal cancer liver metastases and prolongs mice survival, after only a single-dose therapy. The findings were published in Nano Today, a leading journal in the field of nanotechnology.” https://m.jpost.com/health-and-wellness/article-795801
”The polymer eliminates colorectal cancer liver metastases and prolongs mice survival, after only a single-dose therapy. The findings were published in Nano Today, a leading journal in the field of nanotechnology.” https://m.jpost.com/health-and-wellness/article-795801
Maxone73
in
Advanced Prostate Cancer
5 months ago
pigment dispersion syndrome
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
MEGS53
in
LUPUS UK
5 months ago
question about macuna
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
limcheeese22
in
Cure Parkinson's
5 months ago
Do I need to increase folic acid/folate intake with B12 shots?
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
JazzSoprano
in
Pernicious Anaemia Society
5 months ago
Scelerosing Mesenteritis and Walking sticks
hi folks it’s been a long while since I’ve last posted- I have been in and out of hospital 3 times in last 3 months with the most excruciating pain in my tummy , it’s taken a while but I have been told I have an extremely rare condition called sclerosing mesenteritis , there have been meetings about
hi folks it’s been a long while since I’ve last posted- I have been in and out of hospital 3 times in last 3 months with the most excruciating pain in my tummy , it’s taken a while but I have been told I have an extremely rare condition called sclerosing mesenteritis , there have been meetings about
svfarmer
in
LUPUS UK
5 months ago
Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
5 months ago
What creams are good for skin thickening? What do you use?
Hi All, I am noticing the scalyness on my hands is going worse and it is going down to my wrist now which is causing the tightening and stiffness around there. Are you using any creams? My rheumatoid doctor hasn't prescribed me nothing yet but suggested iloprast treatment... does that help the skin too
Hi All, I am noticing the scalyness on my hands is going worse and it is going down to my wrist now which is causing the tightening and stiffness around there. Are you using any creams? My rheumatoid doctor hasn't prescribed me nothing yet but suggested iloprast treatment... does that help the skin too
KI2024
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Chronic Pain (Muscle and Joint Pain)
Recent [u]
Harvard Health Letter
[/u], Volume 49, Number 6, April 2024 (Harvard Medical School) This newsletter mentions a site: (https://painconnection.org/) which is a non-profit chronic pain association. There is a page that lists [u]
Complementary Therapies
[/u] that may be of interest
Recent [u]
Harvard Health Letter
[/u], Volume 49, Number 6, April 2024 (Harvard Medical School) This newsletter mentions a site: (https://painconnection.org/) which is a non-profit chronic pain association. There is a page that lists [u]
Complementary Therapies
[/u] that may be of interest
Katie-LMHC-Artist
in
CLL Support
5 months ago
Taking Creatine while on Zytiga medicine
Hi! My Father have prostate cancer and takes the medicine Zytiga. I take Creatine Monohydrate to combat my Rheumatoid Arthritis since it is very anti-inflammatory. I've read online that many take creatine to help fight cancer since it boosts and helps the immune system. My Dad asked his nurse if he
Hi! My Father have prostate cancer and takes the medicine Zytiga. I take Creatine Monohydrate to combat my Rheumatoid Arthritis since it is very anti-inflammatory. I've read online that many take creatine to help fight cancer since it boosts and helps the immune system. My Dad asked his nurse if he
Warped
in
Advanced Prostate Cancer
5 months ago
Any successful treatment with red light therapy for peripheral neuropathy?
Hello, I am wondering whether or not it’s worth pursuing some sort of photobiomodulation (red light) therapy as a way of addressing idiopathic peripheral neuropathy which, in my case, means numb feet with burning soles at night. Has anybody had any success with these types of intervention, either through
Hello, I am wondering whether or not it’s worth pursuing some sort of photobiomodulation (red light) therapy as a way of addressing idiopathic peripheral neuropathy which, in my case, means numb feet with burning soles at night. Has anybody had any success with these types of intervention, either through
1jay
in
Neuropathy Support
5 months ago
promising delivery technique for cancer drugs
we will attack you in any possible way from every direction you bastard (ok, I talk to my cancer, don’t call me crazy…I would be crazy if I heard him reply!) https://pubs.acs.org/doi/10.1021/acsbiomaterials.3c01540# from your one reference in the paper: Chondroitin sulfate-hybridized zein nanoparticles
we will attack you in any possible way from every direction you bastard (ok, I talk to my cancer, don’t call me crazy…I would be crazy if I heard him reply!) https://pubs.acs.org/doi/10.1021/acsbiomaterials.3c01540# from your one reference in the paper: Chondroitin sulfate-hybridized zein nanoparticles
Maxone73
in
Advanced Prostate Cancer
5 months ago
Almost Half Way There
I am almost at my halfway point in getting off of Ropinarole. I finally found an online doctor willing to let me start adding low doses of Gabapentin as I do this. My GP wouldn’t give me anything to help so had to seek help outside of my insurance coverage which makes me so angry. Anyway, my question
I am almost at my halfway point in getting off of Ropinarole. I finally found an online doctor willing to let me start adding low doses of Gabapentin as I do this. My GP wouldn’t give me anything to help so had to seek help outside of my insurance coverage which makes me so angry. Anyway, my question
DogsCatsFamily
in
Restless Legs Syndrome
5 months ago
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