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low grade serous ovarian cancer
hello I’m new to the group but I was diagnosed with low grade ovarian cancer in October 2020 and have since had a radical hysterectomy in December 2020 followed by 6 rounds of chemo starting in June 2021 which didn’t remove all the cancer I was given a course of letrozole but this didn’t work for me.
hello I’m new to the group but I was diagnosed with low grade ovarian cancer in October 2020 and have since had a radical hysterectomy in December 2020 followed by 6 rounds of chemo starting in June 2021 which didn’t remove all the cancer I was given a course of letrozole but this didn’t work for me.
Gillianpickle
in
My Ovacome
1 year ago
MBC lines of treatment- options
Hi! My name is Kim 43 lumpectony 5/2020 MBC bone only from neck to both knees 3/21. HR + HER2- on Ibrance and letrozole No metabolic activity after 3 months on treatment still going strong. I was told there us now 8 lines of treatment but I can only think of 3. What's next after Ibrance? Appreciate any
Hi! My name is Kim 43 lumpectony 5/2020 MBC bone only from neck to both knees 3/21. HR + HER2- on Ibrance and letrozole No metabolic activity after 3 months on treatment still going strong. I was told there us now 8 lines of treatment but I can only think of 3. What's next after Ibrance? Appreciate any
KimberlyB40
in
SHARE Metastatic Breast Cancer
1 year ago
MBC and NED status
Most recent scan showed no evidenced of disease. when i was first diagnosed my oncologist told me that MBC is not curable...am I getting bogged down with semantics here? Why can't we stop the meds once we reach NED? I of course will discuss this with my doctor I am just genuinely curious how this works
Most recent scan showed no evidenced of disease. when i was first diagnosed my oncologist told me that MBC is not curable...am I getting bogged down with semantics here? Why can't we stop the meds once we reach NED? I of course will discuss this with my doctor I am just genuinely curious how this works
SpongebobMom
in
SHARE Metastatic Breast Cancer
1 year ago
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ibrance and letrozole , mbc now with liver enhancement
can any one help I live in north east of UK . I’ve been taking ibrance 125mg and letrozole for 2 years and my latest scan has shown liver cancers have grown and osteoblast of sternum I also have mbc in breast , lymph and spine L1, all stable Has any one had similar and what was your next line
can any one help I live in north east of UK . I’ve been taking ibrance 125mg and letrozole for 2 years and my latest scan has shown liver cancers have grown and osteoblast of sternum I also have mbc in breast , lymph and spine L1, all stable Has any one had similar and what was your next line
Jenhood
in
My Breast Cancer Community
1 year ago
long timers on Ibrance
hello everyone I just wanted to see if there are any long timers out there who have done well on Ibrance and/or lupron letrozole/ how their experience has been.
hello everyone I just wanted to see if there are any long timers out there who have done well on Ibrance and/or lupron letrozole/ how their experience has been.
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Utter despair after failed fertility treatment
Hi everyone, I have been undergoing fertility treatment for over two years now. In this time we had three unsuccessful rounds of IUI. I have pcos so was told I had to have IUI first before the NHS would consider funding IVF. I had IVF last July and was at risk of OHSS so had to freeze all eight embryos
Hi everyone, I have been undergoing fertility treatment for over two years now. In this time we had three unsuccessful rounds of IUI. I have pcos so was told I had to have IUI first before the NHS would consider funding IVF. I had IVF last July and was at risk of OHSS so had to freeze all eight embryos
Citizenerased83
in
Fertility Network UK
1 year ago
Beautiful Thrivers
How is the beginning of summer?Have you been driving and your mind starts thinking I will not see this Beautiful scenery one day And you tear up. It goes away I never had these thoughts before the meds My CT scan is steady and she took me off ibrance for two weeks Red cells low More Greens Veggies
How is the beginning of summer?Have you been driving and your mind starts thinking I will not see this Beautiful scenery one day And you tear up. It goes away I never had these thoughts before the meds My CT scan is steady and she took me off ibrance for two weeks Red cells low More Greens Veggies
Hidden
in
SHARE Metastatic Breast Cancer
1 year ago
Painful ovulation after IVF....
I have PCOS and wasn't ovulating at all, I've tried Clomid, and letrozole and if and when I ovulate on those medications I've been able to feel ovulation, sharp pains and a dull ache which has been painful when sitting down. I had IVF a few of months ago which sadly didn't result in a pregnancy but I
I have PCOS and wasn't ovulating at all, I've tried Clomid, and letrozole and if and when I ovulate on those medications I've been able to feel ovulation, sharp pains and a dull ache which has been painful when sitting down. I had IVF a few of months ago which sadly didn't result in a pregnancy but I
AshleyJB
in
Fertility, Miscarriage & IVF Support
1 year ago
D3 lowers estrogen in blood!
I bought a kiddie pool so I could lay out and get some sunshine. I grew up on an island and I love the water ... ANY water! So I bought it solely for my enjoyment. Then I come across this article from Fred Hutchinson Cancer Center on how D3 lowers estrogen and this interests me because I recently
I bought a kiddie pool so I could lay out and get some sunshine. I grew up on an island and I love the water ... ANY water! So I bought it solely for my enjoyment. Then I come across this article from Fred Hutchinson Cancer Center on how D3 lowers estrogen and this interests me because I recently
Godbeforme
in
SHARE Metastatic Breast Cancer
1 year ago
Ribociclib and Letrozole
My breast cancer which was removed two years ago has come back in my breast bone (7mm) and S1 (1 cm). I have been told I need to start taking Ribociclib and Letrozole. Any of you has experience of taking these same medications together? Did they work? How did they make you feel? I hope I will still be
My breast cancer which was removed two years ago has come back in my breast bone (7mm) and S1 (1 cm). I have been told I need to start taking Ribociclib and Letrozole. Any of you has experience of taking these same medications together? Did they work? How did they make you feel? I hope I will still be
Intollinna
in
My Breast Cancer Community
1 year ago
iBrance side effects
I just started iBrance (been on Letrozole for a year ). How long does it usually take for side effects to start showing up?
I just started iBrance (been on Letrozole for a year ). How long does it usually take for side effects to start showing up?
PlutosNose
in
SHARE Metastatic Breast Cancer
1 year ago
Soreness
Hello I have been on Letrozole for a year next month and I had a zometa infusion and radiation. But my question is its it normal for my under arm and scar tissue and my Breast to get sore. Also where the lymphnodes were removed. And does doing house work adjatate that area. I'm so confused
Hello I have been on Letrozole for a year next month and I had a zometa infusion and radiation. But my question is its it normal for my under arm and scar tissue and my Breast to get sore. Also where the lymphnodes were removed. And does doing house work adjatate that area. I'm so confused
Lavern2
in
SHARE Metastatic Breast Cancer
1 year ago
Holistic Misinformation controversy
Hi! My name is Kim, I’m 43 and I have bone only MBC for 2 years now hormone positive HER2 negative and I’m on Ibrance 125 and letrozole 2.5. I used to find so much comfort in reading posts from others going through this with me sharing their treatments and feelings but over the last 9 months or so I
Hi! My name is Kim, I’m 43 and I have bone only MBC for 2 years now hormone positive HER2 negative and I’m on Ibrance 125 and letrozole 2.5. I used to find so much comfort in reading posts from others going through this with me sharing their treatments and feelings but over the last 9 months or so I
KimberlyB40
in
SHARE Metastatic Breast Cancer
1 year ago
Starting Talzenna
I'm starting Talzenna next week and want to know any experiences people have had with it. I'm super scared of the side effects ruining my ability to have a good summer. I've been on Ibrance and Letrozole for about 2 years and tolerated it very well. I've been able to live my life pretty normally. I had
I'm starting Talzenna next week and want to know any experiences people have had with it. I'm super scared of the side effects ruining my ability to have a good summer. I've been on Ibrance and Letrozole for about 2 years and tolerated it very well. I've been able to live my life pretty normally. I had
1stgradeteach1
in
SHARE Metastatic Breast Cancer
1 year ago
uptake increase one spot only
In the PET SCAN world, I’m curious, what happens when one spot shows an increase in avid/activity, but everything else shows stability or even decreases? My scans have been stable and favorable this past year (praise Jesus) after starting letrozole/ibrance 16 mos ago for bone only, lobular, ER+. I have
In the PET SCAN world, I’m curious, what happens when one spot shows an increase in avid/activity, but everything else shows stability or even decreases? My scans have been stable and favorable this past year (praise Jesus) after starting letrozole/ibrance 16 mos ago for bone only, lobular, ER+. I have
Gardengirl345
in
SHARE Metastatic Breast Cancer
1 year ago
Weight gain after pregnancy...
Apologies in advance if this seems trivial considering everything people are going through on this forum....but this is stressing me out postpartum.... I have gained a considerable amount of weight during this pregnancy and after 9 weeks postpartum I have not lost anything. I have lost all my confidence
Apologies in advance if this seems trivial considering everything people are going through on this forum....but this is stressing me out postpartum.... I have gained a considerable amount of weight during this pregnancy and after 9 weeks postpartum I have not lost anything. I have lost all my confidence
Hidden
in
Pregnancy and Parenting Support
1 year ago
Help for watery eyes
hi everybody , I am on Letrozole and Ibrance, I have had really bad watery eyes , it’s been so annoying for the past 3 years , I have tried so many different eye drops , that have not worked , I had a chat with my optician , she recommended. HYCOSAN EXTRA , I have been using them for 10 days
hi everybody , I am on Letrozole and Ibrance, I have had really bad watery eyes , it’s been so annoying for the past 3 years , I have tried so many different eye drops , that have not worked , I had a chat with my optician , she recommended. HYCOSAN EXTRA , I have been using them for 10 days
Liessie2014
in
SHARE Metastatic Breast Cancer
1 year ago
FET experience and expectations
Hello, I’m new here, I discovered this forum while waiting for my second period after IVF freeze all cycle to show (was a week late and nurse never told me to expect that her). Anyhow, I’m on BCP getting ready to start my FET cycle. I’m stopping pill on may 20th and have scheduled first US and blood
Hello, I’m new here, I discovered this forum while waiting for my second period after IVF freeze all cycle to show (was a week late and nurse never told me to expect that her). Anyhow, I’m on BCP getting ready to start my FET cycle. I’m stopping pill on may 20th and have scheduled first US and blood
Pipidugacarapa
in
Fertility Network UK
1 year ago
Advised for donor eggs after one cancelled stimulation cycle
Hello everyone, So,we have had a cycle which was a cancelled cycle after stimulation and before collection. Long story short the doctors saw only one egg was fully grown just before collection day and estrogen was low. And with low estrogen the doctor believed that most likely the follicles were empty
Hello everyone, So,we have had a cycle which was a cancelled cycle after stimulation and before collection. Long story short the doctors saw only one egg was fully grown just before collection day and estrogen was low. And with low estrogen the doctor believed that most likely the follicles were empty
happyseal
in
Fertility Network UK
1 year ago
Food during treatment
Foodforbreastcancer.com I have Metastatic breast cancer ER/PR positive, HER2 negative. I've been on Ibrance for 3 yrs. Was on Anastrozole for 2 yrs and have been on Letrozole for one year. I stumbled on to this web site. Its updated. Can tell you what food to eat and what to avoid. I didn't find
Foodforbreastcancer.com I have Metastatic breast cancer ER/PR positive, HER2 negative. I've been on Ibrance for 3 yrs. Was on Anastrozole for 2 yrs and have been on Letrozole for one year. I stumbled on to this web site. Its updated. Can tell you what food to eat and what to avoid. I didn't find
Mardy72
in
SHARE Metastatic Breast Cancer
1 year ago
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