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PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
4 months ago
Advice needed IVF
Hi everyone! I'm new here and in the US and need to vent to those who understand what I'm going through (as my friends don't). I apologize for the long post. I'm 39. My bf is 42. We met later in life when I was 36. He has two kids from a previous marriage when he was 20 and 28. Before we met his doctor
Hi everyone! I'm new here and in the US and need to vent to those who understand what I'm going through (as my friends don't). I apologize for the long post. I'm 39. My bf is 42. We met later in life when I was 36. He has two kids from a previous marriage when he was 20 and 28. Before we met his doctor
JerseyGirl2420
in
Fertility Network UK
4 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
4 months ago
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low hemoglobin
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
alysona828
in
Advanced Prostate Cancer
5 months ago
Battling two cancers on two fronts, simultaneously
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
CharlieBC
in
Advanced Prostate Cancer
5 months ago
Fatigue after eating
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Union98
in
Advanced Prostate Cancer
5 months ago
Casadex, on and off
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
woppaho
in
Advanced Prostate Cancer
5 months ago
ADT - HOT FLUSHES AND CALORIES CONSUMED
I am 3 months into Lupron and coping fairly well, I think, with the side effects so far, apart from the Hot Flushes (Flashes). I do not have many during the day but they seem to come at night and can sometimes be really intense and uncomfortable. I have found that the intensity for me seems to be related
I am 3 months into Lupron and coping fairly well, I think, with the side effects so far, apart from the Hot Flushes (Flashes). I do not have many during the day but they seem to come at night and can sometimes be really intense and uncomfortable. I have found that the intensity for me seems to be related
Jaffa_2001
in
Prostate Cancer And Gay Men
5 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
PSA rising, rapidly
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Oldie68
in
Advanced Prostate Cancer
5 months ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
5 months ago
anyone dizzy on Lupron? Rash?
Is this common? Dad started Lupron back end of November. Developed a rash at Christmas time that has not gone away (despite topicals and steroid), and he’s dizzy. In addition to not sleeping well and significant GI issues one month after completing radiation. He is just not feeling well. Seeing all
Is this common? Dad started Lupron back end of November. Developed a rash at Christmas time that has not gone away (despite topicals and steroid), and he’s dizzy. In addition to not sleeping well and significant GI issues one month after completing radiation. He is just not feeling well. Seeing all
alysona828
in
Advanced Prostate Cancer
5 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
5 months ago
Xtandi Withdrawal
I am joining this group for my husband who has been diagnosed with Stage 4 prostate cancer January 2023. He was treated with radiation in April of 2023. He began taking Xtandi around the same time. He receives Lupron injections every three months. The last injection was on December 22, 2023. He
I am joining this group for my husband who has been diagnosed with Stage 4 prostate cancer January 2023. He was treated with radiation in April of 2023. He began taking Xtandi around the same time. He receives Lupron injections every three months. The last injection was on December 22, 2023. He
Stjohn24
in
Advanced Prostate Cancer
5 months ago
Chemo Failed
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
Jshaw916
in
Advanced Prostate Cancer
5 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
5 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
5 months ago
Delay date for Lupron injection
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
John347
in
Advanced Prostate Cancer
5 months ago
Update on dads visit with his MO today
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Radtech40
in
Advanced Prostate Cancer
5 months ago
A little Great News!
Hello Friends, A couple years ago our journey began. I was scared, panicked, and at a complete loss as my husband was diagnosed with stage 4 prostate cancer at age 49. He had 17 bone Mets. After some amazing input from this community and special advice from Tall Allen, I was able to set my sights
Hello Friends, A couple years ago our journey began. I was scared, panicked, and at a complete loss as my husband was diagnosed with stage 4 prostate cancer at age 49. He had 17 bone Mets. After some amazing input from this community and special advice from Tall Allen, I was able to set my sights
Lshanks07
in
Advanced Prostate Cancer
5 months ago
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