I was diagnosed about 2 years ago and have had difficulties with the condition for about 4 years now. The diagnosis I was given was Chronic Fatigue Syndrome ( CFS).
My understanding is that use of the term Myalgic encephalomyelitis (ME) by the NHS, has fallen by the wayside and that new diagnosises are given simply as CFS.
ME seems more associated with activists or those who believe their symptoms to be more severe. Though it may just be that they were diagnosed earlier and this was label that they were given and continue to use. ME also seems to imply that it's condition of inflammation of the brain and spinal cord, which appears to have never been proven.
Does it matter which term you use? Does clinging to the 'old term' put you at odds with the NHS? Previously people may have been diagnosed with conversion disorder or earlier terms.
Best wishes to everyone with this condition regardless of what we call it.