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Mitral valve disease
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Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
8 months ago
Was thinking of Dr. Chandy yesterday, God bless him for having such courage
Long story but I have had a couple of head MRIs due to lesions that are perpendicular in nature. To check if they have increased. I had access to my own scans so I knew that they were checking for MS. As I could read the medical terminology. But my GP (newish to me) never told me. I don't know why, it
Long story but I have had a couple of head MRIs due to lesions that are perpendicular in nature. To check if they have increased. I had access to my own scans so I knew that they were checking for MS. As I could read the medical terminology. But my GP (newish to me) never told me. I don't know why, it
Litatamon
in
Pernicious Anaemia Society
1 month ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
5 months ago
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testing hit folate and vitamin b12
My hospital lab started to give me results for folate and b12 combined. Is it standard ? Any suggestions would be very welcome.
My hospital lab started to give me results for folate and b12 combined. Is it standard ? Any suggestions would be very welcome.
Britpol
in
Thyroid UK
2 months ago
Low Iron
Hi guys! Like suggested lve done my full Iron panel! Could you please recommend the best dietary iron sources, except for liver pâté, which I'm already aware of? Also, if I'm unable to eat enough iron daily, are there any highly absorbable iron supplements you could recommend? I've been taking Spatone
Hi guys! Like suggested lve done my full Iron panel! Could you please recommend the best dietary iron sources, except for liver pâté, which I'm already aware of? Also, if I'm unable to eat enough iron daily, are there any highly absorbable iron supplements you could recommend? I've been taking Spatone
Faith442024
in
Thyroid UK
2 months ago
medication after open heart surgery
is there anyone on this site who has had a heart valve replacement and is now using biologic meds to control their ra? If so, I’d love to hear your experience. I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to leflunomide). I’ve had an Inspiris
is there anyone on this site who has had a heart valve replacement and is now using biologic meds to control their ra? If so, I’d love to hear your experience. I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to leflunomide). I’ve had an Inspiris
Emye343
in
NRAS
11 months ago
To poop or not to poop, that is the question
I am about to embark on taking a phosphorous binder. I will be taking Sevelamer or Renvela at 800mg, one tablet with meals. I only eat two meals a day. WHAT can I do to prevent constipation. I already have an issue with it because of Ozempic and being on dialysis. I had to stop eating oatmeal every day
I am about to embark on taking a phosphorous binder. I will be taking Sevelamer or Renvela at 800mg, one tablet with meals. I only eat two meals a day. WHAT can I do to prevent constipation. I already have an issue with it because of Ozempic and being on dialysis. I had to stop eating oatmeal every day
Bassetmommer
in
Kidney Dialysis
8 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
6 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
8 months ago
Testosterone and adrenal glands
Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to rise. Nov 5th PSA 5.15. Dec 6th PSA 7.85. Jan 11 PSA 16.23 I have had CT and bone scan early October and another set of scans early January
Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to rise. Nov 5th PSA 5.15. Dec 6th PSA 7.85. Jan 11 PSA 16.23 I have had CT and bone scan early October and another set of scans early January
Eugmn
in
Advanced Prostate Cancer
8 months ago
Mirtazapine
I am taking Mirtazapine for anxiety and it has reduced my tremor quite a bit has anyone else found this?
I am taking Mirtazapine for anxiety and it has reduced my tremor quite a bit has anyone else found this?
percalona
in
Cure Parkinson's
8 months ago
Traclamus levels are high
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
Shaunwood
in
British Liver Trust
8 months ago
Barry
Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) , wondering how long i can go on like this before cancer comes back to bones and what will be my options then, can you survive for many years on just
Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) , wondering how long i can go on like this before cancer comes back to bones and what will be my options then, can you survive for many years on just
littlemount
in
Advanced Prostate Cancer
8 months ago
Vitamin B12 - Missing piece?
Hello Everyone, I hope you're all enjoying the sunshine! I've recently started taking Vitamin B12 supplements (specifically, https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin ) on weekends before bedtime, and I've noticed some positive effects. The following day
Hello Everyone, I hope you're all enjoying the sunshine! I've recently started taking Vitamin B12 supplements (specifically, https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin ) on weekends before bedtime, and I've noticed some positive effects. The following day
BookLover2020
in
Thyroid UK
2 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
8 months ago
14 months post Successful Ablation & increasing Arrythmias.
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
kkatz
in
Atrial Fibrillation Support
5 months ago
A return of the dreaded mongrel .......... ????? Part 2
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
BenHall1
in
Atrial Fibrillation Support
5 months ago
A quick update for those that remember my recent posts about the Ablation complications!
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
AmandaLouise77
in
Atrial Fibrillation Support
5 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
She-66
in
British Liver Trust
8 months ago
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