Hello there - sorry it's taken so long to get back to you. Left ventricular non-compaction is indeed a very rare heart condition. Our friends over at Cardiomyopathy UK have some great information you can read up on here: cardiomyopathy.org/left-ven... and they also have a helpline you can call.
My husband is 42 and was diagnosed with LVNC 2 years ago he also has Dilated Cardiomyopathy. It was explained to us that the surface of his heart was like a sponge and this was dangerous because blood could pool in it. He was given an anti clotting drug to overcome this danger alongside his drugs for Cardiomyopathy. Cardiomyopathy Uk is a great resource and if you sign up for the My Life magazine it often features rarer conditions. The summer 2017 edition features my husband and also gives information about LVNC and it should be available from the website
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.