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Modified radical mastectomy
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I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
What are your thoughts on Medical Cannabis and Low Dose Naltrexone (LDN)?
What are your thoughts on Medical Cannabis and Low Dose Naltrexone (LDN)? Answered by Sebastian Denison, RPh https://youtu.be/QdqbC_vQDok
What are your thoughts on Medical Cannabis and Low Dose Naltrexone (LDN)? Answered by Sebastian Denison, RPh https://youtu.be/QdqbC_vQDok
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Newbie
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
sissjg
in
SHARE Breast Cancer Support
1 year ago
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Must manage your own healthcare
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
B17865
in
SHARE Metastatic Breast Cancer
1 year ago
Dexa Scan
Just looking for a bit of advice. I have been on Pred since Oct 21 and have tapered down to 5mg. One of the reasons I have not tried to reduce further is because I was diagnosed with Breast Cancer in Dec 21 and was having treatment in 2022 & 2023. Now all this is completed and I am on Anastrozol for
Just looking for a bit of advice. I have been on Pred since Oct 21 and have tapered down to 5mg. One of the reasons I have not tried to reduce further is because I was diagnosed with Breast Cancer in Dec 21 and was having treatment in 2022 & 2023. Now all this is completed and I am on Anastrozol for
Booklover21
in
PMRGCAuk
7 months ago
Implant brand preferences?
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Firstglantz
in
Prostate Cancer And Gay Men
10 months ago
Still Looking for Suggestions
So my post kind of got highjacked into multiple directions. LOL! So I started and new one. My concern is still how to withdrawl from Ropinarole without losing my mind during the DAY. I have something for nighttime but the US is so paranoid from the abuse of opioids that only a miracle would help me
So my post kind of got highjacked into multiple directions. LOL! So I started and new one. My concern is still how to withdrawl from Ropinarole without losing my mind during the DAY. I have something for nighttime but the US is so paranoid from the abuse of opioids that only a miracle would help me
DogsCatsFamily
in
Restless Legs Syndrome
5 months ago
Off topic
Good morning lovely people. It will be four weeks on Monday since my radical cystectomy. I was back home after five days! unfortunately back in hospital 4 days later as an emergency. Back home a week later and all is well. I have fully accepted and adapted to my new life and am working slowly at
Good morning lovely people. It will be four weeks on Monday since my radical cystectomy. I was back home after five days! unfortunately back in hospital 4 days later as an emergency. Back home a week later and all is well. I have fully accepted and adapted to my new life and am working slowly at
stbernhard
in
NRAS
10 months ago
Why does my rheumatologist want me to go onto Methotrexate when I am on a low does of Prednisolone and am getting good symptom relief?
I am now down to 2mg of Prednisolone a day. From a few weeks in my rheumatologist has wanted me to go onto Methotrexate. I have never achieved total symptom relief and recently I've probably been slightly stiffer than before, certainly in the mornings. My last blood tests showed that my CRP had gone
I am now down to 2mg of Prednisolone a day. From a few weeks in my rheumatologist has wanted me to go onto Methotrexate. I have never achieved total symptom relief and recently I've probably been slightly stiffer than before, certainly in the mornings. My last blood tests showed that my CRP had gone
Siena62
in
PMRGCAuk
7 months ago
Kazza
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Karenborg
in
SHARE Metastatic Breast Cancer
1 year ago
Test results
Hi I've just had a range of bloods done by my Gp as I'm feeling so tired and keep falling a sleep during the day. They all look OK apart from low end for calcium and my ggt liver one. Which could be because of antibiotics I'm permanently on for my cuti or my gallbladder which I'm waiting to be removed
Hi I've just had a range of bloods done by my Gp as I'm feeling so tired and keep falling a sleep during the day. They all look OK apart from low end for calcium and my ggt liver one. Which could be because of antibiotics I'm permanently on for my cuti or my gallbladder which I'm waiting to be removed
France92
in
Thyroid UK
10 months ago
Coming off Pramipexole
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
GreyMaus
in
Restless Legs Syndrome
1 year ago
buckem
I was wondering if anyone has tried medical marijuana to get some relief from RLS and if there was any success? I have tried everything else and am running out of options!
I was wondering if anyone has tried medical marijuana to get some relief from RLS and if there was any success? I have tried everything else and am running out of options!
Buckem
in
Restless Legs Syndrome
6 months ago
Managing post surgery expectations
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
Shopnot
in
Prostate Cancer Network
10 months ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
10 months ago
RLS / PLMD
Hello everyone, I was recently diagnosed with RLS and have had a good response to Gabapentin. The side effects are not severe, but I have read somewhere that Pregabalin does the same job as Gabapentin but with a much smaller dose and even fewer side effects. Has anyone had experience taking Pregabalin
Hello everyone, I was recently diagnosed with RLS and have had a good response to Gabapentin. The side effects are not severe, but I have read somewhere that Pregabalin does the same job as Gabapentin but with a much smaller dose and even fewer side effects. Has anyone had experience taking Pregabalin
RestlessNinja
in
Restless Legs Syndrome
6 months ago
Osteoporosis
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
Urtica
in
PMRGCAuk
5 months ago
Newly Diagnosed
Hi, I'm new on here . I received a diagnosis of Osteoporosis from results of Dexa scan last week and was surprised Lumbar T Score -2.2 .Femoral Neck T Score -2.8 moderate to left hip moderate to sever osteoarthritis . I have been on steroids since March 2024 for (PMR) and tapering, currently at 10mg
Hi, I'm new on here . I received a diagnosis of Osteoporosis from results of Dexa scan last week and was surprised Lumbar T Score -2.2 .Femoral Neck T Score -2.8 moderate to left hip moderate to sever osteoarthritis . I have been on steroids since March 2024 for (PMR) and tapering, currently at 10mg
FiddleFern
in
Osteoporosis Support
21 days ago
Bit of a Laugh for Today
Firstly let me tell those who don't already know, that Radiographers are NOT permitted to talk to you about anything they may or may not see on a Scan. They are qualified to take Pictures, nothing else. The Images are sent to the Consultant Radiologist who reports on the Scans to your Consultant. One
Firstly let me tell those who don't already know, that Radiographers are NOT permitted to talk to you about anything they may or may not see on a Scan. They are qualified to take Pictures, nothing else. The Images are sent to the Consultant Radiologist who reports on the Scans to your Consultant. One
maddie_1234
in
Pelvic Radiation Disease Association
10 months ago
Multivitamins/Prednisolone/Vegetarian?
Hello, Short background. Diagnosed with PMR 2020, on Pred since December 2020, usual ups and downs/flares whilst learning about living with it and getting advice from here for the last few years. Medication. I take Lansoprazole 30mg about 30-60 mins before breakfast every morning. After breakfast
Hello, Short background. Diagnosed with PMR 2020, on Pred since December 2020, usual ups and downs/flares whilst learning about living with it and getting advice from here for the last few years. Medication. I take Lansoprazole 30mg about 30-60 mins before breakfast every morning. After breakfast
PMArrrrgh
in
PMRGCAuk
1 month ago
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