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Fibromyalgia Action UK

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International Fibromyalgia & ME Awareness Day (12th May), please support this Thunderclap campaign

Mdaisy profile image
14 Replies

May 12th marks the International Awareness Day for Fibromyalgia (FMS), Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome.

Many people around the world will be wearing purple and blue ribbons, pins and awareness bands to show their support as well as supporting online campaigns. Please can you take a few mins to support this Thunderclap?

thunderclap.it/projects/565...

Fibromyalgia (FM or FMS) is a chronic widespread pain syndrome that is a very debilitating often disabling condition. People living with Fibromyalgia experience a heightened & painful response to pressure. Symptoms include debilitating fatigue, sleep disturbance, joint stiffness, difficulty with swallowing, bowel & bladder abnormalities, numbness & tingling, dysautonomia and cognitive dysfunction.

Myalgic encephalomyelitis (ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, debilitating fatigue and specific cognitive disabilities.

These illnesses have a huge impact on daily life, as living with chronic pain and fatigue (mental and physical exhaustion) plus many other symptoms 24/7, can mean that daily activities that a healthy person takes for granted are considerably more difficult. Unfortunately, these conditions are often known as invisible illnesses, as many with Fibromyalgia and ME may look well on the outside meaning that people often dismiss any symptoms out of hand often meaning that some experience stigma and lack of empathy.

We must raise awareness to help inform those who may not understand Fibromyalgia & ME. This is why this campaign is so important, so please show your support and share these information links on International Awareness Day

thunderclap.it/projects/565...

Sharing is caring - so please share this Thunderclap with your followers too!

Thank You

Please Note: Tweet will be sent out on all accounts who support the campaign at 1pm on the 12th May

" I'm raising awareness of #Fibromyalgia & #ME,pls take 5mins to read bit.ly/2quURBE bit.ly/2oOL1y3 thndr.me/mwSMp0 "

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Mdaisy
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14 Replies
Manu2015 profile image
Manu2015

Hello mdaisy how do u buy them support fibromyalgia bands

Mdaisy profile image
Mdaisy in reply toManu2015

Hi Manu2015

We sell these to raise money for Andover Fibromyalgia & ME Community Group - we used to sell on Ebay but due to lack of volunteers this has ceased. Shall I PM you about other ways you may like to purchase them?

All the best

Emma :)

Manu2015 profile image
Manu2015 in reply toMdaisy

Yes plz emma

Janet28 profile image
Janet28

Thanx for sharing Mdaisy I couldn't read last link because it was coming up as error, so maybe the site is down.

Peace, luv n light

Jan xx

Mdaisy profile image
Mdaisy in reply toJanet28

Hello Janet28

I've edited the post with the campaign link, thank you for letting me know

thunderclap.it/projects/565...

Emma :)

Ccupcakes profile image
Ccupcakes

This is also my Birthday, plz pm me with details of how to get wristbands Mdaisy xx

Mdaisy profile image
Mdaisy in reply toCcupcakes

Will do . Thank You

Happy Birthday for the 12th :)

Its good to see you. Mdaisy Hope you are well. :) x

Mdaisy profile image
Mdaisy in reply to

Hi Mayrose54 - Nice to pop on and catch up with you all too. Hope you're doing well, I am better than I have been so fingers crossed on the up x

I see there is lots more great Volunteer Admin to help @TheAuthor now - seems an absolute age since I was here. I miss you all :)

Miss you too, Im ok thanks.

Mdaisy profile image
Mdaisy in reply to

That's great to hear - must try to catch up with everyone. So glad to see the community is doing the great job as always plus up to 30k now that's Fantastic ! :)

TheAuthor profile image
TheAuthor

Thanks Emma my friend. It is always simply wonderful to hear from you x :)

Mdaisy profile image
Mdaisy

Please show your support to this campaign before May 12th - we need 100 supporters to spread the message of awareness in a tweet, on facebook and/or tumblr.

Many Thanks in advance :)

Mdaisy profile image
Mdaisy

Please support if you can before 12th May ! We would appreciate any help with awareness :)

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