My GI & PCP Dr's said to take Tylenol when needed but went to urgent care and was prescribed 800mg of Motrin 3 x's a day as needed for joint pain. Dr there said Tylenol is the worst for our liver and maybe the reason for stomach pain flair up. Any opinions? Husband called GI nurse, she said to go to urgent care and get blood work done when they have their own lab. Seems like they don't want to be bothered and asked why don't I go to my PCP before. She said I'm under his care for my liver he should see me. He didn't release me but she doesn't mind seeing me, just don't understand why he doesn't. He IS the specialist
Is it ok to take motrin: My GI & PCP Dr's... - PBC Foundation
Is it ok to take motrin
Motrin is the brand name for inbuprofen. I injured my wrist & it was hurting so much I was going to cry. I needed pain meds!!!
I got in contact with my hepatologist & he said ibuprofen was okay to take every now & then. He was so nice. Had his nurse call me the next day to check on me.
Also sent me a note to keep him posted. I wrote back to him about my orthopedist appointment & he told me to space out taking the ibuprofen and the urso.
I even dropped my PCP (who is also a GI) a note to let him know what was going on. He wrote me back within a few hours & told me, he was sorry that I was suffering & hoped that I would get well soon. He ended the note to let him know if there was anything he can do for me.
My point is that there are truly compassionate doctors out there. You need to find someone who will assume care for you & not just tell you to go to urgent care.
Sorry you are experiencing this & you might want to find another doctor.
Thank you. I need to find one in my area
which country are you in that you get such good medical follow up?Judith
NYC in US, but I don't think this is typical unless you pay for concierge medical services. My PCP has known me for quite a number of years & mostly all my other doctors are recommendations from him.
I thought you couldnt take tylenol with pbc
It's OK to take Advil, Motrin or Aleve occasionally. If you need to take a medication for joint pain for a longer period of time, it is suggested to take Celebrex. Also, instead of oral medicine, you can use topical gel VOLTAREN (1% diclofenac sodium), generic 1% or 3% diclofenac sodium. There is a liquid pump called Pennsaid, which is very effective (2% diclofenac sodium), however, unless you have a special manufacturer's coupon Pennsaid is very expensive. You can contact Pennsaid or quickcareorders@quickcarepharmacy.com 1-866-393-8116 for information about Pennsaid coupons. All of these medicines require a prescription.
Before using any of these drugs, please, consult with your doctor!
If you use any of these drugs for a prolong period of time, you need to have regular checkups with your doctor.
All the best to you!
Hi Tonia, you are absolutely right! This is why I said - while using any of these meds for a period of time, keep regular appointments with your doctor and monitor your bloodwork.
Re: Tylenol - do not - do not - take Tylenol; it is a killer of our livers. Do not either take Vicoden - same thing. Motrin is a blood thinner, I believe, as well as aspirin and most NSAID's. I take a potent blood thinner, Eliquis, for atrial fibrillation of the heart. Hospitals "shove" Tylenol at us because it is supposed to be "safer" because it is not a blood thinner. I am off all pain meds period. Am now in Stage 3, diagnosed Sept. of this year; am even weaning off of just 1 tiny mg. of Xanax I used to take at night for PTSD, anxiety and depression. It is taking two months to wean off per my wonderful primary doctor. You can see through just that alone how potent some of these drugs are that it would take two months to wean off just 1 mg of something!
I'm not an alarmist by any means; have taken many drugs throughout my lifetime and now know that the secret to the rest of my liver's (and my) life is not being on medications other than the most crucial to my health, i.e. insulin for diabetes, heart medications, cholesterol medication, med. for gastroesophageal reflux disease, and of course my Ursodiol for PBC which has been working for 17 years now.
Again, do not mean to scare anyone. Want only to make you aware.
We need our doctors, not our nurses, to give us down-to-earth information about what's going on in our bodies. Many times we have to "educate the educators". You will find this as you go along with PBC and any accompanying diseases/ailments you may encounter. If you cannot get your specialist to get involved, I might suggest going to another one. Don't let their non-chalant attitude interfere with your success.
On another note, they may be overburdened - had this happen with a rheumatologist who helped diagnose my PBC in 2001, accidentally prescribed a muscle relaxer for a huge outbreak of fibromyalgia recently - I thought it was brilliant that he did not prescribe a pain med - but - this is the kicker, found out it had been, and I'm quoting, "..... known to cause complete, acute liver failure", and required liver enzyme testing prior to consumption! Then he prescribed another muscle relaxer the same week that I found out would cause me to get dizzy and perhaps fall; I have fibromyalgia also; fibro patients have a tendency to fall; he was a fibro expert. Hence? Nothing. I took nothing and let the flare-up go its distance without medication, a much safer route, but of course painful as all get-out. This group of rheumatologists was merging with a huge conglomerate of doctors; he had been stressed to the limit. I had to give him this benefit; however........I could not continue to police him any further.
Do your research, and even though doctors' offices will caution you not to read things on the Internet, you must anyway. In my estimation, like in one instant, 10 sites all purporting a medication I was looking up is metabolized through the liver, cannot be wrong/I say that is impossible.
Also, continue talking as you have here in your post, to other PBCers. As long as I have had PBC, or known about it anyway - since 2001, I am still learning. Our doctors are still learning. If you cannot get one to converse with you, go to another. A nurse will be a good listener. They are not the specialist, as you state. You are correct.
I offer this out of experience and continued quest for life as I go along with this very strange disease we have! Kathleen in Ohio, 73 year old female, dx'd in 2001 with Stage 1 (biopsy); Stage 2 in 2011 (biopsy); Stage 3 in 2017 (Elastography - brand new and now-considered extremely reliable - and I might add comfortable and safe/the biopsy can be a dangerous little item and very uncomfortable in its aftermath). I also have many other co-autoimmune diseases, heart issues, diabetes type 2, Sjogren's, osteoarthritis, fibromyalgia, interstitial cystitis of the bladder, and an inoperable neck, back and spine. You can reach me at kehello@aol.com if you have further questions.
Thank you. I try my best NOT to take any pain medication and for the most part don't BUT I have trouble sleeping at night and now all my joints are starting to hurt which is very painful. What can you suggest when it just gets to be too much? A heating pad does help sometimes. I, too, have type 2 diabetes, reflex, high bp & high cholesterol which I take prescriptions for