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Now what?
My husband was DX April 2021 MPc, Stage IV, PSA 335, BRACA2. Lupron, Erleada, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories
My husband was DX April 2021 MPc, Stage IV, PSA 335, BRACA2. Lupron, Erleada, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories
Hidden
in
Advanced Prostate Cancer
10 months ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
10 months ago
Stopping abiraterone
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
chickgreen
in
Advanced Prostate Cancer
10 months ago
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Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
10 months ago
Hair regrowth
On Zytiga and Lupron 15 months. Almost total loss of body hair. In last few weeks, hair has started to regrow on arms and legs. Testosterone still depressed. Is there any clinical significance? Probably stupid question.
On Zytiga and Lupron 15 months. Almost total loss of body hair. In last few weeks, hair has started to regrow on arms and legs. Testosterone still depressed. Is there any clinical significance? Probably stupid question.
rfgh20
in
Advanced Prostate Cancer
10 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
10 months ago
Tuff Nutt gets his butt kicked, has tuff day, almost ready for happy pill
Today started off with me responding to your posts while on the thinking man’s royal chair. TMI but moments later went into deep esophageal spasms right at my sternum, it hurt all the way to my ears, I was crying. Honey, where’s the Tums? Must have had a Lupron moment as we couldn’t find them in the
Today started off with me responding to your posts while on the thinking man’s royal chair. TMI but moments later went into deep esophageal spasms right at my sternum, it hurt all the way to my ears, I was crying. Honey, where’s the Tums? Must have had a Lupron moment as we couldn’t find them in the
TuffNuttoCrack
in
Advanced Prostate Cancer
10 months ago
Xtandi vs Orgovyx
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Captj440
in
Advanced Prostate Cancer
10 months ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
10 months ago
should I stop Zytiga early?
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
PaulJR
in
Advanced Prostate Cancer
10 months ago
PSMA scan result
I have been diagnosed with mCSPC in May 2023 and been on Lupron for 3 months and Zytiga/ Pre since last 2 months. My PSA was initially 21.5 and as of last week is down to 0.3. I had my PSMA scan done again today and was hoping that some lesions in regional and distant Lymph nodes would be gone but
I have been diagnosed with mCSPC in May 2023 and been on Lupron for 3 months and Zytiga/ Pre since last 2 months. My PSA was initially 21.5 and as of last week is down to 0.3. I had my PSMA scan done again today and was hoping that some lesions in regional and distant Lymph nodes would be gone but
ST0705
in
Advanced Prostate Cancer
10 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
10 months ago
degeralix vs lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Oatmeal2
in
Prostate Cancer Network
10 months ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
10 months ago
is Farmagon better than Lupron ?
i have been on Farmagon for 3 months and feels much better and supposed to take Erleada Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .? In my hospital I see a different doctor everytime. another doc
i have been on Farmagon for 3 months and feels much better and supposed to take Erleada Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .? In my hospital I see a different doctor everytime. another doc
Raminagrobis
in
Advanced Prostate Cancer
10 months ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
10 months ago
Lupron and general muscle/bone pain?
Hi all, I don't know if Lupron (first injection about 2.5wks ago) is starting to kick my ass a little or if something else is going on but the last couple days had lots pain kind of in between shoulder blades and tbh lots of other places too. Laying in bed actually hurts the hips, butt etc... Anyone
Hi all, I don't know if Lupron (first injection about 2.5wks ago) is starting to kick my ass a little or if something else is going on but the last couple days had lots pain kind of in between shoulder blades and tbh lots of other places too. Laying in bed actually hurts the hips, butt etc... Anyone
Yzinger
in
Advanced Prostate Cancer
10 months ago
Clean PET/CT Scan - Why no treatment change?
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
NorYug
in
Advanced Prostate Cancer
10 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
10 months ago
Lupron injection with xtandi
Orgovyx stop working, PSA INCREASING. Just talked to my doc. He wants to stop orgovyx and start me on lupron injections once a month with xtandi. Anyone ever been on this combination. If so what are the side effects andnhow is it working for you?
Orgovyx stop working, PSA INCREASING. Just talked to my doc. He wants to stop orgovyx and start me on lupron injections once a month with xtandi. Anyone ever been on this combination. If so what are the side effects andnhow is it working for you?
woppaginny
in
Advanced Prostate Cancer
10 months ago
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