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drug vacation
Who had PSA level come back all the way down after a drug vacation? I want to do a holiday when my Lupron wears off in a couple months. PSA now is .053. Been on Lupron and abi for six years.
Who had PSA level come back all the way down after a drug vacation? I want to do a holiday when my Lupron wears off in a couple months. PSA now is .053. Been on Lupron and abi for six years.
gsun
in
Advanced Prostate Cancer
5 months ago
no sleep tonight
crap ….time zone .. nothing goes well bummed. Anyone delete people or contacts that disappoint you? Lupron shot , plus fuck you supplement pills .. so bummed ,people disappoint …I do it regularly l.
crap ….time zone .. nothing goes well bummed. Anyone delete people or contacts that disappoint you? Lupron shot , plus fuck you supplement pills .. so bummed ,people disappoint …I do it regularly l.
Yokohama2023
in
Advanced Prostate Cancer
5 months ago
Staring at my unopened bottle of Orgovyx
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
mababa
in
Advanced Prostate Cancer
5 months ago
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Testosterone Recovery for 50% of Men
Here's an updated plot of Testosterone recovery time for 50% of men after stopping Lupron ADT, as a function of ADT duration. For ADT durations less than 20 months, the curve is basically linear with a slope = 1.0 (green line), meaning that the Recovery Time for 50% of men is roughly equal to the ADT
Here's an updated plot of Testosterone recovery time for 50% of men after stopping Lupron ADT, as a function of ADT duration. For ADT durations less than 20 months, the curve is basically linear with a slope = 1.0 (green line), meaning that the Recovery Time for 50% of men is roughly equal to the ADT
janebob99
in
Prostate Cancer Network
5 months ago
Testosterone recovery after stopping ADT - 3
This plot shows the % of men who recovered their original testosterone level after stopping Lupron ADT, plotted versus the time (months) after stopping ADT, for three different durations of ADT (4, 6-12, or 24 months). The curves show that a short course of ADT allows men to recover their testosterone
This plot shows the % of men who recovered their original testosterone level after stopping Lupron ADT, plotted versus the time (months) after stopping ADT, for three different durations of ADT (4, 6-12, or 24 months). The curves show that a short course of ADT allows men to recover their testosterone
janebob99
in
Prostate Cancer Network
5 months ago
Testosterone Recovery after stopping ADT -2
This plot shows the time after stopping Lupron ADT for the testosterone to recover to the original level for 50% of men, plotted versus Duration of ADT treatment (4 or 24 months). The longer the duration of ADT, the longer it takes to recover the original testosterone level, which makes sense. For
This plot shows the time after stopping Lupron ADT for the testosterone to recover to the original level for 50% of men, plotted versus Duration of ADT treatment (4 or 24 months). The longer the duration of ADT, the longer it takes to recover the original testosterone level, which makes sense. For
janebob99
in
Prostate Cancer Network
5 months ago
Testosterone Recovery after stopping ADT -1
Here's the first of four plots showing testosterone recovery after stopping Lupron ADT. The testosterone recovers quickest in the first 12 months, but then flattens out after that.
Here's the first of four plots showing testosterone recovery after stopping Lupron ADT. The testosterone recovers quickest in the first 12 months, but then flattens out after that.
janebob99
in
Prostate Cancer Network
5 months ago
Abiraterone from 4 tabs daily to 3
Finally cracked with MO concerning high blood pressure while using Abiraterone. History of high blood pressure that has went to the ceiling while using Abiraterone. Cardiologist has changed BP meds multiple times with very little relief. Some times during day BO is 180/100 or higher. The Lupron/Abiraterone
Finally cracked with MO concerning high blood pressure while using Abiraterone. History of high blood pressure that has went to the ceiling while using Abiraterone. Cardiologist has changed BP meds multiple times with very little relief. Some times during day BO is 180/100 or higher. The Lupron/Abiraterone
85236442968
in
Advanced Prostate Cancer
5 months ago
darolutamide in place of Zitiga. Anyone with experience using?
Treatment, on Lupron, 3 month shots, with Zitiga beginning July, 2023. I have mets in shoulder blade, Sacrum Coccyx, bi-lateral pelvic lymph nodes and Iliac wing. Liver numbers over the course has come to a point that my MO is changing me from Zitiga to darolutamide. I would be interested to hear
Treatment, on Lupron, 3 month shots, with Zitiga beginning July, 2023. I have mets in shoulder blade, Sacrum Coccyx, bi-lateral pelvic lymph nodes and Iliac wing. Liver numbers over the course has come to a point that my MO is changing me from Zitiga to darolutamide. I would be interested to hear
Falcon10
in
Advanced Prostate Cancer
5 months ago
PSA not dropping with cabazitaxel
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
westjl2
in
Advanced Prostate Cancer
5 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
5 months ago
Orgovyx causing more brain fog than Lupron
I switched over 5 weeks ago and have been experiencing more cognitive aphasia and adverse spatial awareness issues(clumsiness). Will these issues settle down over time? Anybody else notice this?
I switched over 5 weeks ago and have been experiencing more cognitive aphasia and adverse spatial awareness issues(clumsiness). Will these issues settle down over time? Anybody else notice this?
V10fanatic
in
Advanced Prostate Cancer
5 months ago
Rising PSA
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
JolleySprings
in
Advanced Prostate Cancer
5 months ago
Thinking about stopping Xgeva
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
Professorgary
in
Advanced Prostate Cancer
5 months ago
Good news. Hope it can help others.
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
BillyVolt
in
Advanced Prostate Cancer
5 months ago
prostate met to esophagus
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
Kittenlover50
in
Advanced Prostate Cancer
5 months ago
Starting Abiraterone with CRPC
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Water327
in
Advanced Prostate Cancer
5 months ago
Switch from Lupron/abi to Orgovyx/abi?
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
jackwfrench
in
Prostate Cancer Network
5 months ago
MCH & MCHC Values
Hello All, This group has been very helpful to me during my pc journey. I just finished up 28 rounds of radiation and am currently taking Xtandi and Lupron injections monthly. My latest bloodwork show slightly high MCH and MCHC values and slightly low RBC. I searched on line but could not find any
Hello All, This group has been very helpful to me during my pc journey. I just finished up 28 rounds of radiation and am currently taking Xtandi and Lupron injections monthly. My latest bloodwork show slightly high MCH and MCHC values and slightly low RBC. I searched on line but could not find any
Jeffdanger
in
Advanced Prostate Cancer
5 months ago
Diagnosed under 55
I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are different and unfortunately so it the overall outlook. The younger men are diagnosed with PCa, the more aggressive the cancer tends to be.
I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are different and unfortunately so it the overall outlook. The younger men are diagnosed with PCa, the more aggressive the cancer tends to be.
Vegasborn
in
Advanced Prostate Cancer
5 months ago
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