Experience with the drug Xtandi - Prostate Cancer N...

Prostate Cancer Network

5,258 members3,324 posts

Experience with the drug Xtandi

cedaral profile image
7 Replies

I was diagnosed with prostate cancer Sept 2017- biopsy revealed Gleason 9 (5+4) in 11 out of 12 cores. Scans revealed no metastasis. Treatment was external radiation and Lupron injections. PSA reading on 6/19/2018 was 0.32 with the latest reading 01/12/2022 of 4.78. A suggested treatment involves the drug Xtandi. Does anyone have experience with this drug.

Thanks

Written by
cedaral profile image
cedaral
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Magnus1964 profile image
Magnus1964

Xtandi is one of the standard ADT drugs. You might do better starting with abiratorone plus prednisone.

Tall_Allen profile image
Tall_Allen

Suggest you put Xtandi in the search bar on the upper right - MANY on this site have used it or are currently using it.

cedaral profile image
cedaral in reply toTall_Allen

Thanks

P-b49wgolf profile image
P-b49wgolf

I had the same diagnosis numbers on 24th December 2019. In 2020 I was prescribed Xtandi (enzalutamide) 4 times 40 mg. I had one area where there was uncertainty about if the cancer had broken out. My P S A is less than .1 where it has stayed for over a year now. The side effects I have experienced are dry skin and fatigue mainly but I still play golf twice a week, as exercise is the only way to fight the tiredness. I did have six weekly radio therapy at the beginning of my treatment with six monthly hormone injections.

I have 8 weekly assessments ( PSA blood tests, weight checks and blood pressure checks) . Life is good so I wish you well with your treatment.

cedaral profile image
cedaral in reply toP-b49wgolf

Thank you. I appreciate your response very much!

Ramp7 profile image
Ramp7

Ice locked in the NorthEast waiting for Spring and some golf as well. Hiking and golf are my escape. My boys are out ice fishing, too cold for me.

j-o-h-n profile image
j-o-h-n

Xtandi here is almost as popular as a cold beer..... do a search from your home page....Lots of hits.....

Meanwhile:

Would you please be kind enough to tell us your bio. Age? Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?

All info is voluntary, but it helps us help you and helps us too. When you respond, copy and paste it in your home page for your use and for other members’ reference.

THANK YOU AND KEEP POSTING!!!

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 02/10/2022 11:50 PM EST

Not what you're looking for?

You may also like...

Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?

I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron,...
maley2711 profile image

Any experience with Intraductal Cancer?

Not sure how this works. Hopefully you can read my profile to see where I'm at. If not, I repeat...
SherpaT profile image

Anyone had experience of VMAT (RapidArc) treatment?

Situation age 71 Based in UK (Scotland): Gleason score 3+4 - 7. Biopsy was 12 core with 8 targeted....
StuartS profile image

My experience with Orgovyx / Relugolix

For men out there getting ready to start ADT, or having difficulty with their current ADT...
Vynbal profile image

Looking for experience with Tadalafil after RP

Underwent RP in October 2018 with nerve sparing on one side. Urologist recommended, but did not...
gamma909 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.