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Latest appointment - possible genetic sequencing
I had my latest oncology telephone appointment on Tuesday. Letrozole, which had kept me stable for 2 years, stopped working earlier this year, & I've been taking Megace since August. There's little change on my latest scan, so I'm continuing to take it for now. After some discussion on my future,
I had my latest oncology telephone appointment on Tuesday. Letrozole, which had kept me stable for 2 years, stopped working earlier this year, & I've been taking Megace since August. There's little change on my latest scan, so I'm continuing to take it for now. After some discussion on my future,
Di16
in
My Ovacome
4 years ago
Daily Project
Everyday, Mr. Johnathon T. Fuzzibutt, Adventure Cat devotes himself to a project; to teach his daddy to be more patient and keep the comforter edge lifted up and not rush Mr. Johnathon T. Fuzibutt, Adventure Cat into making a decision as to if he will or not . . . or will . . . . or not . . . . jump
Everyday, Mr. Johnathon T. Fuzzibutt, Adventure Cat devotes himself to a project; to teach his daddy to be more patient and keep the comforter edge lifted up and not rush Mr. Johnathon T. Fuzibutt, Adventure Cat into making a decision as to if he will or not . . . or will . . . . or not . . . . jump
CrazyCatWom
in
My MSAA Community
4 years ago
Dry eyes and humidifiers
Hi Everyone I've had long standing dry eyes for many, many years (pre diagnosis of my Lupus and Relapsing Polychondritis) but in this past year the dryness has been especially awful. Alongside that I recently had a haemoraged blood vessel in one of my eyes which thankfully healed of its own accord. I've
Hi Everyone I've had long standing dry eyes for many, many years (pre diagnosis of my Lupus and Relapsing Polychondritis) but in this past year the dryness has been especially awful. Alongside that I recently had a haemoraged blood vessel in one of my eyes which thankfully healed of its own accord. I've
BookishVibes
in
LUPUS UK
4 years ago
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EMDR
Has anyone done EMDR? I am starting in 40 minutes and I am very nervous.
Has anyone done EMDR? I am starting in 40 minutes and I am very nervous.
Theloudone
in
Anxiety and Depression Support
4 years ago
Temperature 32.1
Today I had a forehead temperature check taken before entering a premises. They faffed about for a while and then said “that’s low”. It was 32.1. I got them to check theirs and their result was 36.5 so not a problem with the thermometer. Any thoughts? I’ve recently been diagnosed with primary hyperparathyroidism
Today I had a forehead temperature check taken before entering a premises. They faffed about for a while and then said “that’s low”. It was 32.1. I got them to check theirs and their result was 36.5 so not a problem with the thermometer. Any thoughts? I’ve recently been diagnosed with primary hyperparathyroidism
lolajone
in
Thyroid UK
4 years ago
A few more questions from a new member
Firstly, I just wanted to say thank you for all of the replies to my first post, I have found this group to be unbelievably helpful and definitely felt a little better after reading your responses. As this is still new for me, I do have a few more questions if that’s OK. I reduced my dosage as per
Firstly, I just wanted to say thank you for all of the replies to my first post, I have found this group to be unbelievably helpful and definitely felt a little better after reading your responses. As this is still new for me, I do have a few more questions if that’s OK. I reduced my dosage as per
Sophiestree
in
PMRGCAuk
4 years ago
Head/neck injury then PD.
First of all, I am just a newly dx (2 years) guy trying to live the best life possible. It’s fairly common to have a head or neck injury shortly before being DX with PD. Looking back, my symptoms started shortly after a head injury that damaged my neck. I was begged by a friend of mine to see this guy
First of all, I am just a newly dx (2 years) guy trying to live the best life possible. It’s fairly common to have a head or neck injury shortly before being DX with PD. Looking back, my symptoms started shortly after a head injury that damaged my neck. I was begged by a friend of mine to see this guy
38yroldmale
in
Cure Parkinson's
4 years ago
Cataract Surgery.
Please can anyone give me reassurance about Cataract Surgery very very anxious, I have AF and take Warfarin. Will I be given sedation during the procedure to help my anxiety reviews please. Gladie!
Please can anyone give me reassurance about Cataract Surgery very very anxious, I have AF and take Warfarin. Will I be given sedation during the procedure to help my anxiety reviews please. Gladie!
Gladaven
in
AF Association
4 years ago
Dry MD, Leaking Membrane & cataracts. How do you communicate with an eye doctor that fobs you off
Had an MD appt at eye hospital. I had had two cancelled MD appts and was very anxious as my vision has deteriorated after two bouts of flashes since my last appt in January. Sorry but I am venting here, but hoping this will give me some relief. Dr: you have MD, I haven’t had time to look at your file
Had an MD appt at eye hospital. I had had two cancelled MD appts and was very anxious as my vision has deteriorated after two bouts of flashes since my last appt in January. Sorry but I am venting here, but hoping this will give me some relief. Dr: you have MD, I haven’t had time to look at your file
Hidden
in
Macular Society
4 years ago
Saw my optician on Thursday and been told I've got Sjorgen's
I've had eye problems for the past 9 years, sore, very dry all the time, and more recently extremely light sensitive. I've been on so many different combinations of drops and gels, I'm currently on Hylo, Viscotears and Evolve. I had the plug implants about years ago which really helped, but one fell
I've had eye problems for the past 9 years, sore, very dry all the time, and more recently extremely light sensitive. I've been on so many different combinations of drops and gels, I'm currently on Hylo, Viscotears and Evolve. I had the plug implants about years ago which really helped, but one fell
Kimi9
in
The Australian Sjögren's Syndrome Association
4 years ago
Can I introduce myself - part 1
I'm Jenny Mary, 58 yrs young, born with glaucoma, diagnosed when I was a teenager, 4th generation in the family, line is great grandmother, grandmother, mum, myself. Mum lived all her 88yrs with one eye. I've had more problems since December 2015 when I had successful cataract surgery than the previous
I'm Jenny Mary, 58 yrs young, born with glaucoma, diagnosed when I was a teenager, 4th generation in the family, line is great grandmother, grandmother, mum, myself. Mum lived all her 88yrs with one eye. I've had more problems since December 2015 when I had successful cataract surgery than the previous
Jennymary
in
Glaucoma UK
4 years ago
Dimming of vision
Has anyone found that the eylea injection for cnv helps or increases the perception of light. What I have found is a slight improvement in how distorted objects appear but there seems to be a dimming of vision. I notice the presence of more floaters in my good eye and although my sight seems to remain
Has anyone found that the eylea injection for cnv helps or increases the perception of light. What I have found is a slight improvement in how distorted objects appear but there seems to be a dimming of vision. I notice the presence of more floaters in my good eye and although my sight seems to remain
PHILhr
in
Macular Society
4 years ago
World Kindness Day
Nov 13 is world kindness day. It’s important to be kind to others but if you have PA remember to also be kind to yourself. I’m a few days off getting my injection. I know I need it because I have brain fog, pins and needles and I am clumsy, I am breathing like Darth Vader, and have already called
Nov 13 is world kindness day. It’s important to be kind to others but if you have PA remember to also be kind to yourself. I’m a few days off getting my injection. I know I need it because I have brain fog, pins and needles and I am clumsy, I am breathing like Darth Vader, and have already called
LadyBothwell
in
Pernicious Anaemia Society
4 years ago
Has anyone had a cataract op while in PAF?
A month or so ago I had a pre op appointment for my cataracts (been waiting a year 😢). I was very excited until I was told that yes, sight very poor, both eyes needed to be done but long wait. How long? 18 months 😱 I was so stunned I forgot to ask when the countdown started....anyway a few days ago
A month or so ago I had a pre op appointment for my cataracts (been waiting a year 😢). I was very excited until I was told that yes, sight very poor, both eyes needed to be done but long wait. How long? 18 months 😱 I was so stunned I forgot to ask when the countdown started....anyway a few days ago
Buffafly
in
AF Association
4 years ago
Living with CSR
Hi I’ve now had this condition for about 16 years. I’m now 64. First noted sight problem when night driving. Left eye normal but right eye not as sharp. After diagnosis I soon lost central vision in right eye and then had symptoms in left eye. Had regular checks at QMC Nottingham. Got funding for PDT
Hi I’ve now had this condition for about 16 years. I’m now 64. First noted sight problem when night driving. Left eye normal but right eye not as sharp. After diagnosis I soon lost central vision in right eye and then had symptoms in left eye. Had regular checks at QMC Nottingham. Got funding for PDT
Lagrene
in
Macular Society
4 years ago
Minor Eye Conditions Service (MECS)
This is a service paid for by the NHS and operated through local opticians. You can apply directly to a participating optician as well as via your GP. As far as I know, it's available throughout the UK. I had a MECS appointment on Friday. About a year ago I went to my GP about problems with my left eye
This is a service paid for by the NHS and operated through local opticians. You can apply directly to a participating optician as well as via your GP. As far as I know, it's available throughout the UK. I had a MECS appointment on Friday. About a year ago I went to my GP about problems with my left eye
Marijo1951
in
PMRGCAuk
4 years ago
Post sinus op - 4wks
Its now 4wks since I had my sinus op and septoplasty . Up until last week I was doing ok but I’ve been having headaches every single day and now I’ve got the same green rubbish back up my nose , nasty smell , my cough is back , and I feel naff - luckily I have my follow up appointment in 2 days and
Its now 4wks since I had my sinus op and septoplasty . Up until last week I was doing ok but I’ve been having headaches every single day and now I’ve got the same green rubbish back up my nose , nasty smell , my cough is back , and I feel naff - luckily I have my follow up appointment in 2 days and
lesley53
in
Lung Conditions Community Forum
4 years ago
Dry Mouth, Gum Disease, Chapped Lips, Dry Eyes, Dry Skin, Eye Floaters And Some Possible Help From A Single Spray!
With winter just around the corner, this information may be most useful and timely! With winter weather comes heater use which can have very drying effects on skin, eyes and your mouth and the information below may be a useful way to deal with these issues! I put the following post up about 2 to 3 years
With winter just around the corner, this information may be most useful and timely! With winter weather comes heater use which can have very drying effects on skin, eyes and your mouth and the information below may be a useful way to deal with these issues! I put the following post up about 2 to 3 years
chartist
in
Cure Parkinson's
4 years ago
Heebie Jeebies
Two lives , one daytime , an entirely different one at night. The darkness comes, your body is doing strange uncontrollable things and you start down Alices rabbit hole.........its nighttime..........you know when you fall asleep if you can call it sleep, that you will descend into the world of PD..
Two lives , one daytime , an entirely different one at night. The darkness comes, your body is doing strange uncontrollable things and you start down Alices rabbit hole.........its nighttime..........you know when you fall asleep if you can call it sleep, that you will descend into the world of PD..
beehive23
in
Cure Parkinson's
4 years ago
Hyco San Extra for dry eyes
I have been advised to use Hyco San Extra for dry eyes, has anyone else used this and did it work? Does anyone know if dry eyes, blepharitis, or aura without migraine could be the result of RD or side effects of prednisolone? Thanks.
I have been advised to use Hyco San Extra for dry eyes, has anyone else used this and did it work? Does anyone know if dry eyes, blepharitis, or aura without migraine could be the result of RD or side effects of prednisolone? Thanks.
Rachmaninov2
in
NRAS
4 years ago
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