Search
Search
About
Log in
Join
Experiences with
Mepron
Posts
Communities
4,326 public posts
Filter results
‼️ Anaphylaxis ‼️
https://www.bbc.co.uk/news/health-66330268 Having suffered Anaphylaxis following a Depo-medrone Steroid injection whilst in the consulting room at my Rheumatology Hospital, this article on BBC news today caught my eye. I have SLE. It mentions Contrast Dye used in scans & having seen recent posts on
https://www.bbc.co.uk/news/health-66330268 Having suffered Anaphylaxis following a Depo-medrone Steroid injection whilst in the consulting room at my Rheumatology Hospital, this article on BBC news today caught my eye. I have SLE. It mentions Contrast Dye used in scans & having seen recent posts on
Turquoise-1
in
LUPUS UK
1 year ago
What comes next?
So, de novo, high volume metastatic, diagnosed in April, 2022. Initial PSA 28.2. Started on triplet - Lupron, Abi & docetaxel. Due to liver issues, had to stop abi right before chemo. Restarted abi about 6 weeks after last chemo. at 500 mg, moved to 750 & then 1000, but had to go back to 750 due to high
So, de novo, high volume metastatic, diagnosed in April, 2022. Initial PSA 28.2. Started on triplet - Lupron, Abi & docetaxel. Due to liver issues, had to stop abi right before chemo. Restarted abi about 6 weeks after last chemo. at 500 mg, moved to 750 & then 1000, but had to go back to 750 due to high
rsgdmd
in
Advanced Prostate Cancer
1 year ago
update to this conversation part 2
https://healthunlocked.com/advanced-prostate-cancer/posts/149258815/better-options Dr Corn had all the testing done that my husband's doctors in nc couldn't bother with. Upshot..NC docs are " you have about 5 years to live, you have to stay on all these drugs even if they're ruining your life, etc "
https://healthunlocked.com/advanced-prostate-cancer/posts/149258815/better-options Dr Corn had all the testing done that my husband's doctors in nc couldn't bother with. Upshot..NC docs are " you have about 5 years to live, you have to stay on all these drugs even if they're ruining your life, etc "
Spring15-3
in
Advanced Prostate Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cyberknife For Periaortic Lymph Nodes
I’m going to be starting RT in September for my prostate and pelvic LN mets (2). My RO doesn’t want to use EBRT on my periaortic LN mets (2), he feels like they’re to near organs. I’m thinking of Cyberknife for those mets. I’ve had chemo and I’m on Lupron and Nubeqa. My last PSA was 0.055. I’m feeling
I’m going to be starting RT in September for my prostate and pelvic LN mets (2). My RO doesn’t want to use EBRT on my periaortic LN mets (2), he feels like they’re to near organs. I’m thinking of Cyberknife for those mets. I’ve had chemo and I’m on Lupron and Nubeqa. My last PSA was 0.055. I’m feeling
Peeffervescence
in
Advanced Prostate Cancer
1 year ago
Pluvicto Update
I have had 3 treatments now and unfortunately the pain has increased significantly each week. My PSA has continued to rise also. Had a PSMA SCAN yesterday (Tuesday 30th May) and received the results same day. The news is that the disease has spread completely into my ride hemi pelvis. I knew the news
I have had 3 treatments now and unfortunately the pain has increased significantly each week. My PSA has continued to rise also. Had a PSMA SCAN yesterday (Tuesday 30th May) and received the results same day. The news is that the disease has spread completely into my ride hemi pelvis. I knew the news
db1966
in
Advanced Prostate Cancer
1 year ago
The final Bday update
I got up at 7:30 and took off to Serra Cross area, it's right next to the Botanical Gardens. Boy, it was a long climb, but at least this was at sorta sea level and not 8600 ft like Big Bear was. Just roamed up and around the neighborhoods, looks like Condos/Apts up there with Fantastic views https:
I got up at 7:30 and took off to Serra Cross area, it's right next to the Botanical Gardens. Boy, it was a long climb, but at least this was at sorta sea level and not 8600 ft like Big Bear was. Just roamed up and around the neighborhoods, looks like Condos/Apts up there with Fantastic views https:
dockam
in
Advanced Prostate Cancer
1 year ago
Please advise
Hello, everyone. During the last few months, while waiting for my father's scans to be done, I have read hundreds of posts and profiles of people on this board. I have been trying to gain some knowledge and courage to face the situation in front of me, often searching for the most difficult cases
Hello, everyone. During the last few months, while waiting for my father's scans to be done, I have read hundreds of posts and profiles of people on this board. I have been trying to gain some knowledge and courage to face the situation in front of me, often searching for the most difficult cases
BlueF
in
Advanced Prostate Cancer
1 year ago
biclutamide without lupron?
I have high psa and am waiting on a psma in 12 days, then meeting with a oncologist. Urologist want to start biclutamide and lupron now. I am concerned about side effects. Read some older studies 2017-2019 saying biclutamide as a monotherapy was a good option. Any opinions out there? Thanks Pj
I have high psa and am waiting on a psma in 12 days, then meeting with a oncologist. Urologist want to start biclutamide and lupron now. I am concerned about side effects. Read some older studies 2017-2019 saying biclutamide as a monotherapy was a good option. Any opinions out there? Thanks Pj
pj1121
in
Advanced Prostate Cancer
1 year ago
High psa. Scheduled for psma pet ct. urologist
just discovered I have very high PSA 250. Feel excellent. Only minor urological issues and dry ejaculation. Scheduled for PSMA in 10 days. have not spoken to an oncologist yet. My urologist wants me to start Lupron and bicalutamide before psma scan. will this cut off any future avenues of treatment
just discovered I have very high PSA 250. Feel excellent. Only minor urological issues and dry ejaculation. Scheduled for PSMA in 10 days. have not spoken to an oncologist yet. My urologist wants me to start Lupron and bicalutamide before psma scan. will this cut off any future avenues of treatment
pj1121
in
Advanced Prostate Cancer
1 year ago
Experience with lupron
Well brother I was on lupron for about a year couldn't tolerate the side effects went on firmagon could not tolerate side effects finally went and had a orchiectomy it was the best thing I've ever had done don't have to deal with the pain and the side effects of the injections and the only thing I take
Well brother I was on lupron for about a year couldn't tolerate the side effects went on firmagon could not tolerate side effects finally went and had a orchiectomy it was the best thing I've ever had done don't have to deal with the pain and the side effects of the injections and the only thing I take
Startanew
in
Advanced Prostate Cancer
1 year ago
qol - Erectile Dysfunction Got You Down?
I may be weird (I definitely am), but I find dark humor a good outlet for the stress of cancer, the treatments, SE's, etc. I hope these corny jokes make some of you smile, and maybe even laugh. If my humor isn’t for you, please feel free to skip this post - or contribute your own funny wisecracks.
I may be weird (I definitely am), but I find dark humor a good outlet for the stress of cancer, the treatments, SE's, etc. I hope these corny jokes make some of you smile, and maybe even laugh. If my humor isn’t for you, please feel free to skip this post - or contribute your own funny wisecracks.
Carlosbach
in
Advanced Prostate Cancer
1 year ago
5/25 update on Zytiga failed
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
1 year ago
Xofigo Update
I just added more content to my bio regarding my husband's history and current status. I'm highlighting the current treatment for those who might be interested: 5/2023 PSA of 17.1 (holding steady near that reading for the last three tests) He has been on Lupron since PR and subsequent localized
I just added more content to my bio regarding my husband's history and current status. I'm highlighting the current treatment for those who might be interested: 5/2023 PSA of 17.1 (holding steady near that reading for the last three tests) He has been on Lupron since PR and subsequent localized
Tinuriel
in
Advanced Prostate Cancer
1 year ago
Need some advice on what tools are still in the toolbox
Hi everybody, it’s been a while since I posted but I’m looking for some advice. I was diagnosed in the fall of 2019 with metastatic prostate cancer with 6 bone lesions (a few have shrunk and a few new one have appeared). FYI, I had my prostate removed in July 2019 Gleason 9, PSA 12. I’ve run the gambit
Hi everybody, it’s been a while since I posted but I’m looking for some advice. I was diagnosed in the fall of 2019 with metastatic prostate cancer with 6 bone lesions (a few have shrunk and a few new one have appeared). FYI, I had my prostate removed in July 2019 Gleason 9, PSA 12. I’ve run the gambit
Rondief
in
Advanced Prostate Cancer
1 year ago
Radiation Done!
Have to celebrate the minor milestones. Today I finished 44 sessions on the TrueBeam system. My doc was pretty much spot on in his cautions on side effects - started with some not-so-nice lower bowel issues where I had to stick close to the home base for awhile (but nothing compared to what your typical
Have to celebrate the minor milestones. Today I finished 44 sessions on the TrueBeam system. My doc was pretty much spot on in his cautions on side effects - started with some not-so-nice lower bowel issues where I had to stick close to the home base for awhile (but nothing compared to what your typical
OldVTGuy
in
Advanced Prostate Cancer
1 year ago
Am I high risk?
Im now getting confused with all these terms. See my bio. So 1 week into my EBRT, my RO stopped in and asked why Im still on abi+pred. He said when scheduling EBRT I could stop it. I told him my MO said not to stop. In the beginning, my RO intended for me to do Lupron, and only 6 months abi+pred
Im now getting confused with all these terms. See my bio. So 1 week into my EBRT, my RO stopped in and asked why Im still on abi+pred. He said when scheduling EBRT I could stop it. I told him my MO said not to stop. In the beginning, my RO intended for me to do Lupron, and only 6 months abi+pred
Hidden
in
Advanced Prostate Cancer
1 year ago
Breaking teeth
Recently I have had a couple of molars break off . I've only had a treatment of Lupron for 6 months . Two each 3-month injections. Could this be related to the Lupron along with the other side effects I have enjoyed like hot flashes, fatigue, muscle pain, and weight gain or just coincidental?
Recently I have had a couple of molars break off . I've only had a treatment of Lupron for 6 months . Two each 3-month injections. Could this be related to the Lupron along with the other side effects I have enjoyed like hot flashes, fatigue, muscle pain, and weight gain or just coincidental?
runtrails
in
Advanced Prostate Cancer
1 year ago
Hyperbaric Oxjen Chamber/ Portable unit
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
11 Year Anniversary
11 Years Ago, On My 54th Birthday, Following a Digital Exam That Detected an Enlarged Prostate, I received My PSA Results Whichh Measured in the Mid-30s. Follow Up Scans Confirmed Suspicions That I Indeed Had metPC. On June 22nd (my wedding anniversary) I received my first hormone deprivation injection
11 Years Ago, On My 54th Birthday, Following a Digital Exam That Detected an Enlarged Prostate, I received My PSA Results Whichh Measured in the Mid-30s. Follow Up Scans Confirmed Suspicions That I Indeed Had metPC. On June 22nd (my wedding anniversary) I received my first hormone deprivation injection
jfoesq
in
Advanced Prostate Cancer
1 year ago
Switching from prednisone to dexamethasone with abiraterone
I'm about to switch, not because my PSA is increasing, but because I'm hopeful that dexamethasone may reduce my blood pressure. Is this a sound or stupid reason to switch? Lupron plus abiraterone with prednisone have maintained my PSA < 0.1 (from 111 at DX) for over 4 years. I have all the usual SEs
I'm about to switch, not because my PSA is increasing, but because I'm hopeful that dexamethasone may reduce my blood pressure. Is this a sound or stupid reason to switch? Lupron plus abiraterone with prednisone have maintained my PSA < 0.1 (from 111 at DX) for over 4 years. I have all the usual SEs
Gearhead
in
Advanced Prostate Cancer
1 year ago
1
...
31
32
33
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3431 results
Prostate Cancer Network
185 results
Endometriosis UK
109 results
View top 10 communities
Sort by
Most Relevant
Newest