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Progression of BC Mets
I have had a good run of my Ibrance, (in different dosages), and Letrozole combination since 2017 after 1st Mets diagnosis. (History ER+ Her2- BC) Now I have progression and I'm not sure my doctor is going down the right road. She is suggesting Kisqali and Faslodex. From what I've read, Kisqali would
I have had a good run of my Ibrance, (in different dosages), and Letrozole combination since 2017 after 1st Mets diagnosis. (History ER+ Her2- BC) Now I have progression and I'm not sure my doctor is going down the right road. She is suggesting Kisqali and Faslodex. From what I've read, Kisqali would
SpicyChick
in
SHARE Metastatic Breast Cancer
1 year ago
Orserdu
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
HopeinNJ
in
SHARE Metastatic Breast Cancer
1 year ago
Must manage your own healthcare
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
B17865
in
SHARE Metastatic Breast Cancer
1 year ago
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BP increase on Letrozole
Have happily been on 20mg Lisinopril and 25mg Spironolactone for some years, but now after early breast cancer in 21 now on Letrozole 2.5mg. The Letrozole increases the BP and cholesterol. My BP has been going up from 115-20/62 ish, to now 166/78 this morning, along with swollen feet and ankles, even
Have happily been on 20mg Lisinopril and 25mg Spironolactone for some years, but now after early breast cancer in 21 now on Letrozole 2.5mg. The Letrozole increases the BP and cholesterol. My BP has been going up from 115-20/62 ish, to now 166/78 this morning, along with swollen feet and ankles, even
Hidden
in
British Heart Foundation
1 year ago
A little change
I haven't written for a while as busy getting our new home in order and taming the jungle of a garden. I'm loving living in the Scottish Highlands with so much to explore.I've been stable for some time on letrozole and ibrance 125mg. I have a lovely oncologist in Inverness and support from the Macmillan
I haven't written for a while as busy getting our new home in order and taming the jungle of a garden. I'm loving living in the Scottish Highlands with so much to explore.I've been stable for some time on letrozole and ibrance 125mg. I have a lovely oncologist in Inverness and support from the Macmillan
Beryl71
in
SHARE Metastatic Breast Cancer
1 year ago
Kazza
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Karenborg
in
SHARE Metastatic Breast Cancer
1 year ago
Stopping Levothyroxine temporarily
I found out I had an underactive thyroid when had a routine blood test after breast cancer diagnosis. I had no symptoms, but was put on Levothyroxine (50) by GP at the time. I was also on Letrozole to stop estrogen. I was on Letrozole for 7 years, but since stopping it, I've had tummy problems...bloating
I found out I had an underactive thyroid when had a routine blood test after breast cancer diagnosis. I had no symptoms, but was put on Levothyroxine (50) by GP at the time. I was also on Letrozole to stop estrogen. I was on Letrozole for 7 years, but since stopping it, I've had tummy problems...bloating
LilacGran
in
Thyroid UK
1 year ago
Metastatic breast cancer
I have been diagnosed with metastatic breast cancer but right now my scans are NED. I have taken 51 doses of hormone related drugs. I also have osteoporos which is related to the cancer. I would like to know if it is safe to take collagen while I am on Ibrance and Letrozole .
I have been diagnosed with metastatic breast cancer but right now my scans are NED. I have taken 51 doses of hormone related drugs. I also have osteoporos which is related to the cancer. I would like to know if it is safe to take collagen while I am on Ibrance and Letrozole .
viennagirl
in
SHARE Metastatic Breast Cancer
1 year ago
first recurrence
Hi ladies I’ve seen my oncologist today for results on my latest CT scan. It’s showing 2 new growths in addition to several others which have been slowly creeping in which weve been watching and waiting on. I’ve been on Letrozole for few months which hasn’t worked. One of the new ones is in my left
Hi ladies I’ve seen my oncologist today for results on my latest CT scan. It’s showing 2 new growths in addition to several others which have been slowly creeping in which weve been watching and waiting on. I’ve been on Letrozole for few months which hasn’t worked. One of the new ones is in my left
Barmycharm
in
My Ovacome
1 year ago
Timing of meds
I'm really struggling with getting all the timings right. It's like a puzzle I can't solve because my brain's fogged up and I'm so tired. NB I'm almost 64 yrs old. Currently: 7am T4/T3 with oral asthma spray 9.30am Breakfast with palbociclib, letrozole and oral spray Vit D/K2
I'm really struggling with getting all the timings right. It's like a puzzle I can't solve because my brain's fogged up and I'm so tired. NB I'm almost 64 yrs old. Currently: 7am T4/T3 with oral asthma spray 9.30am Breakfast with palbociclib, letrozole and oral spray Vit D/K2
bikebabe
in
Thyroid UK
1 year ago
My Journey - Breast Cancer
So far - I'm Lucky. On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo
So far - I'm Lucky. On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo
lovemydad
in
SHARE Breast Cancer Support
1 year ago
PET scan results :(
hi everyone- my dads pet scan results were just posted on the portal. Wasn’t exactly what we wanted to see / hear. He is BRCA2 positive and has been on Ibrance lupron letrozole and xjeva since June of 2022. no organ involvement on his PET scan and stable bone lesions but it does say: “developing right
hi everyone- my dads pet scan results were just posted on the portal. Wasn’t exactly what we wanted to see / hear. He is BRCA2 positive and has been on Ibrance lupron letrozole and xjeva since June of 2022. no organ involvement on his PET scan and stable bone lesions but it does say: “developing right
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
CT Scan with New Liver spots😪, next treatment? (Ibrance & Letrozole 18 mths 1st line)
Hello all,I'm feeling down now, another bump in the road sadly. CT scan this week showing 3 new liver spots (previously only bone mets, but many). Looking for some inspiration and knowledge from you fellow thrivers. I have been on Ibrance & Letrozole for 18 mths. The Ibrance was lowered from 125 to
Hello all,I'm feeling down now, another bump in the road sadly. CT scan this week showing 3 new liver spots (previously only bone mets, but many). Looking for some inspiration and knowledge from you fellow thrivers. I have been on Ibrance & Letrozole for 18 mths. The Ibrance was lowered from 125 to
Smokeyd
in
SHARE Metastatic Breast Cancer
1 year ago
Unknown Territory!😔
About 18months on Ibrance/Letrozole then progression to Liver. Been on Verzenio now for a short period thus far and Oncologist wants to do 9 Rounds/Weeks of IV Chemo. Has anyone had a similar experience? After the 9weeks possibly back on Verzenio or on Xeolda. Diagnosed De Novo so this will be first
About 18months on Ibrance/Letrozole then progression to Liver. Been on Verzenio now for a short period thus far and Oncologist wants to do 9 Rounds/Weeks of IV Chemo. Has anyone had a similar experience? After the 9weeks possibly back on Verzenio or on Xeolda. Diagnosed De Novo so this will be first
AutumnLove
in
SHARE Metastatic Breast Cancer
1 year ago
VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
1 x failed fresh, 1 x failed FET. 1 x left - what to do?
Hi all Myself and husband just had our 2nd transfer (1st FET) which has failed 💔💔 we are gutted as we went in postive as such (lining was good, on progesterone injections aswell as cyclogest pessaries). I am 32 with PCOS but fit and well - only symptom with PCOS is lack of cycles. We had
Hi all Myself and husband just had our 2nd transfer (1st FET) which has failed 💔💔 we are gutted as we went in postive as such (lining was good, on progesterone injections aswell as cyclogest pessaries). I am 32 with PCOS but fit and well - only symptom with PCOS is lack of cycles. We had
Clowden
in
Fertility Network UK
1 year ago
In need of some wise words
hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2 scans in September of 2022 and January of 2023 showed NED and his next scan is July 5. Please keep him in your prayers. My mother developed a
hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2 scans in September of 2022 and January of 2023 showed NED and his next scan is July 5. Please keep him in your prayers. My mother developed a
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Peribronchial nodules- is ít attributed to Ibrance?
Good day my fellow warriors! I have been NED for almost 10 months taking Ibrance and Letrozole. Yesterday my latest Ctscan results came back still no definite evidence of metastatic disease but a findings in my lungs says there’s an ill- defined ground glass changes and peribronchial nodules that
Good day my fellow warriors! I have been NED for almost 10 months taking Ibrance and Letrozole. Yesterday my latest Ctscan results came back still no definite evidence of metastatic disease but a findings in my lungs says there’s an ill- defined ground glass changes and peribronchial nodules that
Taurus28
in
SHARE Metastatic Breast Cancer
1 year ago
Letrozole
I have been dealing with Endo since the age of 11, lm now 42. I am still struggling with uncontrolled pain. I am currently waiting for excision surgery & meanwhile l have been offered Letrozole. Has anyone got any experience with this treatment for endometriosis? What can l expect? I have to admit l
I have been dealing with Endo since the age of 11, lm now 42. I am still struggling with uncontrolled pain. I am currently waiting for excision surgery & meanwhile l have been offered Letrozole. Has anyone got any experience with this treatment for endometriosis? What can l expect? I have to admit l
SarahAnne81
in
Endometriosis UK
1 year ago
Shingrix vaccine
I am on Ibrance and letrozole, my primary has suggested I get the shingles (shingrix) vaccine. I will be speaking to my oncologist later this week. In the mean time I wondered if any of you ladies have had the vaccine, and did you have side effects. Years ago my husband had shingles vaccine & ended up
I am on Ibrance and letrozole, my primary has suggested I get the shingles (shingrix) vaccine. I will be speaking to my oncologist later this week. In the mean time I wondered if any of you ladies have had the vaccine, and did you have side effects. Years ago my husband had shingles vaccine & ended up
FloridaNYgirl
in
SHARE Metastatic Breast Cancer
1 year ago
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