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Any Canadian getting US treatment?
I’m in Canada. I can’t have anymore regular rads, I’ve already had it twice. I would love to get proton rads. My MBC is only in my hilar nodes. Anyone from Canada get treatment in the US? I’ve been looking at some H but Mass Gen in Boston didn’t write back. I’ve been suggested ProCure but it’s not an
I’m in Canada. I can’t have anymore regular rads, I’ve already had it twice. I would love to get proton rads. My MBC is only in my hilar nodes. Anyone from Canada get treatment in the US? I’ve been looking at some H but Mass Gen in Boston didn’t write back. I’ve been suggested ProCure but it’s not an
13Dancingdiva
in
My Breast Cancer Community
3 years ago
Lots of farting on Ibrance
Has anyone experienced gas when taking Ibrance and Letrozole?
Has anyone experienced gas when taking Ibrance and Letrozole?
Natural216
in
SHARE Metastatic Breast Cancer
3 years ago
How much of a pain in the butt can I expect from Fulvestrant?
Tuesday begins the new regime because Letrozole only did damage and no healing. This time, it is Fulvestrant at MSK. Will I be able to drive for part of the way or should I arrange for a full limo service with family and friends? Please fill me in with the details. I got absolutely no details from
Tuesday begins the new regime because Letrozole only did damage and no healing. This time, it is Fulvestrant at MSK. Will I be able to drive for part of the way or should I arrange for a full limo service with family and friends? Please fill me in with the details. I got absolutely no details from
jersey-jazz
in
SHARE Metastatic Breast Cancer
3 years ago
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Nightmares
Morning ladies - For the last few nights I’ve had the most awful vivid nightmares, well actually night terrors and waking up screaming. Really distressing. I’ve been taking Letrozole and Niraparib since April but this is not listed as a side effect. Trouble falling asleep and staying asleep is listed
Morning ladies - For the last few nights I’ve had the most awful vivid nightmares, well actually night terrors and waking up screaming. Really distressing. I’ve been taking Letrozole and Niraparib since April but this is not listed as a side effect. Trouble falling asleep and staying asleep is listed
Robbo16
in
My Ovacome
3 years ago
Sensitive - please find hope in this post ….Low amh, thin lining, ivf, Clomid and letrozole…. His finally here💙
Hi ladies, I have dreamt of making this post for many years now, I know how hard it is to go through All the stages of this journey. And can finally say that my beautiful little baby boy arrived in October. It has been a journey after having ivf which my body struggled with 4 years ago, Moving then to
Hi ladies, I have dreamt of making this post for many years now, I know how hard it is to go through All the stages of this journey. And can finally say that my beautiful little baby boy arrived in October. It has been a journey after having ivf which my body struggled with 4 years ago, Moving then to
Gemz29
in
Fertility Network UK
3 years ago
I'm new here and feeling blessed
Hi everyone - so good to see all the wonderful support on this site. I was diagnosed in April/May this year (following a recall on routine mammogram) with 9mm invasive lobular carcinoma left breast and had a lumpectomy with target wide local excision and sentinel lymph node biopsy on the 18th May.
Hi everyone - so good to see all the wonderful support on this site. I was diagnosed in April/May this year (following a recall on routine mammogram) with 9mm invasive lobular carcinoma left breast and had a lumpectomy with target wide local excision and sentinel lymph node biopsy on the 18th May.
Mintygreen
in
My Breast Cancer Community
3 years ago
Tumor markers rising
My tumor marker has went up to 146 from 72 in July .the onc in Houston told me I have to start other meds because they saw progression and he says it’s not working anymore. I currently tak Ibrance and letrozole sinc nov 2018. My question is how much does your onc place importance on your markers.?
My tumor marker has went up to 146 from 72 in July .the onc in Houston told me I have to start other meds because they saw progression and he says it’s not working anymore. I currently tak Ibrance and letrozole sinc nov 2018. My question is how much does your onc place importance on your markers.?
Eliactida1955
in
SHARE Metastatic Breast Cancer
3 years ago
Large cyst in peritoneal cavity after full de-bulking
I am looking for information for my mum about a large cyst that has appeared in her peritoneal cavity after a full de-bulking. Two years ago my mum was diagnosed with stage 3b low grade serous fallopian tube cancer and is now on letrozole. After a biopsy the results have shown suspicious cells in the
I am looking for information for my mum about a large cyst that has appeared in her peritoneal cavity after a full de-bulking. Two years ago my mum was diagnosed with stage 3b low grade serous fallopian tube cancer and is now on letrozole. After a biopsy the results have shown suspicious cells in the
cath_koala
in
My Ovacome
3 years ago
1st reoccurrence?
Down in dumps today. CA125 been gradually rising since I started Niraparib and Letrozole in April. From 7 on April to now being 40.8. Although only just out of normal range the trajectory is up and based on the level of rises so far I expect it to be around 80 in a couple of weeks time. My scan in September
Down in dumps today. CA125 been gradually rising since I started Niraparib and Letrozole in April. From 7 on April to now being 40.8. Although only just out of normal range the trajectory is up and based on the level of rises so far I expect it to be around 80 in a couple of weeks time. My scan in September
Robbo16
in
My Ovacome
3 years ago
Letrozole, Gonassi, Stommach Pain, Bloating, Peeing More.
Hi Has anyone experienced stommach pain after letrozole, increased urination and also burning in the stommach /chest after the gonassi trigger? My stommach feel like it's on fire inside. Thank you
Hi Has anyone experienced stommach pain after letrozole, increased urination and also burning in the stommach /chest after the gonassi trigger? My stommach feel like it's on fire inside. Thank you
GR93
in
Fertility Network UK
3 years ago
AFIB AND LETROZOLE UPDATE
Will make it quick 🤣 Spoke to my Oncologist, a Professor at Guy’s, who although they think its bizarre fully concurs that Letrozole has caused/affected my AF and is writing a letter to that effect to my cardiologist and doctor. Hope this helps any other breast cancer sufferers with similar symptoms
Will make it quick 🤣 Spoke to my Oncologist, a Professor at Guy’s, who although they think its bizarre fully concurs that Letrozole has caused/affected my AF and is writing a letter to that effect to my cardiologist and doctor. Hope this helps any other breast cancer sufferers with similar symptoms
SilverliningsForNow
in
AF Association
3 years ago
Is anyone taking the meds affinitor and aromasin?
My dr just told me to drop Ibrance and letrozole due to progression in bone on the p e t scan. My tumor markers rose to like 72 ca 27-29. I’m worried about the change -please let me know if anyothers on this. Thanks 🌹
My dr just told me to drop Ibrance and letrozole due to progression in bone on the p e t scan. My tumor markers rose to like 72 ca 27-29. I’m worried about the change -please let me know if anyothers on this. Thanks 🌹
Eliactida1955
in
SHARE Metastatic Breast Cancer
3 years ago
Successful pregnancy with polyp?
I have pcos and we have been struggling to conceive for 2 years. In April 2021 I had a hysteroscopy and labarascopy under GA to remove a polyps in my uterus as well as ovarian drilling. I was told it was successful, but 2 months later, the polyp had returned. I was then put on the waiting list for a
I have pcos and we have been struggling to conceive for 2 years. In April 2021 I had a hysteroscopy and labarascopy under GA to remove a polyps in my uterus as well as ovarian drilling. I was told it was successful, but 2 months later, the polyp had returned. I was then put on the waiting list for a
Runningpcos
in
Fertility Network UK
3 years ago
Is anyone on affinitor and aromasin?
Just came from M D Anderson with Dr wanting to change meds after progression . I was on Ibrance and letrozole for 3 years. Stage 4 du Novo to bones since 2018. How you ladies doing on this? I’m still thinking ....
Just came from M D Anderson with Dr wanting to change meds after progression . I was on Ibrance and letrozole for 3 years. Stage 4 du Novo to bones since 2018. How you ladies doing on this? I’m still thinking ....
Eliactida1955
in
SHARE Metastatic Breast Cancer
3 years ago
Whole Brain Radiotherapy
Hi ( or should that be BOO! given the season) I've not been active really the last few months but I have been reading from time to time your posts. Just been very up and down since being diagnosed with brain metastases a year after secondary diagnosis. Since my brain mets in march I've been on kadcyla
Hi ( or should that be BOO! given the season) I've not been active really the last few months but I have been reading from time to time your posts. Just been very up and down since being diagnosed with brain metastases a year after secondary diagnosis. Since my brain mets in march I've been on kadcyla
Hidden
in
SHARE Metastatic Breast Cancer
3 years ago
Letrozole/Tamoxifen and Ablation
Had an ablation 5 weeks ago and from the start nothing. No AF, no palps, nothing . So happy QOL back. Started taking Letrozole again on Thursday for Stage 1 breast cancer back in May and bang atrial flutters/palps/ectop beats and finally on Sunday AFib. Stopped taking it immediately and all gone away
Had an ablation 5 weeks ago and from the start nothing. No AF, no palps, nothing . So happy QOL back. Started taking Letrozole again on Thursday for Stage 1 breast cancer back in May and bang atrial flutters/palps/ectop beats and finally on Sunday AFib. Stopped taking it immediately and all gone away
SilverliningsForNow
in
AF Association
3 years ago
Medication working
Hi, my mom has been taking ibrance and letrozole for almost 3 years for her metatisized bone cancer. The last few weeks her pain is back and she is very weak. Does this mean her cancer has got worse or does it mean her medication may not working. She is having her scan next week. I am praying there
Hi, my mom has been taking ibrance and letrozole for almost 3 years for her metatisized bone cancer. The last few weeks her pain is back and she is very weak. Does this mean her cancer has got worse or does it mean her medication may not working. She is having her scan next week. I am praying there
Hidden
in
SHARE Metastatic Breast Cancer
3 years ago
After Ibrance and letrozole stop
What other oral treatment is available ?
What other oral treatment is available ?
Eliactida1955
in
SHARE Metastatic Breast Cancer
3 years ago
Hypoechoic lesion measuring 1.7cm in liver
1.My mother is initially diagnosed with Breast cancer on 2011, mastectomy was done and 6 chemos done and was doing well till 2017 2.In 2017 again few lesions recurred in the same breast and biopsy confirm as ER+.So 30 days radiotherapy was given and was continuing with letrozole 2.5mg tablet till date.Evert
1.My mother is initially diagnosed with Breast cancer on 2011, mastectomy was done and 6 chemos done and was doing well till 2017 2.In 2017 again few lesions recurred in the same breast and biopsy confirm as ER+.So 30 days radiotherapy was given and was continuing with letrozole 2.5mg tablet till date.Evert
Prasath_sas
in
Breast Cancer India
3 years ago
Not sure what to think!
Well I had my first face 2 face oncology appt today, since diagnosis 18 months ago. I saw a member of the team who needed to refer to the consultant. I'm actually feeling very well, even better having had my two weeks in Scotland. And I really haven't had any nasty side effects from ibrance and letrozole
Well I had my first face 2 face oncology appt today, since diagnosis 18 months ago. I saw a member of the team who needed to refer to the consultant. I'm actually feeling very well, even better having had my two weeks in Scotland. And I really haven't had any nasty side effects from ibrance and letrozole
Beryl71
in
SHARE Metastatic Breast Cancer
3 years ago
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