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Treatment Changes and Good Results
I’ve had a few changes to my treatment since starting in December. As we thought might happen, abiraterone didn’t play well with my liver, even at reduced doses. So, I stopped taking it and, after waiting a couple of weeks for my liver function numbers to return to normal, started on Xtandi in mid January
I’ve had a few changes to my treatment since starting in December. As we thought might happen, abiraterone didn’t play well with my liver, even at reduced doses. So, I stopped taking it and, after waiting a couple of weeks for my liver function numbers to return to normal, started on Xtandi in mid January
ChicagoJ
in
Advanced Prostate Cancer
2 years ago
ADT CHOICES
I'm on Firmagon once a month and it's working fine. The only problem is that I feel like garbage for 2 or 3 days after the shot. Is there any difference in effectiveness if I had a 6 month shot of Lupron or Eligard?
I'm on Firmagon once a month and it's working fine. The only problem is that I feel like garbage for 2 or 3 days after the shot. Is there any difference in effectiveness if I had a 6 month shot of Lupron or Eligard?
epfj3333
in
Advanced Prostate Cancer
2 years ago
Prednisone
My dad forgot to take his second prednisone (5mg afternoon) while on Zytiga lupron and Xgeva can that slightly increase PSA - he was and psa was at .15 then was forgetting and PSA went up to .28 - just wondering if that can effect it? Thanks
My dad forgot to take his second prednisone (5mg afternoon) while on Zytiga lupron and Xgeva can that slightly increase PSA - he was and psa was at .15 then was forgetting and PSA went up to .28 - just wondering if that can effect it? Thanks
Chris52981
in
Advanced Prostate Cancer
2 years ago
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Hmm...Why the endless ads for testosterone boosters!?🤔
I tapered off Zytiga and prednisone exactly 1 year ago ( off Lupron 2.5) and my T is slowly increasing. I've never thought of using a synthetic supplement to hasten the process. Assuming that T is or might be a causative factor for APC, why would otherwise healthy men take and sellers push this product
I tapered off Zytiga and prednisone exactly 1 year ago ( off Lupron 2.5) and my T is slowly increasing. I've never thought of using a synthetic supplement to hasten the process. Assuming that T is or might be a causative factor for APC, why would otherwise healthy men take and sellers push this product
westof
in
Advanced Prostate Cancer
2 years ago
Experience with the drug Xtandi
I was diagnosed with prostate cancer Sept 2017- biopsy revealed Gleason 9 (5+4) in 11 out of 12 cores. Scans revealed no metastasis. Treatment was external radiation and Lupron injections. PSA reading on 6/19/2018 was 0.32 with the latest reading 01/12/2022 of 4.78. A suggested treatment involves
I was diagnosed with prostate cancer Sept 2017- biopsy revealed Gleason 9 (5+4) in 11 out of 12 cores. Scans revealed no metastasis. Treatment was external radiation and Lupron injections. PSA reading on 6/19/2018 was 0.32 with the latest reading 01/12/2022 of 4.78. A suggested treatment involves
cedaral
in
Prostate Cancer Network
2 years ago
Firmagon Vacation
Prostatectomy, 40 radiation treatments and 7 months Lupron in 2015. Gleason was 4+3=7. PSA was undetectable until 2020. Crept up to 7.3. Nothing showed up on PSMA and Axumin scans. Have been on Firmagon for 4 months now. My PSA went down to 0.064 within one week. I told my RO the symptoms were tough,
Prostatectomy, 40 radiation treatments and 7 months Lupron in 2015. Gleason was 4+3=7. PSA was undetectable until 2020. Crept up to 7.3. Nothing showed up on PSMA and Axumin scans. Have been on Firmagon for 4 months now. My PSA went down to 0.064 within one week. I told my RO the symptoms were tough,
epfj3333
in
Advanced Prostate Cancer
2 years ago
Pylarify and ADT question
Hello All , My father (74) was recently diagnosed with prostate cancer intermediate (on the border of favorable and unfavorable) with gleason 7, his bone scan and PET scan came out clean. After much fight I was able to get Pylarify approved. For members who have gotten the PSMA PET can you let me know
Hello All , My father (74) was recently diagnosed with prostate cancer intermediate (on the border of favorable and unfavorable) with gleason 7, his bone scan and PET scan came out clean. After much fight I was able to get Pylarify approved. For members who have gotten the PSMA PET can you let me know
DRKC81
in
Prostate Cancer Network
2 years ago
New to site
Glad I found this site. Have been battling in the dark for last three years. Was diagnosed in August 2018. Gleason 9. Biopsy 12/12 cores positive with PSA 35. No spread to bones with ct/ bone scan. Treatment consisted of external beam radiation/brachytherapy/ 2 years lupron with PSA undectable during
Glad I found this site. Have been battling in the dark for last three years. Was diagnosed in August 2018. Gleason 9. Biopsy 12/12 cores positive with PSA 35. No spread to bones with ct/ bone scan. Treatment consisted of external beam radiation/brachytherapy/ 2 years lupron with PSA undectable during
DanHo
in
Advanced Prostate Cancer
2 years ago
New Member
New to site. Diagnosed 8/21 with bone mets and started Lupron, Zytiga, Prednisone--Bone density normal but starting Zometa soon. 5 miles a day and tennis and golf. Feeling great.
New to site. Diagnosed 8/21 with bone mets and started Lupron, Zytiga, Prednisone--Bone density normal but starting Zometa soon. 5 miles a day and tennis and golf. Feeling great.
alperk
in
Advanced Prostate Cancer
2 years ago
Another Newbie here with Stage 4 PC.
Diagnosed in 11-5-21 with Stage 4 PC. It spread to my nearby lymph nodes at the torso. Had biopsy. PSA was at 118. Met with MO in mid Nov. 1st Lupron shot 11-24-21. Tried to start Zytiga. Had terrible side effects. MO said wait a week. Lupron made me flare up. Swelling in right leg for 1 week and sore
Diagnosed in 11-5-21 with Stage 4 PC. It spread to my nearby lymph nodes at the torso. Had biopsy. PSA was at 118. Met with MO in mid Nov. 1st Lupron shot 11-24-21. Tried to start Zytiga. Had terrible side effects. MO said wait a week. Lupron made me flare up. Swelling in right leg for 1 week and sore
MastersApprentice
in
Advanced Prostate Cancer
2 years ago
Abiraterone, prednisone, eplerenone, and blood pressure
I’ve been on Lupron and abiraterone + prednisone for three years, which has maintained my PSA < 0.1. But my BP has been increasing even though I’ve been taking benazepril 20 mg/day plus amlodipine besylate 2.5 mg/day for many years. Average BP over Jan 2022 has been 167/80, which obviously isn’t good
I’ve been on Lupron and abiraterone + prednisone for three years, which has maintained my PSA < 0.1. But my BP has been increasing even though I’ve been taking benazepril 20 mg/day plus amlodipine besylate 2.5 mg/day for many years. Average BP over Jan 2022 has been 167/80, which obviously isn’t good
Gearhead
in
Advanced Prostate Cancer
2 years ago
Confusion As To Next Treatments - Carboplatin and Cabazitaxel
Thanks in advance! I was diagnosed at age 76 with stage 4 metastatic prostate cancer that has spread extensively to bones, lymph nodes and lungs. My profile contains a complete description of events including lab work, scan results and treatments. That was in June 2020. After treatment with Cosiodex
Thanks in advance! I was diagnosed at age 76 with stage 4 metastatic prostate cancer that has spread extensively to bones, lymph nodes and lungs. My profile contains a complete description of events including lab work, scan results and treatments. That was in June 2020. After treatment with Cosiodex
Mount_Rainier
in
Advanced Prostate Cancer
2 years ago
On lupron/prostap for 10 years or more?
Anyone on lupron /prostap for 10 years or more and if yes, how you doing on it?
Anyone on lupron /prostap for 10 years or more and if yes, how you doing on it?
Boodie
in
Endometriosis UK
2 years ago
If I could only put my back into it.
Two weeks about completing IMRT with boosts and four months into a six month Lupron injection, my CBC and Metabolic Panel were all normal and my T level is <3. Bladder frequency is calming down to once a night. I have developed some back pain that generally spans the area of the notorious "tramp stamp
Two weeks about completing IMRT with boosts and four months into a six month Lupron injection, my CBC and Metabolic Panel were all normal and my T level is <3. Bladder frequency is calming down to once a night. I have developed some back pain that generally spans the area of the notorious "tramp stamp
Jvaughan0
in
Advanced Prostate Cancer
2 years ago
Two Months on Lupron
I started Lupron two months ago and had my first PSA and Testosterone blood level yesterday. I will see my RO next week to discuss the results and whether I can start IGRT. PSA was 6.4 two months ago and was 0.98 yesterday. T was 465 two months ago and was 10 yesterday. I am hopeful that I can get the
I started Lupron two months ago and had my first PSA and Testosterone blood level yesterday. I will see my RO next week to discuss the results and whether I can start IGRT. PSA was 6.4 two months ago and was 0.98 yesterday. T was 465 two months ago and was 10 yesterday. I am hopeful that I can get the
qlodmd
in
Prostate Cancer Network
3 years ago
Stage 4 Prostate Cancer, Quadruple bypass, & now a brain tumor!
Hello health unlocked friends! It's been a while since I posted here. I wanted to give an update. For a while my dad was doing pretty well, managing his stage 4 PC with Xtandi and Lupron and then August came and pretty much everything came undone. In August dad told me he was having some pain in his
Hello health unlocked friends! It's been a while since I posted here. I wanted to give an update. For a while my dad was doing pretty well, managing his stage 4 PC with Xtandi and Lupron and then August came and pretty much everything came undone. In August dad told me he was having some pain in his
Lynsi13
in
Advanced Prostate Cancer
3 years ago
Relugolix (Orgovyx) superior to Lupron and no T flare.
https://clinicaltrials.gov/ct2/show/results/NCT03085095?term=testosterone
https://clinicaltrials.gov/ct2/show/results/NCT03085095?term=testosterone
Hidden
in
Advanced Prostate Cancer
3 years ago
First time on this forum, hoping to connect with people with similar experience
I am a 68 (minus 4 days) male. Was relatively healthy until about a month or two ago. Had just Hashimoto's, which was under control with Levothyroxin (100ug) and Cytomel. I went for a physical two weeks ago and my PCP called me the same day to tell me that she wants the blood test repeated the next day
I am a 68 (minus 4 days) male. Was relatively healthy until about a month or two ago. Had just Hashimoto's, which was under control with Levothyroxin (100ug) and Cytomel. I went for a physical two weeks ago and my PCP called me the same day to tell me that she wants the blood test repeated the next day
Oldie68
in
Advanced Prostate Cancer
3 years ago
information on BITE trial: anyone have experience with BITE?
it seems my partner is losing ground fast on Standard Care Lupron + (Zytiga failed in less than 8 months); he's on Chemo (Docetaxel (the first 4 failed out of 7 infusions) + Carboplatin (3). His MO suggested the bridge would be too long (4-6 weeks) for Car T-cell Trial; instead recommended BITE (involves
it seems my partner is losing ground fast on Standard Care Lupron + (Zytiga failed in less than 8 months); he's on Chemo (Docetaxel (the first 4 failed out of 7 infusions) + Carboplatin (3). His MO suggested the bridge would be too long (4-6 weeks) for Car T-cell Trial; instead recommended BITE (involves
julyturqsee
in
Advanced Prostate Cancer
3 years ago
Now comes the test
Just finished 39 IMRT treatments to whole pelvis last week. Fourteen of those treatments were boosts to three Pylarify identified avid lymph nodes. I'm three months into the first of six month Lupron injections. I have a routine check up with my family doctor next week. My next MO appointment is in
Just finished 39 IMRT treatments to whole pelvis last week. Fourteen of those treatments were boosts to three Pylarify identified avid lymph nodes. I'm three months into the first of six month Lupron injections. I have a routine check up with my family doctor next week. My next MO appointment is in
Jvaughan0
in
Advanced Prostate Cancer
3 years ago
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