Search
Search
About
Log in
Join
Experiences with
Mycophenolate
Posts
Communities
785 public posts
Filter results
COVID VACCINE
I heard a scientist on the news saying one of them was a live vaccine which I cannot have because I am taking
Mycophenolate
.
I heard a scientist on the news saying one of them was a live vaccine which I cannot have because I am taking
Mycophenolate
.
Carolanne
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
I'm new here
I am 7 mo in on a Prednisone/
Mycophenolate
(MMF) regimen that started at 40 mg/d Pred and 2000 mg/d MMF and now at 5mg/1000 mg/d for past 6 weeks.
I am 7 mo in on a Prednisone/
Mycophenolate
(MMF) regimen that started at 40 mg/d Pred and 2000 mg/d MMF and now at 5mg/1000 mg/d for past 6 weeks.
Hidden
in
C3 Glomerulopathy
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ceptava Mycophenolic acid
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Willow1414
in
LUPUS UK
3 years ago
Advise re GCA blurry vision
For the last few weeks my eyesight has become very blurry, I have seen my rheumatologist and he now wants me to take
mycophenolate
mofetil as well, at no point did he suggest I up the pred, I’m worried as my eyesight is getting worse daily.
For the last few weeks my eyesight has become very blurry, I have seen my rheumatologist and he now wants me to take
mycophenolate
mofetil as well, at no point did he suggest I up the pred, I’m worried as my eyesight is getting worse daily.
2013mayo
in
PMRGCAuk
4 years ago
DLE (lupus)
I am on
mycophenolate
and steroids. I spoke to my drs and they checked my records and said that because of my age I am still 7th in the order for the covid vaccination? Is this correct I am 62. I have never received a shielding letter?
I am on
mycophenolate
and steroids. I spoke to my drs and they checked my records and said that because of my age I am still 7th in the order for the covid vaccination? Is this correct I am 62. I have never received a shielding letter?
Jadelee28
in
LUPUS UK
4 years ago
Newbie with possible vasculitis
I've been started on tacrolimus and prednisolone for my AIH, but they want to change the tacrolimus to
mycophenolate
instead as this is better for vasculitis they said. My hives, headaches, joint pain and nerve weakness has all eased since I was restarted on the prednisolone at 20mg.
I've been started on tacrolimus and prednisolone for my AIH, but they want to change the tacrolimus to
mycophenolate
instead as this is better for vasculitis they said. My hives, headaches, joint pain and nerve weakness has all eased since I was restarted on the prednisolone at 20mg.
MotherGothel
in
Vasculitis UK
3 years ago
Muscle weakness/shakes - vasculitis or steroids?
Diagnosed with GPA in August, on prednisolone and
Mycophenolate
. No organ issues, sinus pain and muscle loss in arms and legs. Was building up levels of exercise and regaining strength, but went backwards after reducing pred from 30mg to 25mg (started at 45mg).
Diagnosed with GPA in August, on prednisolone and
Mycophenolate
. No organ issues, sinus pain and muscle loss in arms and legs. Was building up levels of exercise and regaining strength, but went backwards after reducing pred from 30mg to 25mg (started at 45mg).
Sparkypatrick
in
Vasculitis UK
4 years ago
Very Interesting Article on the Use of Mycophenolate / Steroids as First Line Treatment for ITP
The following is a very interesting recent article about the use of
Mycophenolate
Mofetil in combination with Corticosteroids as a first line treatment for ITP .... https://www.hematologyadvisor.com/home/conference-coverage/ash-2020/treating-itp-with-first-line-combination-
mycophenolate
-corticosteroid
The following is a very interesting recent article about the use of
Mycophenolate
Mofetil in combination with Corticosteroids as a first line treatment for ITP .... https://www.hematologyadvisor.com/home/conference-coverage/ash-2020/treating-itp-with-first-line-combination-
mycophenolate
-corticosteroid
Anthonyh7
in
ITP Support Association
4 years ago
Advice on new condition
It's still a mystery, I was on a high does of prednisolone which is being taper down and I also started
mycophenolate
about 8 weeks ago. I'm very scared of relapses and I'm still hoping it's an allergy. I'm moving house in a few weeks to get away from the pigeons.
It's still a mystery, I was on a high does of prednisolone which is being taper down and I also started
mycophenolate
about 8 weeks ago. I'm very scared of relapses and I'm still hoping it's an allergy. I'm moving house in a few weeks to get away from the pigeons.
Readyteddy
in
Vasculitis UK
4 years ago
Lefludomide and mycophenolate for GCA treatment
Is there anybody on prednisone and lefludomide and
mycophenolate
?
Is there anybody on prednisone and lefludomide and
mycophenolate
?
Manihiki
in
PMRGCAuk
4 years ago
Query?
I have AIH/PBC and take 1000mg
mycophenolate
and 3 mg of bud. Daily can any one tell me what venerable group I fall in? Just thinking about the vaccine time which I can’t wait to get!
I have AIH/PBC and take 1000mg
mycophenolate
and 3 mg of bud. Daily can any one tell me what venerable group I fall in? Just thinking about the vaccine time which I can’t wait to get!
Suecong
in
British Liver Trust
4 years ago
Covid vaccination
I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and
Mycophenolate
) Thanks Debbie
I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and
Mycophenolate
) Thanks Debbie
Womanfriday
in
Hughes Syndrome APS Forum
4 years ago
Being told symptoms are not due to Lupus
I am currently taking Prednisolone and Hydroxychloroquine, have had
Mycophenolate
in the past as well.
I am currently taking Prednisolone and Hydroxychloroquine, have had
Mycophenolate
in the past as well.
Choccy8
in
LUPUS UK
4 years ago
SLE and covid vaccine
Does anyone know if you have SLE and are on
Mycophenolate
is it ok to have either of the vaccines? I had read somewhere on a BBC report that one of the vaccines due out is not going to be any use if you are on certain immune suppressant medication.
Does anyone know if you have SLE and are on
Mycophenolate
is it ok to have either of the vaccines? I had read somewhere on a BBC report that one of the vaccines due out is not going to be any use if you are on certain immune suppressant medication.
Kelbol1
in
LUPUS UK
4 years ago
Mycophenalate
Has anyone been taken off
Mycophenolate
due to their blood test results particularly in relation to WBC and neutrophil ? Jogging along nicely and slowly increasing until series of blood test results came through. Would be interested to know.
Has anyone been taken off
Mycophenolate
due to their blood test results particularly in relation to WBC and neutrophil ? Jogging along nicely and slowly increasing until series of blood test results came through. Would be interested to know.
Bruffingtons2
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Lupus and Bowel Bleeding
She is now taking the following medication: Fluconazole, Omeprazole, Aspirin,
Mycophenolate
, Hydroxychloroquine. Because she is taking
Mycophenolate
she has to have regular blood tests and her last bloods showed low iron and B12 so our GP requested more bloods and a stool sample.
She is now taking the following medication: Fluconazole, Omeprazole, Aspirin,
Mycophenolate
, Hydroxychloroquine. Because she is taking
Mycophenolate
she has to have regular blood tests and her last bloods showed low iron and B12 so our GP requested more bloods and a stool sample.
chezevo
in
LUPUS UK
4 years ago
Switching from mycophenolate or azathioprine
If anybody tried the same switching from
mycophenolate
or azathioprine I would really appreciate that. Thanks
If anybody tried the same switching from
mycophenolate
or azathioprine I would really appreciate that. Thanks
FEEL-THE-BLUE
in
LUPUS UK
4 years ago
Mycophenolate effects
I'm wondering if anyone has this issue with
mycophenolate
. I see online that it is a 'common' side effect. Thanks in advance for any replies
I'm wondering if anyone has this issue with
mycophenolate
. I see online that it is a 'common' side effect. Thanks in advance for any replies
Corcaigh
in
Vasculitis UK
4 years ago
COVID VACCINE
GREAT NEWS ABOUT THE VACCINE BUT DO WE STOP
MYCOPHENOLATE
BEFORE WE HAVE THE INJECTION AND HOW LONG BEFORE WE RESUME THE MEDICATION?
GREAT NEWS ABOUT THE VACCINE BUT DO WE STOP
MYCOPHENOLATE
BEFORE WE HAVE THE INJECTION AND HOW LONG BEFORE WE RESUME THE MEDICATION?
Carolanne
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
1
...
12
13
14
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
289 results
Vasculitis UK
104 results
Scleroderma & Raynaud's UK (SRUK)
92 results
View top 10 communities
Sort by
Most Relevant
Newest