I’ve just been put on Mycophenolate
500mg once daily - increasing to 1000mg twice a day over a 4 week period. Bloods booked for every two weeks for the next 6 weeks.
I’m on colchicine, triple mouthwash and prednisone- weaned down to 10mg but flaring up, so back up to 15 and 20 if needed daily.
What should I expect with Mycophenolate? And Is it a routinely given one? I was expecting Aza but this was the only option.
I am so pleased that it has finally been sorted for you. I sincerely hope it helps. I think many DMARDS have similar side effects with some affected more than others. I am still waiting for the green light to start Azapriothine . Good luck xx
Thank you lovely! I’m very nervous. Ahhh no way, hopefully you can start it soon!! Xx
I was on mycophenolate after azathioprine as I developed GCA whilst on aza, and my wcc kept dropping. I had less infections on mycophenolate but unfortunately wasn't enough to control my Behcet's.
Thank you for your response, how did you know it wasn’t working for you? Did you still get a lot of symptoms? X
I was on mycophenolate when I first went to Aintree CoE. At the time I wasn't yet diagnosed with Behcet's but I was getting lots of oral and genital ulcers and rashes so Prof said it wasn't controlling it. I was then put on Rituximab ,then came Covid so I was swapped to Stelara and am still on it.
Was on Mychlophenelate and Ustekimumab when I had a break off the MTX and Infliximab infusions, didn't do much for me .Had a reaction during my first infusion of Ustekimumab and never improved after that so Rhuematologist and Gastro team put me back on Preds, Mtx, Infliximab .
thank you all, I’ve developed pain since starting under my right rib cage. Spoken to a nurse today and was told to stop for two weeks, see if it calms down but I don’t know what on earth I’m meant to do in the mean time. My mouth is starting to ulcerate and I’ve just about had enough of this
Vaccinations and immune suppressants
What to ask to be tested for 
Any ideas to help please
new to this site
