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diagnosed with PMR
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
Emilydarby
in
PMRGCAuk
9 months ago
Fizzing iny head
My tinnitus feels like my brain is fizzing inside. It started after taking HRT 3 years ago. I have it every day. It gets worse when I'm tired or stressed. Does anyone have anything similar?
My tinnitus feels like my brain is fizzing inside. It started after taking HRT 3 years ago. I have it every day. It gets worse when I'm tired or stressed. Does anyone have anything similar?
Qw1234
in
Tinnitus UK
9 months ago
Why not give Hyperbaric Oxygen Therapy (HBOT) as Adjunctive Therapy a Try?
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
Isthistheone
in
Cure Parkinson's
1 year ago
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Opinion sought for ADT treatment duration
I started taking Orgovyx tablets last April. Then I went through the typical 45 radiation treatments of the prostate. 3 months ago my PSA had dropped from 8 to 0.7. Last week it had dropped to 0.1 ng/ml. A biopsy last year showed 1 sample identified as Gleason 8. My urologist thinks I can stop taking
I started taking Orgovyx tablets last April. Then I went through the typical 45 radiation treatments of the prostate. 3 months ago my PSA had dropped from 8 to 0.7. Last week it had dropped to 0.1 ng/ml. A biopsy last year showed 1 sample identified as Gleason 8. My urologist thinks I can stop taking
Doodlebun
in
Advanced Prostate Cancer
9 months ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
9 months ago
Happy New Year and Update
Update: I took what I hope will be my last Lupron shot which will work until March 5 /24. I will have had 31 months of Lupron with mostly undetectable PSA. I will have had 29 months of Abiraterone at that point. Had IMRT radiation 24 months ago Both my MO and RO are interested in whether they have
Update: I took what I hope will be my last Lupron shot which will work until March 5 /24. I will have had 31 months of Lupron with mostly undetectable PSA. I will have had 29 months of Abiraterone at that point. Had IMRT radiation 24 months ago Both my MO and RO are interested in whether they have
Scout4answers
in
Advanced Prostate Cancer
8 months ago
Curcumin Interactions with Abiraterone
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
FightCancer101
in
Advanced Prostate Cancer
9 months ago
Can Nubeqa (Darolutamide) be used instead of normal ADT drugs for localized PCa?
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Mike58
in
Advanced Prostate Cancer
9 months ago
Sex hormones
Does anyone know if 26.3 (16-124) is lower than ideal? My testosterone was bottom of range but now ok with HRT. I’m trying to get to the bottom of my low cortisol and whilst this is in range, wondered if it should ideally be higher like your thyroid? Many thanks
Does anyone know if 26.3 (16-124) is lower than ideal? My testosterone was bottom of range but now ok with HRT. I’m trying to get to the bottom of my low cortisol and whilst this is in range, wondered if it should ideally be higher like your thyroid? Many thanks
CornishChick
in
Thyroid UK
9 months ago
Weird optical lights/constant bad headache
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
birkie
in
Thyroid UK
11 months ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
9 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Should I be concerned about a PSA of 0.53 after SBRT treatment for one spot.
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
VCinTx
in
Advanced Prostate Cancer
9 months ago
Leg Pain - 4th Week on Lupron
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
FightCancer101
in
Advanced Prostate Cancer
9 months ago
PSMA PET Scan - Help Interpreting Report?
Hello, My husband had his first PSMA PET scan done today, and I am hoping someone who understands PSMA PET reports can help us interpret/understand the results as well as what to expect or ask for in terms of any further testing and/or treatment? My profile is updated with his history, but in a nutshell
Hello, My husband had his first PSMA PET scan done today, and I am hoping someone who understands PSMA PET reports can help us interpret/understand the results as well as what to expect or ask for in terms of any further testing and/or treatment? My profile is updated with his history, but in a nutshell
FaithOverFear104
in
Advanced Prostate Cancer
9 months ago
No indication for Docetaxel ?
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
CarlosBrasil
in
Advanced Prostate Cancer
9 months ago
After some advice
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
Lizzog
in
Ehlers-Danlos Support UK
9 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
10 months ago
PSMA Results
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Prostate Cancer And Gay Men
10 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
10 months ago
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