I've always been a magnet for strange diseases but this has me puzzled. I began having extreme fatigue, weakness without losing muscle strength, extreme sleepiness, pain and high myoglobin levels. After seeing neurologists at a large research hospital for 10 years, DNA tests, muscle biopsies, I was finally diagnosed with a vacuolar myopathy similar to Miyoshi myopathy. Most of the time I'm just tired, no energy. But now I'm having episodes of extreme itching on both arms--no rash. It starts early in the evening gradually gets worse and then has stopped when I wake up in the morning. The only thing that relieves it is 'Icy Hot' roll on pain reliver that is 16% menthol. Sometimes I have times I'm in 'remission'--no itching. But then it starts again and I'm just wiped out. Doctor doesn't know what it is, blood work gives no indication. Does anyone else experience this? Could this just be a 'flare-up' of this muscle condition?
Strange flare ups?: I've always been a... - Foggy's "Invisibl...
Strange flare ups?
Written by
ScooterJoe
To view profiles and participate in discussions please or .
Read more about...
3 Replies
•
Liver problems can cause itching. Have a liver blood test panel done.
Not what you're looking for?
You may also like...
Advice needed
Hi I was refered to a rheumatologist because I had been suffering from bone pain and burning in my...
Can't honestly cope with the brokenness of me, completely and utterly at the end of my rope
Hi everyone, I have just joined this community.
I have had M.E for 10 years now, and along with...
UNDIAGNOSED CHRONIC RIGHT SIDE PAIN! I can't live like this! In need of advice! Please!
Hey everyone! I'm a 31 year old female, suffering with severe chronic right side/ab/flank pain...
New to HealthUnlocked, have Peripheral Neuropathy and need support.
I'd been tripping over for many years, it became a bit of a joke and I thought that I was just...
Vintage Pammy has non diabetic Peripheral Neuropathy :(
Hi my name is Pammy and I have PN Peripheral Neuropathy. I am new to being connected to any...