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Pneumonia Vaccine

TE53_67 profile image
9 Replies

Hi all,

I have been on Ibrance and Letrozole since August 2018, 75mg 3 weeks on and 2 weeks off.

All CT scans are stable (last one in September 2022). I had my Pnuemonia jab and it seems I am having a slight delayed reaction of breathlessness. I have lung mets, so worried its that. I have not had any of these symptoms before.

I am on my exercise bike and general walking at a pace and other exercise daily, where I am fine, however so worried. I am unsure if this is anxiety or something more sinister. Has anyone had similar symptoms after a Pneumonia vaccine.?

Thanks and love to all :)

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TE53_67
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9 Replies
mariootsi profile image
mariootsi

You may want to call your onc. It could be the vaccine. She or your primary care doc would know if that's a side effect of the vaccine. Did your onc know you got the vaccine?

TE53_67 profile image
TE53_67 in reply tomariootsi

No they didn’t - which I am annoyed with myself now for not asking them prior. Albeit the doc knows what meds I am on.

Aprilfoolz1 profile image
Aprilfoolz1

I would call your oncologist . Pneumonitis is a serious side effect of Ibrance. You've been on Ibrance for a long time without any issues, so it sure seems coincidental or interesting that is started right after you got the pneumonia vaccine. Best to call the oncologist and let them know. Hopefully it clears up asap !

neosha profile image
neosha

I agree with the above. Talk to your oncologist. Sometimes our fears prevent us from asking.

Instead, we agonize. If something needs to be done, the doctor will know.

PJBinMI profile image
PJBinMI

Ibrance can cause lung damage! I was on it for just a few cycles in 2016 and developed interstitial lung disease. It has not gotten any better since going off Ibrance but not gotten worse either. My pulmonologist described ILD as being like gunk between the air sacs. I now have two inhalers, albuterol and Trilegy. I get out of breath if I walk fast and in humid weather. Call your onc today and asl for a referral to a pulmonologist, if you aren't already seeing one. Going off Ibrance did not cause problems with the stability I had with cancer.

Granny333 profile image
Granny333

Hi, well I have done Ibrance for 2 rounds and tomorrow I am telling Dr too much. So telling him I’d like to try 75.

Eliactida1955 profile image
Eliactida1955

I I had a pneu vaccine with no problems. Ibrance can cause respiratory issues and I did have a bronchitis develop after I started the ibrance. It’s hard to say if you will have a reaction but hopefully not.🙏✝️

Aprilfoolz1 profile image
Aprilfoolz1

TE53_67,

How are you feeling ? Has your shortness of breath resolved ? Hope you're feeling better .

TE53_67 profile image
TE53_67

yes alittle , thank you for asking - still really unsure 🫤 I have a CT scan booked as normal and also now an ECHO test for my heart. 🤞

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