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Mezolar Matrix transdermal patches
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Alice-Ann
Hi! I am 80 yrs. old widow living in Dallas, Texas, that has never acted her age. I Got my CMT from my Mother that presented itself when I was about 70. I take Gabapentin and Cymbalta for leg neuropathy. Have 2 new knees. Take Lazics twice daily for foot and leg swelling. Wear tying shoes as have
Hi! I am 80 yrs. old widow living in Dallas, Texas, that has never acted her age. I Got my CMT from my Mother that presented itself when I was about 70. I take Gabapentin and Cymbalta for leg neuropathy. Have 2 new knees. Take Lazics twice daily for foot and leg swelling. Wear tying shoes as have
Alice-Ann
in
Charcot-Marie-Tooth UK
6 years ago
SCT and living with constant pain.
I have suffered with chronic pain for as long as I can remember maybe 5 or 6, my little crisis always begin with mid/lower back and leg pain from my bones. My legs, my back, my stomach ( my stomach daily but especially if I forget to eat), usually much worse when I would exercise or when I'm pregnant
I have suffered with chronic pain for as long as I can remember maybe 5 or 6, my little crisis always begin with mid/lower back and leg pain from my bones. My legs, my back, my stomach ( my stomach daily but especially if I forget to eat), usually much worse when I would exercise or when I'm pregnant
PreachersWife1980
in
Living with Sickle Cell Disease
6 years ago
Flank pain bilateral
Hi everyone! Last week I was hosptialized for pneumonia, was given antibiotics and predinosne 50 mg everyday for 5 days. I was discharged home and felt so much better, but about 2 days after discharge (about 6 days ago) I woke up with very severe bilateral lower back and flank pain. My urine looks
Hi everyone! Last week I was hosptialized for pneumonia, was given antibiotics and predinosne 50 mg everyday for 5 days. I was discharged home and felt so much better, but about 2 days after discharge (about 6 days ago) I woke up with very severe bilateral lower back and flank pain. My urine looks
chrissymeg
in
Behçet's UK
6 years ago
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Bleeding + pain on evra contraceptive patch
Hey girls, I've been on the evra patch for around 10 months to control my pain for endometriosis. I was told by my gynecologist to take a break after 3 months which i had been. I am not due to take a break until april and i have been in so much pain and I've been bleeding. This is exactly what im like
Hey girls, I've been on the evra patch for around 10 months to control my pain for endometriosis. I was told by my gynecologist to take a break after 3 months which i had been. I am not due to take a break until april and i have been in so much pain and I've been bleeding. This is exactly what im like
Jaas1
in
Endometriosis UK
6 years ago
Pain Meds vs Kidneys
I'm pretty new to Kidney Desease and a Diabetic, but I've just been wondering what over-the-counter pain med (like aspirin, ibuprofen, nsaids such as Advil, Aleve, Motrin, Ecotrin, etc. ) is the LEAST harmful to my Kidneys, if any.
I'm pretty new to Kidney Desease and a Diabetic, but I've just been wondering what over-the-counter pain med (like aspirin, ibuprofen, nsaids such as Advil, Aleve, Motrin, Ecotrin, etc. ) is the LEAST harmful to my Kidneys, if any.
bhins0086
in
Kidney Disease
6 years ago
Blurred periphial vision with CMT....?
Hiya, I have CMT, Type 1a as well as my 3 children, my sister and my dad. Question: have any of you ever experienced periods of blurred vision in your periphial areas with both eyes? I have had 3 bouts of this periphial blurriness lasting approximately 15 minutes, then back to normal vision. I saw an
Hiya, I have CMT, Type 1a as well as my 3 children, my sister and my dad. Question: have any of you ever experienced periods of blurred vision in your periphial areas with both eyes? I have had 3 bouts of this periphial blurriness lasting approximately 15 minutes, then back to normal vision. I saw an
Cindyyb
in
Charcot-Marie-Tooth UK
6 years ago
New to CMT
After two years bouncing from 1doctor/specialist my primary care doctor sent me to the University of Florida. There a wonderful neurologist quickly diagnosed me with CMT. That was my beginning of knowing what I was dealing with. I have been bed-ridden for over 2 years using a walker or wheel chair. A
After two years bouncing from 1doctor/specialist my primary care doctor sent me to the University of Florida. There a wonderful neurologist quickly diagnosed me with CMT. That was my beginning of knowing what I was dealing with. I have been bed-ridden for over 2 years using a walker or wheel chair. A
beachwine
in
Charcot-Marie-Tooth UK
6 years ago
First time ever experiencing anxiety while quitting smoking...
Hi I just quit smoking 2 weeks ago & have been having bad anxiety attacks at night, during the day I feel fine, but as soon as I start to doze off I awake with a flushing sensation, racing heart (anxiety?). At first I thought it was from nicotine patches, tried sleeping without but kept happening. A
Hi I just quit smoking 2 weeks ago & have been having bad anxiety attacks at night, during the day I feel fine, but as soon as I start to doze off I awake with a flushing sensation, racing heart (anxiety?). At first I thought it was from nicotine patches, tried sleeping without but kept happening. A
Krbrartist
in
Anxiety Support
7 years ago
Is it ok to take motrin
My GI & PCP Dr's said to take Tylenol when needed but went to urgent care and was prescribed 800mg of Motrin 3 x's a day as needed for joint pain. Dr there said Tylenol is the worst for our liver and maybe the reason for stomach pain flair up. Any opinions? Husband called GI nurse, she said to go to
My GI & PCP Dr's said to take Tylenol when needed but went to urgent care and was prescribed 800mg of Motrin 3 x's a day as needed for joint pain. Dr there said Tylenol is the worst for our liver and maybe the reason for stomach pain flair up. Any opinions? Husband called GI nurse, she said to go to
Yankeerose3
in
PBC Foundation
7 years ago
Greetings
Hi Parents, I just joined the forum today. I have a 12 year old daughter recently diagnosed with ADD. She was diagnosed late because things did not become completely unmanageable for her until she hit middle school and was responsible for juggling a complex daily schedule. She saw an OT for sensory
Hi Parents, I just joined the forum today. I have a 12 year old daughter recently diagnosed with ADD. She was diagnosed late because things did not become completely unmanageable for her until she hit middle school and was responsible for juggling a complex daily schedule. She saw an OT for sensory
LL_Mom
in
CHADD's ADHD Parents Together
7 years ago
Confused
Hi all , I'm completely confused I was diagnosed with Cmt last year . I am 57 years old and spent so many years being told I was clumsy and falling over, I was sent to an array of different doctors to the point I was beginning to think the symptoms I had was in my head, anyway to cut a long story short
Hi all , I'm completely confused I was diagnosed with Cmt last year . I am 57 years old and spent so many years being told I was clumsy and falling over, I was sent to an array of different doctors to the point I was beginning to think the symptoms I had was in my head, anyway to cut a long story short
Pixieboothman
in
Charcot-Marie-Tooth UK
6 years ago
my history, and hospital update
a little history about me... Im 25 years old, very very active guy, worked out 5 -6 days a week, 2 hours a day, hardcore weightlifting as in squatting 400 pounds, benching 350 and deadlifitng 415..and cardio and sauna sessions, diet would be clean during the week and a lil dirty on the weekend as
a little history about me... Im 25 years old, very very active guy, worked out 5 -6 days a week, 2 hours a day, hardcore weightlifting as in squatting 400 pounds, benching 350 and deadlifitng 415..and cardio and sauna sessions, diet would be clean during the week and a lil dirty on the weekend as
Ahuesca
in
Anxiety Support
7 years ago
Husband suffering from SEVERE headaches one week after diagnosis of Meningitus
My husband was hospitalized a week ago for Meningitis and treated for Bacterial since his white cell type leaned more towards that. He had 2 Lumbar Punctures and they determined meningitis. No doctor in the hospital could tell us anything about the disease or what the next step is. We were discharged
My husband was hospitalized a week ago for Meningitis and treated for Bacterial since his white cell type leaned more towards that. He had 2 Lumbar Punctures and they determined meningitis. No doctor in the hospital could tell us anything about the disease or what the next step is. We were discharged
ashleyryan8
in
Meningitis Now
7 years ago
To stay on hormone control for life or take my 3 month break?
Hi Ladies, I hope that you are all well! Quick question. I have had endometriosis for around 2 years and had a lap last year to remove it. I went to see my gynecologist yesterday about certain things...cut a long story short, I have been on the evra patch for around 5 months now and every
Hi Ladies, I hope that you are all well! Quick question. I have had endometriosis for around 2 years and had a lap last year to remove it. I went to see my gynecologist yesterday about certain things...cut a long story short, I have been on the evra patch for around 5 months now and every
Jaas1
in
Endometriosis UK
7 years ago
Withdrawal bleeding..help/advice
Hi Ladies, I hope that you are all well! Quick question. I went to see my gynecologist yesterday about certain things...cut a long story short, I have been on the evra patch for around 5 months now and every 3 months I was told to take a 1 week break then carry on for another 3 months but because I
Hi Ladies, I hope that you are all well! Quick question. I went to see my gynecologist yesterday about certain things...cut a long story short, I have been on the evra patch for around 5 months now and every 3 months I was told to take a 1 week break then carry on for another 3 months but because I
Jaas1
in
Endometriosis UK
7 years ago
withdrawal bleeding question
Hi Ladies, I hope that you are all well! Quick question. I went to see my gynecologist yesterday about certain things...cut a long story short, I have been on the evra patch for around 5 months now and every 3 months I was told to take a 1 week break then carry on for another 3 months but because I was
Hi Ladies, I hope that you are all well! Quick question. I went to see my gynecologist yesterday about certain things...cut a long story short, I have been on the evra patch for around 5 months now and every 3 months I was told to take a 1 week break then carry on for another 3 months but because I was
Jaas1
in
Endometriosis UK
7 years ago
Peripheral Neuropathy pain
I was diagnosed 1991 with CMT type 1(a) I am 67 now and had my knees replaced , my toes staightened etc etc. I get periferal neuropathy pains on just one toe. It last for 3_4 days and by using the T.E.N.S machine it allows me to get some sleep. Is there anything out there that would be helpful ? I walk
I was diagnosed 1991 with CMT type 1(a) I am 67 now and had my knees replaced , my toes staightened etc etc. I get periferal neuropathy pains on just one toe. It last for 3_4 days and by using the T.E.N.S machine it allows me to get some sleep. Is there anything out there that would be helpful ? I walk
Tandarts
in
Charcot-Marie-Tooth UK
7 years ago
Not known i had CMT for many years
I think i must have had cmt since childhood i was always wobbly walking in my teens i sure people use to think i was drunk, friends remark chucks been drinking. I use to say to my Doctor but nothing ever happened. About 4 yrs ago i went to a Doctor not for the cmt walked into the surgery & she remarked
I think i must have had cmt since childhood i was always wobbly walking in my teens i sure people use to think i was drunk, friends remark chucks been drinking. I use to say to my Doctor but nothing ever happened. About 4 yrs ago i went to a Doctor not for the cmt walked into the surgery & she remarked
chuckles333
in
Charcot-Marie-Tooth UK
7 years ago
Just fed up and down
Hi girlies, sorry I've never done this before but i just have to let some things off my chest and i feel here is the best place. I have been diagnosed with endo around 2 years ago and had 1 lap to remove it. I'm currently on the evra patch because i kept getting side effects from other pills. I am going
Hi girlies, sorry I've never done this before but i just have to let some things off my chest and i feel here is the best place. I have been diagnosed with endo around 2 years ago and had 1 lap to remove it. I'm currently on the evra patch because i kept getting side effects from other pills. I am going
Jaas1
in
Endometriosis UK
7 years ago
CMD
Hello all I suspect I may have CMT? I'm waiting for a neurology test, its taken from March to get this far but the test is still late January. I have felt from May last year my muscles are wasting away? I built a log cabin garage in 2016 on my own but now find it difficult to lift things much lighter
Hello all I suspect I may have CMT? I'm waiting for a neurology test, its taken from March to get this far but the test is still late January. I have felt from May last year my muscles are wasting away? I built a log cabin garage in 2016 on my own but now find it difficult to lift things much lighter
djl45
in
Charcot-Marie-Tooth UK
7 years ago
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