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Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
8 months ago
Hurray, iron panel worked at last! In last 3 wks ferritin been 85, 110,now 59, could anyone possibly please advise if ok to take iron?
HiSo pleased to have an iron panel work after so many attempts last yr, worked 2nd attempt:) Just to recap please, had another b12 loading dose end March. Ferritin 48, then dropped 37 mid June (nhs) End July(pinprick thyroid test)=85 1wk ltr(iron panel)=110 1wk ltr(I.p.retest)=59.9 Crp consistently
HiSo pleased to have an iron panel work after so many attempts last yr, worked 2nd attempt:) Just to recap please, had another b12 loading dose end March. Ferritin 48, then dropped 37 mid June (nhs) End July(pinprick thyroid test)=85 1wk ltr(iron panel)=110 1wk ltr(I.p.retest)=59.9 Crp consistently
Jo5454
in
Thyroid UK
1 month ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
8 months ago
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PSA rising 10 weeks after Orgovyx Holiday
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
ac61418
in
Advanced Prostate Cancer
8 months ago
GGT Marker
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
Gaspereaux
in
British Liver Trust
3 months ago
Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
8 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
8 months ago
Constipation relief for me
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
ewebhook
in
Cure Parkinson's
8 months ago
Therio
https://therio.me/ [i] I don't know anything about the company. I met Micah seven years ago at a medical conference. He was selling Ozone generators. I ended up buying one and have been using it ever since. It's all about home-testing various conditions from Parkinson's to cancer to Alzheimer's
https://therio.me/ [i] I don't know anything about the company. I met Micah seven years ago at a medical conference. He was selling Ozone generators. I ended up buying one and have been using it ever since. It's all about home-testing various conditions from Parkinson's to cancer to Alzheimer's
kaypeeoh
in
Cure Parkinson's
8 months ago
Trimethoprim - ET
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
Jelbea
in
MPN Voice
8 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
6 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
8 months ago
wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
8 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
6 months ago
Article states b2 deficiency the cause of functional b12 deficiency
what do you all think about this article which states serum b12 can be falsely elevated if there is a b2 deficiency which causes inactive cobalomine to result in elevated serum b12 https://www.iomcworld.org/articles/paradoxical-vitamin-b12-deficiency-normal-to-elevated-serum-b12-with-metabolic-vitamin-b12
what do you all think about this article which states serum b12 can be falsely elevated if there is a b2 deficiency which causes inactive cobalomine to result in elevated serum b12 https://www.iomcworld.org/articles/paradoxical-vitamin-b12-deficiency-normal-to-elevated-serum-b12-with-metabolic-vitamin-b12
B12life
in
Pernicious Anaemia Society
1 month ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
Dexter786
in
British Liver Trust
8 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
6 months ago
Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
8 months ago
Apixaban and iron
I am taking Apixaban 5mg bd and iron bisglycinate 60mg. Is the iron reducing the effectiveness of the Apixaban and vice versa? If so, what is the solution to raising the ferritin levels?
I am taking Apixaban 5mg bd and iron bisglycinate 60mg. Is the iron reducing the effectiveness of the Apixaban and vice versa? If so, what is the solution to raising the ferritin levels?
Dires
in
Restless Legs Syndrome
1 month ago
Was thinking of Dr. Chandy yesterday, God bless him for having such courage
Long story but I have had a couple of head MRIs due to lesions that are perpendicular in nature. To check if they have increased. I had access to my own scans so I knew that they were checking for MS. As I could read the medical terminology. But my GP (newish to me) never told me. I don't know why, it
Long story but I have had a couple of head MRIs due to lesions that are perpendicular in nature. To check if they have increased. I had access to my own scans so I knew that they were checking for MS. As I could read the medical terminology. But my GP (newish to me) never told me. I don't know why, it
Litatamon
in
Pernicious Anaemia Society
1 month ago
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