Search
Search
About
Log in
Join
Experiences with
Muscle pain
Posts
Communities
15,309 public posts
Filter results
Feel like nearly 2 years waisted
Diagnosed with PMR Sept 2020 put on 15mg of prednisolone. Have tapered down apart from one bleep but 3 weeks ago I was down to 1mg. In the last three weeks I have deteriorated alot but this time in my fingers, wrists, elbows, shoulders and hips. I wake in the night with terrible pain in my hands and
Diagnosed with PMR Sept 2020 put on 15mg of prednisolone. Have tapered down apart from one bleep but 3 weeks ago I was down to 1mg. In the last three weeks I have deteriorated alot but this time in my fingers, wrists, elbows, shoulders and hips. I wake in the night with terrible pain in my hands and
Deneez99
in
PMRGCAuk
2 years ago
Heatpad's
Hello, I'm new here, I am a long term sufferer of endometriosis, polycystic ovaries and fibroids, I'm struggling really badly with the amount of pain that I am alot of the time, (I'm currently on a waiting list for a full hysterectomy), painkillers don't seem to help, nor do the stick on heatpads, can
Hello, I'm new here, I am a long term sufferer of endometriosis, polycystic ovaries and fibroids, I'm struggling really badly with the amount of pain that I am alot of the time, (I'm currently on a waiting list for a full hysterectomy), painkillers don't seem to help, nor do the stick on heatpads, can
Jenny167
in
Endometriosis UK
2 years ago
Any Exp with Inj Mitoxantrone, Side effects ??
Dx Jan 2018, 53 Male. After all the treatments got failed (Abireterone, Docetaxel #9, Cabazitaxel #9, Enzalutamide, 177Lu #4, Honvan ) PSA 41, HB : 8.5. He is fit now and doing all his daily activity. On some pain medicine too. PSA is stable but disease is progressing on both psma and fdg scan. Now,
Dx Jan 2018, 53 Male. After all the treatments got failed (Abireterone, Docetaxel #9, Cabazitaxel #9, Enzalutamide, 177Lu #4, Honvan ) PSA 41, HB : 8.5. He is fit now and doing all his daily activity. On some pain medicine too. PSA is stable but disease is progressing on both psma and fdg scan. Now,
pka21
in
Advanced Prostate Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
RLS Meds & Post-Surgical complications
I had a knee replacement a year ago. It went well, except my doctor took me off my Tramadol, 100 mg/3 per day, while keeping me on my 100 mg, 3x/day Pregabalin—it works well together. Instead he had me on 5 mg of Oxycodone every 4 hours. He thought the Oxycodone would an effective substitute for the
I had a knee replacement a year ago. It went well, except my doctor took me off my Tramadol, 100 mg/3 per day, while keeping me on my 100 mg, 3x/day Pregabalin—it works well together. Instead he had me on 5 mg of Oxycodone every 4 hours. He thought the Oxycodone would an effective substitute for the
Bganim1947
in
Restless Legs Syndrome
2 years ago
Daughter brain tumour surgery-waiting for radiation-depression & aggressive behaviour increasing like with concussion or brain injury
Daughter aggressive & threatening after loosing vision in left eye after lateral craniotomy for meningioma tumour in orbital apex-got tumour out around orbital apex, but still in apex as could not operate there & due for radiation. Yesterday she said put me out of my agony & grabbed her hydromorphone
Daughter aggressive & threatening after loosing vision in left eye after lateral craniotomy for meningioma tumour in orbital apex-got tumour out around orbital apex, but still in apex as could not operate there & due for radiation. Yesterday she said put me out of my agony & grabbed her hydromorphone
Santamusic
in
Meningioma Support
2 years ago
Weight Gain
Hello my fellow warriors, hope all is well with everyone. I am on Kisqali and Letrozole. As most have noted before me, Letrozole comes with aches and pains and mine sometimes are debilitating so my oncologist prescribes prednisone and I have gained a lot of weight. I can't take the strong pain killers
Hello my fellow warriors, hope all is well with everyone. I am on Kisqali and Letrozole. As most have noted before me, Letrozole comes with aches and pains and mine sometimes are debilitating so my oncologist prescribes prednisone and I have gained a lot of weight. I can't take the strong pain killers
Kruza
in
SHARE Metastatic Breast Cancer
2 years ago
Made it through the other side of Covid
Hi everybody, I submitted a post a couple of weeks ago explaining I had tested positive for Covid and the following Day I had received Monoclonal Antibody treatment (Sotrovimab) in hospital the following day. All was going well until last Sunday (3rd) when still positive I started getting body pain in
Hi everybody, I submitted a post a couple of weeks ago explaining I had tested positive for Covid and the following Day I had received Monoclonal Antibody treatment (Sotrovimab) in hospital the following day. All was going well until last Sunday (3rd) when still positive I started getting body pain in
Investigator1
in
Vasculitis UK
2 years ago
Osteoarthritis will a stationary exercise bike help
I've been having problems with my legs and right hip for a few years now...recently some days pain in right hip was so bad I was referred for Physio Therapy for Sciatica...after six weeks working with a Physio Therapist I didn't feel much difference so Doctor ordered xrays...results showed Osteoarthritis
I've been having problems with my legs and right hip for a few years now...recently some days pain in right hip was so bad I was referred for Physio Therapy for Sciatica...after six weeks working with a Physio Therapist I didn't feel much difference so Doctor ordered xrays...results showed Osteoarthritis
Jelita
in
Osteoarthritis Action
2 years ago
Off Baricitinib and knee replacement
Hi I'm feeling tearful. I've been off Baricitinib for one week yesterday as I'm having a total knee replacement next Wednesday 13th (I had my left knee and hip replaced in 2018 before being diagnosed) and had to use walking sticks since. Already my feet and ankles are swollen and it's painful to
Hi I'm feeling tearful. I've been off Baricitinib for one week yesterday as I'm having a total knee replacement next Wednesday 13th (I had my left knee and hip replaced in 2018 before being diagnosed) and had to use walking sticks since. Already my feet and ankles are swollen and it's painful to
Mozart150
in
NRAS
2 years ago
Statins
Hello everyone I hope you are having a good week. Please may I ask for some thoughts. I have been taking Rosuvastatin for about 3 months now and increasingly my muscles in my legs have got quite weak and painful and are only releaved by painkillers. The doctor is trying me on Pravastatin to see if this
Hello everyone I hope you are having a good week. Please may I ask for some thoughts. I have been taking Rosuvastatin for about 3 months now and increasingly my muscles in my legs have got quite weak and painful and are only releaved by painkillers. The doctor is trying me on Pravastatin to see if this
Heyjude31
in
British Heart Foundation
2 years ago
The pain oh the pain!
I am at this minute in pain from my endometriosis. Today it is affecting my right and bit of my left pelvic area. It feels like a hot burning poker is prodding my pelvic area and then pulling the tissue down. I've tried a piece of ice wrapped with a towel to numb it, but nothing works. Does anybody
I am at this minute in pain from my endometriosis. Today it is affecting my right and bit of my left pelvic area. It feels like a hot burning poker is prodding my pelvic area and then pulling the tissue down. I've tried a piece of ice wrapped with a towel to numb it, but nothing works. Does anybody
valgal76
in
Endometriosis UK
2 years ago
? To denerve or not to denerve?!
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
Gillyflower70
in
NRAS
2 years ago
Thyroid problem, not sure what I have
I am tired to the point of collapse, go between sweating and feeling cold, tingling all over, have Tinnitus, constipation,
muscle
pain
/weakness etc etc I have a high pulse rate and palpitations if I eat anything with iodine (I think) so have cut down on that.
I am tired to the point of collapse, go between sweating and feeling cold, tingling all over, have Tinnitus, constipation,
muscle
pain
/weakness etc etc I have a high pulse rate and palpitations if I eat anything with iodine (I think) so have cut down on that.
Justine_Case
in
Thyroid UK
2 years ago
Some good news - Laparoscopy success!
Hey All, I have been on this forum for a while as I was trying to figure out what was wrong. I'm 24 but had issues since I was 18, and was always told it's just bad period pain or I need to loose weight. Was formally diagnosed with PCOS last year after being tested for it 3 times since 2016 and always
Hey All, I have been on this forum for a while as I was trying to figure out what was wrong. I'm 24 but had issues since I was 18, and was always told it's just bad period pain or I need to loose weight. Was formally diagnosed with PCOS last year after being tested for it 3 times since 2016 and always
MoonheadTash
in
Endometriosis UK
2 years ago
PMR Flare up after Covid?
It was after this I started to notice
muscle
pain
in my arms and put this down to post infection and generally being under the weather. It got worse so won’t to see my GP who did blood tests which showed a cpr of 1.3 and erythrocyte sedimentation rate of 5.
It was after this I started to notice
muscle
pain
in my arms and put this down to post infection and generally being under the weather. It got worse so won’t to see my GP who did blood tests which showed a cpr of 1.3 and erythrocyte sedimentation rate of 5.
Jcarling
in
PMRGCAuk
2 years ago
Fibromyalgia after covid vaccine?
Two weeks after first covid vaccine I got hit with dry eyes/dry mouth, brain fog, insomnia and digestive issues and widespread
muscle
and joint
pain
. I have been to a rheumatologist 4 times and all tests come back normal.
Two weeks after first covid vaccine I got hit with dry eyes/dry mouth, brain fog, insomnia and digestive issues and widespread
muscle
and joint
pain
. I have been to a rheumatologist 4 times and all tests come back normal.
Ladydi49
in
CLL Support
2 years ago
Feeling low
Hi hope everyone’s ok? Since being diagnosed a few months ago I’ve had quite a few flare ups, I take medication from the doctor, plus vit d, magnesium citrate, cbd, use Epsom salts to soak my feet in, have tried a flotation tank, go to a fibromyalgia support group but had to stop as can’t go at the
Hi hope everyone’s ok? Since being diagnosed a few months ago I’ve had quite a few flare ups, I take medication from the doctor, plus vit d, magnesium citrate, cbd, use Epsom salts to soak my feet in, have tried a flotation tank, go to a fibromyalgia support group but had to stop as can’t go at the
Fibro_fairy
in
Fibromyalgia Action UK
2 years ago
I’m trying acceptance and not going well
I’m trying to accept my sensations I get all my body functions that I notice is just anxiety and I can’t my brain starts freaking out with every pop bubble
muscle
twitch
pain
I get in my chest it’s so annoying.
I’m trying to accept my sensations I get all my body functions that I notice is just anxiety and I can’t my brain starts freaking out with every pop bubble
muscle
twitch
pain
I get in my chest it’s so annoying.
Adamj
in
Anxiety and Depression Support
2 years ago
Pain management alternatives
“Things I learned along the way” … in the event this may help others, I thought I’d share … If you or your loved one is struggling a great deal with pain, you may want to consider 1) having a pain pump placed 2) acupuncture. As my Jeff’s pain became harder to manage with his drug regimen, we were referred
“Things I learned along the way” … in the event this may help others, I thought I’d share … If you or your loved one is struggling a great deal with pain, you may want to consider 1) having a pain pump placed 2) acupuncture. As my Jeff’s pain became harder to manage with his drug regimen, we were referred
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
chronic pain all over body
Hi, my niece is in chronic pain all over her body, she has fibromyalgia, hs, scoliosis and much more, the doctor and hospital have given her all the pain medication, oramorph, gabapentin, codein, mst, but she is still in chronic pain, is there another pain medication they could try? we know something
Hi, my niece is in chronic pain all over her body, she has fibromyalgia, hs, scoliosis and much more, the doctor and hospital have given her all the pain medication, oramorph, gabapentin, codein, mst, but she is still in chronic pain, is there another pain medication they could try? we know something
salamander160
in
Pain Concern
2 years ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
2488 results
Thyroid UK
1467 results
Fibromyalgia Action UK
1278 results
View top 10 communities
Sort by
Most Relevant
Newest