Search
Search
About
Log in
Join
Experiences with
Myopathy
Posts
Communities
221 public posts
Filter results
What type of NDT product/brand might suit me? Please help :)
Hello Everyone, I have Hypothyroidism and severe Hypothyroid
myopathy
.
Hello Everyone, I have Hypothyroidism and severe Hypothyroid
myopathy
.
KJELLSTROM1234
in
Thyroid UK
2 months ago
Recommendations for Rheumatologist Oxford area please
Can anyone recommend a good Rheumatologist in the Oxford area please, who understands PMR and Steroid
Myopathy
? Thank you.
Can anyone recommend a good Rheumatologist in the Oxford area please, who understands PMR and Steroid
Myopathy
? Thank you.
Katkin1
in
PMRGCAuk
8 months ago
Steroid myopathy
I saw a post mentioning steroid
myopathy
which I'd not come across before. I've had PMR for 2 1/2 years and gave had several flares. I'm presently on 7mg but am extremely stiff in my thighs.
I saw a post mentioning steroid
myopathy
which I'd not come across before. I've had PMR for 2 1/2 years and gave had several flares. I'm presently on 7mg but am extremely stiff in my thighs.
Smithie49
in
PMRGCAuk
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Critical illness neuropathy and critical illness myopathy
Are there any members of this group who are aware of anyone being placed into an induced coma with pneumonia and whilst in the coma suffered kidney issues and were placed on dialysis and then came off it. Has anyone knowledge of anyone coming out of an induced coma and being unable to speak or move
Are there any members of this group who are aware of anyone being placed into an induced coma with pneumonia and whilst in the coma suffered kidney issues and were placed on dialysis and then came off it. Has anyone knowledge of anyone coming out of an induced coma and being unable to speak or move
Twoblu
in
ICUsteps
3 months ago
Proximal Myopathy
Is anyone else suffering with proximal
myopathy
affecting back, neck shoulder muscles and joints? I'm fed up of the pain despite physio exercises and swimming at a gentle pace. Will it ever go away? Diagnosed with Autoimmune Thyrotoxicosis in September and now in erythroid range.
Is anyone else suffering with proximal
myopathy
affecting back, neck shoulder muscles and joints? I'm fed up of the pain despite physio exercises and swimming at a gentle pace. Will it ever go away? Diagnosed with Autoimmune Thyrotoxicosis in September and now in erythroid range.
BananaFeast
in
Thyroid UK
10 months ago
Tooth extraction with heart disease
I have heart failure/
myopathy
and need to have some extractions. Is this a problem ? Has anyone got any experience?
I have heart failure/
myopathy
and need to have some extractions. Is this a problem ? Has anyone got any experience?
bones-bones
in
British Heart Foundation
9 months ago
fulvestrant
They are aware of this reaction, drug induced
myopathy
, a “severe” reaction listed as tingling, numbness or weakness in legs. So please be aware. Symptoms have resolved except for leg muscle pain. This drug has a 40-50 day half-life to excretion so there’s that to consider.
They are aware of this reaction, drug induced
myopathy
, a “severe” reaction listed as tingling, numbness or weakness in legs. So please be aware. Symptoms have resolved except for leg muscle pain. This drug has a 40-50 day half-life to excretion so there’s that to consider.
Oberammergaux2
in
SHARE Metastatic Breast Cancer
2 months ago
Steroid induced myopathy
My rheumatologist seems to think the PMR might have burnt out and I possibly have steroid induced
myopathy
. The aches and stiffness is in similar areas to before. Does anyone have any experience in this?
My rheumatologist seems to think the PMR might have burnt out and I possibly have steroid induced
myopathy
. The aches and stiffness is in similar areas to before. Does anyone have any experience in this?
ian1951
in
PMRGCAuk
10 months ago
RAI failure... worse than previously.. advice please
Now worse hyper than I've had for ages, including thyrotoxic
myopathy
which was so bad I couldn't get out of a chair. Really stressed about this- I'm 51 and usually fit and active. Currently trying to get back stable on carbimazole and propranolol and fed up!
Now worse hyper than I've had for ages, including thyrotoxic
myopathy
which was so bad I couldn't get out of a chair. Really stressed about this- I'm 51 and usually fit and active. Currently trying to get back stable on carbimazole and propranolol and fed up!
Loveteaandbiscuits
in
Thyroid UK
5 months ago
Latest Levels 18 months after heart attack.
The doctor says I probably have statin induced
myopathy
and nerve damage as I cannot get rid of chest discomfort.the last few weeks I have had palpitations and I am generally feeling at my lowest I have felt. 18 months is a long time to feel so crap.
The doctor says I probably have statin induced
myopathy
and nerve damage as I cannot get rid of chest discomfort.the last few weeks I have had palpitations and I am generally feeling at my lowest I have felt. 18 months is a long time to feel so crap.
Fourwhitesheps
in
Thyroid UK
6 months ago
The effects of alcohol on polymyalgia/myotisis
After a consultation last wk: Likely Seronegative idiopathic inflammatory
myopathy
- (bloods & imaging). Muscle biopsy non conclusive PMR (probably because I had been on pred for 3yrs). Anyone know anything about that?! I stopped drinking all alcohol at the beginning of the year.
After a consultation last wk: Likely Seronegative idiopathic inflammatory
myopathy
- (bloods & imaging). Muscle biopsy non conclusive PMR (probably because I had been on pred for 3yrs). Anyone know anything about that?! I stopped drinking all alcohol at the beginning of the year.
Purpleprimate
in
PMRGCAuk
6 months ago
Response re tracky
So that she dies not end up with critically illness neuropathy and
myopathy
. Severe muscle wastage and ending up quadrapleagic. I would sat yes to the tracky to help the drs. But add the provisi that physio on tge limbs will take place and not just concentrate on the tracky for breathing.
So that she dies not end up with critically illness neuropathy and
myopathy
. Severe muscle wastage and ending up quadrapleagic. I would sat yes to the tracky to help the drs. But add the provisi that physio on tge limbs will take place and not just concentrate on the tracky for breathing.
Twoblu
in
ICUsteps
24 days ago
2nd Ablation
Atrial
Myopathy
hence Av Node ablation should be done if AF recurs. The trouble is the AF episodes getting picked up by the PM in first place. When I've had them nothing seems shows on their end. The last one leading to this was picked by chance at the in person PM check.
Atrial
Myopathy
hence Av Node ablation should be done if AF recurs. The trouble is the AF episodes getting picked up by the PM in first place. When I've had them nothing seems shows on their end. The last one leading to this was picked by chance at the in person PM check.
Marvel3000
in
British Heart Foundation
6 months ago
Post Second Ablation help pls
Atrial
Myopathy
hence Av Node ablation should be done if AF recurs. The trouble is the AF episodes getting picked up by the PM in first place. When I've had them nothing seems shows on their end. The last one leading to this was picked by chance at the in person PM check.
Atrial
Myopathy
hence Av Node ablation should be done if AF recurs. The trouble is the AF episodes getting picked up by the PM in first place. When I've had them nothing seems shows on their end. The last one leading to this was picked by chance at the in person PM check.
Marvel3000
in
Atrial Fibrillation Support
6 months ago
Sad unexpected passing of my beloved Brother.
Critical illness
myopathy
and broncho-pneumonia. October 6th 2019 your life changed forever in ICU. 19th March 2024. Your body gave up. 09TH August 1969 to 19th March 2024 A brave young man. He is resting at peace now. To people reading this do not give up hope.
Critical illness
myopathy
and broncho-pneumonia. October 6th 2019 your life changed forever in ICU. 19th March 2024. Your body gave up. 09TH August 1969 to 19th March 2024 A brave young man. He is resting at peace now. To people reading this do not give up hope.
Twoblu
in
ICUsteps
4 months ago
Acute steroid myopathy
One of my many Dr Google searches stumbled accross an article on acute steroid
myopathy
which presents as specific stiffness in the hips and shoulders and aside general absence of pain, is very difficult to distinguish from PMR.
One of my many Dr Google searches stumbled accross an article on acute steroid
myopathy
which presents as specific stiffness in the hips and shoulders and aside general absence of pain, is very difficult to distinguish from PMR.
Body_bonkers
in
PMRGCAuk
1 year ago
Hypothyroid muscle aches
So am I being too impatient in hoping that my thyroid treatment might produce results already, and does anybody have any experience of this situation of trying to combat what I believe is thyroid induced muscle
myopathy
.
So am I being too impatient in hoping that my thyroid treatment might produce results already, and does anybody have any experience of this situation of trying to combat what I believe is thyroid induced muscle
myopathy
.
Philogden6
in
Thyroid UK
5 months ago
gca&actemra&steroid myopathy
Need to message PMRpro. Story too long. Pro is familiar. I go back almost 10 years. How can I do this. Or. Can pro contact me. Thanks
Need to message PMRpro. Story too long. Pro is familiar. I go back almost 10 years. How can I do this. Or. Can pro contact me. Thanks
Nap1
in
PMRGCAuk
1 year ago
jhutc16
With my diabetic related
myopathy
and neuropathy (I've been a diabetic for 63 years), I'm running no risk of any muscle pain or weakness from statin side-effects. I am now 73. PS: 75% of people who have heart attacks do not have high cholesterol levels (International Journal of Nanomedicine, 2019).
With my diabetic related
myopathy
and neuropathy (I've been a diabetic for 63 years), I'm running no risk of any muscle pain or weakness from statin side-effects. I am now 73. PS: 75% of people who have heart attacks do not have high cholesterol levels (International Journal of Nanomedicine, 2019).
jhutc16
in
British Heart Foundation
4 months ago
Cardiac Monitor
I had a My LUX monitor fitted a few months ago which was a good thing as my cardiologist has noticed 1 or 2 results a my medication has changed for the better .I know this is a good move as I have cardio
myopathy
or CHF ,enlarged heart had a pump in to help which was inserted through my leg to my heart
I had a My LUX monitor fitted a few months ago which was a good thing as my cardiologist has noticed 1 or 2 results a my medication has changed for the better .I know this is a good move as I have cardio
myopathy
or CHF ,enlarged heart had a pump in to help which was inserted through my leg to my heart
Brian1974
in
British Heart Foundation
3 months ago
1
2
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
59 results
Thyroid UK
37 results
British Heart Foundation
17 results
View top 10 communities
Sort by
Most Relevant
Newest