Search
Search
About
Log in
Join
Experiences with
Myopathy
Posts
Communities
213 public posts
Filter results
Claudication in the legs
Two weeks ago before this happened Rheumy tested for muscle
myopathy
which I don’t have and suggested more exercise inspite of the increase in pain if I did.
Two weeks ago before this happened Rheumy tested for muscle
myopathy
which I don’t have and suggested more exercise inspite of the increase in pain if I did.
Ridge
in
PMRGCAuk
2 years ago
Statins
Rare side effects of statins include: muscle weakness (
myopathy
), loss of sensation or tingling in the nerve endings of the hands and feet (peripheral neuropathy), tendon problems. I first heard about statins and some of the problems with them around 10 years ago from a work colleague.
Rare side effects of statins include: muscle weakness (
myopathy
), loss of sensation or tingling in the nerve endings of the hands and feet (peripheral neuropathy), tendon problems. I first heard about statins and some of the problems with them around 10 years ago from a work colleague.
ChrisColumbus
in
Restless Legs Syndrome
1 year ago
Hi
During this time I’ve been diagnosed with
myopathy
and osteoporosis from my steroid therapy. Anyone else in this situation how does it affect life for you?
During this time I’ve been diagnosed with
myopathy
and osteoporosis from my steroid therapy. Anyone else in this situation how does it affect life for you?
Carasmiffy
in
NRAS
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hypertrophic cardiomyopathy and ablation
Hey guys was just wondering if there’s anyone who is diagnosed with atrial fibrillation and hypertrophic cardio
myopathy
and they have done an ablation. I would like to know how successful was it , and how do they feel after the ablation.
Hey guys was just wondering if there’s anyone who is diagnosed with atrial fibrillation and hypertrophic cardio
myopathy
and they have done an ablation. I would like to know how successful was it , and how do they feel after the ablation.
Zeinmassri
in
AF Association
2 years ago
Immunometabolic signatures predict recovery from thyrotoxic myopathy in patients with Graves' disease
The aim of this study was to identify specific plasma metabolites and T-cell subsets that predict thyrotoxic
myopathy
recovery in patients with Graves' disease.
The aim of this study was to identify specific plasma metabolites and T-cell subsets that predict thyrotoxic
myopathy
recovery in patients with Graves' disease.
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Left to die
I have had repeated colds then flu heart is weak ans scraping sensation I can't get up now even to sit up body weakness bad fighting to stay alive heart went to 162 tonight refused a ambulance scared and alone I also have a mitochondrial
myopathy
I have had repeated colds then flu heart is weak ans scraping sensation I can't get up now even to sit up body weakness bad fighting to stay alive heart went to 162 tonight refused a ambulance scared and alone I also have a mitochondrial
myopathy
Kg180
in
British Heart Foundation
3 years ago
Niacin Cures Systemic NAD+ Deficiency and Improves Muscle Performance in Adult-Onset Mitochondrial Myopathy 2021
NAD+ is disrupted in PD patients "Progresses in both basic research and clinical trials of NAD+ in Parkinson's disease" 2021 https://pubmed.ncbi.nlm.nih.gov/33989633/ This study shows NAD+ normalized in these adult onset mitochondrial
myopathy
patients using Niacin.
NAD+ is disrupted in PD patients "Progresses in both basic research and clinical trials of NAD+ in Parkinson's disease" 2021 https://pubmed.ncbi.nlm.nih.gov/33989633/ This study shows NAD+ normalized in these adult onset mitochondrial
myopathy
patients using Niacin.
Bolt_Upright
in
Cure Parkinson's
2 years ago
PMR diagnosis , Pred, and slightly high CK maybe statin induced pain.
Took that only the once, it was enough to rebound into agony, so I'm left wondering about the statin situation and PMR or is it the start of
Myopathy
caused by statins as many people complain of just that, But I have to say the pain is excruciating before the pred.
Took that only the once, it was enough to rebound into agony, so I'm left wondering about the statin situation and PMR or is it the start of
Myopathy
caused by statins as many people complain of just that, But I have to say the pain is excruciating before the pred.
Misseyj55
in
PMRGCAuk
2 years ago
What's going on in my head?
I've been diagnosed with AAD along with narcolepsy, major depression and a vacuolar
myopathy
. In a recent discussion with a friend I mentioned that I always have something like a private movie running in my mind that never stops.
I've been diagnosed with AAD along with narcolepsy, major depression and a vacuolar
myopathy
. In a recent discussion with a friend I mentioned that I always have something like a private movie running in my mind that never stops.
ScooterJoe
in
CHADD's Adult ADHD Support
3 years ago
Necosising myositis
I have muscle aches and pins and needles at night but have had an EMG and NCS and been told I have no
myopathy
showing at present. I have had a mri and ct but not had the results yet. As I have no
myopathy
present at the moment , does anyone know what that could mean for me.
I have muscle aches and pins and needles at night but have had an EMG and NCS and been told I have no
myopathy
showing at present. I have had a mri and ct but not had the results yet. As I have no
myopathy
present at the moment , does anyone know what that could mean for me.
Eddie1969
in
Myositis UK
3 years ago
Suspected fibrous myopathy in legs after frequent B12 thigh injections
Has anyone had stiff legs/
myopathy
after frequent, daily injections into their thighs? Ive tried to rule everything else out but it seems like both thighs are stiff and calves are weak. Theres also muscle atrophy. Is this common?
Has anyone had stiff legs/
myopathy
after frequent, daily injections into their thighs? Ive tried to rule everything else out but it seems like both thighs are stiff and calves are weak. Theres also muscle atrophy. Is this common?
PointOfReference
in
Pernicious Anaemia Society
3 years ago
Not PMR
I've now tested positive for Myositis (a collective term for rare muscle diseases) antibodies, specifically Immune-Mediated Necrotising
Myopathy
which is extremely rare. I'm now being referred to a UCL professor so am finally, nearly 21 months from onset, beginning to get some answers.
I've now tested positive for Myositis (a collective term for rare muscle diseases) antibodies, specifically Immune-Mediated Necrotising
Myopathy
which is extremely rare. I'm now being referred to a UCL professor so am finally, nearly 21 months from onset, beginning to get some answers.
FerrySlipper
in
PMRGCAuk
3 years ago
How do I reduce my cpk levels?
I have been diagnosed with
myopathy
due to polymyositis. I have tried high dose of steroids (started on 60mg now on 15mg) and mycophenolate (3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
I have been diagnosed with
myopathy
due to polymyositis. I have tried high dose of steroids (started on 60mg now on 15mg) and mycophenolate (3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
Lobby123
in
Myositis UK
3 years ago
Functional b12 deficiency despite normal tests? Issues of right calf wasting/myopathy?
Or has similar patterns of neuropathy/
myopathy
?
Or has similar patterns of neuropathy/
myopathy
?
gemini4378
in
Pernicious Anaemia Society
3 years ago
ME and My Heart
In 2010 I had a Cardiac MRI to rule out
Myopathy
and they discovered that my left diaphragm was[i] [/i][i]paralysed and my heart is displaced medially and it's edging over the right of my chest.
In 2010 I had a Cardiac MRI to rule out
Myopathy
and they discovered that my left diaphragm was[i] [/i][i]paralysed and my heart is displaced medially and it's edging over the right of my chest.
Quest4NSR
in
Atrial Fibrillation Support
3 years ago
statin myopathy
has anyone had statin induced muscle weakness in the lower legs
has anyone had statin induced muscle weakness in the lower legs
potplants
in
ERIC
3 years ago
Pelic girdle issue
They also mentioned that 30 minutes exercise five days a week could improve muscle strength as long as muscle
myopathy
test has been negative. https://www.statpearls.com/articlelibrary/viewarticle/23303/?
They also mentioned that 30 minutes exercise five days a week could improve muscle strength as long as muscle
myopathy
test has been negative. https://www.statpearls.com/articlelibrary/viewarticle/23303/?
Timbutdim
in
Thyroid UK
3 years ago
Statins
The answer is that the risk of
Myopathy
(a fairly serious muscular side effect) is a stable 1 in 10,000 up to 40Mg, but then suddenly jumps ten fold to 1 in 1,000 with the 80Mg dose.
The answer is that the risk of
Myopathy
(a fairly serious muscular side effect) is a stable 1 in 10,000 up to 40Mg, but then suddenly jumps ten fold to 1 in 1,000 with the 80Mg dose.
Chappychap
in
British Heart Foundation
3 years ago
Mri results
Also borderline
myopathy
! Worried sick and cardiologist just said don’t Worry can anyone tell me how serious these findings are thankyou
Also borderline
myopathy
! Worried sick and cardiologist just said don’t Worry can anyone tell me how serious these findings are thankyou
Best2
in
AF Association
3 years ago
Lower back pains both sides
Hi,usually post answers to questions I get about Various thing's from medication to severe (chronic)or acute heart failure cardio-
myopathy
etc.I get box with all my tablets in and am reminded to take them by family members as I never have had the best memory.My question is that I have had pains in both
Hi,usually post answers to questions I get about Various thing's from medication to severe (chronic)or acute heart failure cardio-
myopathy
etc.I get box with all my tablets in and am reminded to take them by family members as I never have had the best memory.My question is that I have had pains in both
Brian1974
in
British Heart Foundation
3 years ago
1
2
3
4
...
11
Next page
10
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
58 results
Thyroid UK
36 results
British Heart Foundation
15 results
View top 10 communities
Sort by
Most Relevant
Newest