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Upping My Niacin to 1000 mg
Treat mitochondrial
myopathy
. Boost Mitochondrial Biogenesis. Restore the BBB integrity. This is pretty cool. I had not seen anything capable of maybe fixing the blood brain barrier. These all look like good things to me.
Treat mitochondrial
myopathy
. Boost Mitochondrial Biogenesis. Restore the BBB integrity. This is pretty cool. I had not seen anything capable of maybe fixing the blood brain barrier. These all look like good things to me.
Bolt_Upright
in
Cure Parkinson's
2 years ago
Weak wobbly legs update number 2
Steroid induced
myopathy
- as I’ve been on steroids since 2013. I’m going to read up but has anyone here suffered with this or has any links for me to read. GP said she was going to refer me back to rheumatology and also start a slow reduction of pred.
Steroid induced
myopathy
- as I’ve been on steroids since 2013. I’m going to read up but has anyone here suffered with this or has any links for me to read. GP said she was going to refer me back to rheumatology and also start a slow reduction of pred.
Janet57
in
PMRGCAuk
2 years ago
Strange flare ups?
After seeing neurologists at a large research hospital for 10 years, DNA tests, muscle biopsies, I was finally diagnosed with a vacuolar
myopathy
similar to Miyoshi
myopathy
. Most of the time I'm just tired, no energy. But now I'm having episodes of extreme itching on both arms--no rash.
After seeing neurologists at a large research hospital for 10 years, DNA tests, muscle biopsies, I was finally diagnosed with a vacuolar
myopathy
similar to Miyoshi
myopathy
. Most of the time I'm just tired, no energy. But now I'm having episodes of extreme itching on both arms--no rash.
ScooterJoe
in
Foggy's "Invisible Illness" Support
2 years ago
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When a 5mg increase doesn't get on top of a relapse
Must say I am so upset - I have had PMR for 6 years in October and this has given me steroid
myopathy
which I have had for the last 2.5 years which has impacted on my mobility :-( Thanks
Must say I am so upset - I have had PMR for 6 years in October and this has given me steroid
myopathy
which I have had for the last 2.5 years which has impacted on my mobility :-( Thanks
EscapedtoWales
in
PMRGCAuk
2 years ago
Update on Rheumatology appointment
Has anyone else had problems with Steroid
Myopathy
and then shown improvement when reducing steroids and exercising?
Has anyone else had problems with Steroid
Myopathy
and then shown improvement when reducing steroids and exercising?
Katkin1
in
PMRGCAuk
2 years ago
Taking statins does not commonly cause muscle pain, researchers say
From which I take these two quotes: [i]It is known that statins can, rarely, cause substantial muscle damage (ie,
myopathy
[approximately one extra case per 10 000 person-years]; or, in a more severe form, rhabdomyolysis [approximately 2–3 cases per 100 000 person-years]) as indicated by muscle symptoms
From which I take these two quotes: [i]It is known that statins can, rarely, cause substantial muscle damage (ie,
myopathy
[approximately one extra case per 10 000 person-years]; or, in a more severe form, rhabdomyolysis [approximately 2–3 cases per 100 000 person-years]) as indicated by muscle symptoms
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Claudication in the legs
Two weeks ago before this happened Rheumy tested for muscle
myopathy
which I don’t have and suggested more exercise inspite of the increase in pain if I did.
Two weeks ago before this happened Rheumy tested for muscle
myopathy
which I don’t have and suggested more exercise inspite of the increase in pain if I did.
Ridge
in
PMRGCAuk
2 years ago
Advice
Has anyone any experience or advise about Steroid
Myopathy
?
Has anyone any experience or advise about Steroid
Myopathy
?
Paininthenck
in
PMRGCAuk
2 years ago
Statins
Rare side effects of statins include: muscle weakness (
myopathy
), loss of sensation or tingling in the nerve endings of the hands and feet (peripheral neuropathy), tendon problems. I first heard about statins and some of the problems with them around 10 years ago from a work colleague.
Rare side effects of statins include: muscle weakness (
myopathy
), loss of sensation or tingling in the nerve endings of the hands and feet (peripheral neuropathy), tendon problems. I first heard about statins and some of the problems with them around 10 years ago from a work colleague.
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
Hi
During this time I’ve been diagnosed with
myopathy
and osteoporosis from my steroid therapy. Anyone else in this situation how does it affect life for you?
During this time I’ve been diagnosed with
myopathy
and osteoporosis from my steroid therapy. Anyone else in this situation how does it affect life for you?
Carasmiffy
in
NRAS
2 years ago
Immunometabolic signatures predict recovery from thyrotoxic myopathy in patients with Graves' disease
The aim of this study was to identify specific plasma metabolites and T-cell subsets that predict thyrotoxic
myopathy
recovery in patients with Graves' disease.
The aim of this study was to identify specific plasma metabolites and T-cell subsets that predict thyrotoxic
myopathy
recovery in patients with Graves' disease.
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Hypertrophic cardiomyopathy and ablation
Hey guys was just wondering if there’s anyone who is diagnosed with atrial fibrillation and hypertrophic cardio
myopathy
and they have done an ablation. I would like to know how successful was it , and how do they feel after the ablation.
Hey guys was just wondering if there’s anyone who is diagnosed with atrial fibrillation and hypertrophic cardio
myopathy
and they have done an ablation. I would like to know how successful was it , and how do they feel after the ablation.
Zeinmassri
in
AF Association
3 years ago
Left to die
I have had repeated colds then flu heart is weak ans scraping sensation I can't get up now even to sit up body weakness bad fighting to stay alive heart went to 162 tonight refused a ambulance scared and alone I also have a mitochondrial
myopathy
I have had repeated colds then flu heart is weak ans scraping sensation I can't get up now even to sit up body weakness bad fighting to stay alive heart went to 162 tonight refused a ambulance scared and alone I also have a mitochondrial
myopathy
Kg180
in
British Heart Foundation
3 years ago
Niacin Cures Systemic NAD+ Deficiency and Improves Muscle Performance in Adult-Onset Mitochondrial Myopathy 2021
NAD+ is disrupted in PD patients "Progresses in both basic research and clinical trials of NAD+ in Parkinson's disease" 2021 https://pubmed.ncbi.nlm.nih.gov/33989633/ This study shows NAD+ normalized in these adult onset mitochondrial
myopathy
patients using Niacin.
NAD+ is disrupted in PD patients "Progresses in both basic research and clinical trials of NAD+ in Parkinson's disease" 2021 https://pubmed.ncbi.nlm.nih.gov/33989633/ This study shows NAD+ normalized in these adult onset mitochondrial
myopathy
patients using Niacin.
Bolt_Upright
in
Cure Parkinson's
3 years ago
PMR diagnosis , Pred, and slightly high CK maybe statin induced pain.
Took that only the once, it was enough to rebound into agony, so I'm left wondering about the statin situation and PMR or is it the start of
Myopathy
caused by statins as many people complain of just that, But I have to say the pain is excruciating before the pred.
Took that only the once, it was enough to rebound into agony, so I'm left wondering about the statin situation and PMR or is it the start of
Myopathy
caused by statins as many people complain of just that, But I have to say the pain is excruciating before the pred.
Misseyj55
in
PMRGCAuk
3 years ago
What's going on in my head?
I've been diagnosed with AAD along with narcolepsy, major depression and a vacuolar
myopathy
. In a recent discussion with a friend I mentioned that I always have something like a private movie running in my mind that never stops.
I've been diagnosed with AAD along with narcolepsy, major depression and a vacuolar
myopathy
. In a recent discussion with a friend I mentioned that I always have something like a private movie running in my mind that never stops.
ScooterJoe
in
CHADD's Adult ADHD Support
3 years ago
Necosising myositis
I have muscle aches and pins and needles at night but have had an EMG and NCS and been told I have no
myopathy
showing at present. I have had a mri and ct but not had the results yet. As I have no
myopathy
present at the moment , does anyone know what that could mean for me.
I have muscle aches and pins and needles at night but have had an EMG and NCS and been told I have no
myopathy
showing at present. I have had a mri and ct but not had the results yet. As I have no
myopathy
present at the moment , does anyone know what that could mean for me.
Eddie1969
in
Myositis UK
3 years ago
Suspected fibrous myopathy in legs after frequent B12 thigh injections
Has anyone had stiff legs/
myopathy
after frequent, daily injections into their thighs? Ive tried to rule everything else out but it seems like both thighs are stiff and calves are weak. Theres also muscle atrophy. Is this common?
Has anyone had stiff legs/
myopathy
after frequent, daily injections into their thighs? Ive tried to rule everything else out but it seems like both thighs are stiff and calves are weak. Theres also muscle atrophy. Is this common?
PointOfReference
in
Pernicious Anaemia Society
3 years ago
Not PMR
I've now tested positive for Myositis (a collective term for rare muscle diseases) antibodies, specifically Immune-Mediated Necrotising
Myopathy
which is extremely rare. I'm now being referred to a UCL professor so am finally, nearly 21 months from onset, beginning to get some answers.
I've now tested positive for Myositis (a collective term for rare muscle diseases) antibodies, specifically Immune-Mediated Necrotising
Myopathy
which is extremely rare. I'm now being referred to a UCL professor so am finally, nearly 21 months from onset, beginning to get some answers.
FerrySlipper
in
PMRGCAuk
3 years ago
How do I reduce my cpk levels?
I have been diagnosed with
myopathy
due to polymyositis. I have tried high dose of steroids (started on 60mg now on 15mg) and mycophenolate (3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
I have been diagnosed with
myopathy
due to polymyositis. I have tried high dose of steroids (started on 60mg now on 15mg) and mycophenolate (3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
Lobby123
in
Myositis UK
3 years ago
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