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meningioma headaches
anyone still suffering severe headaches that wake them I’m almost 14 weeks post surgery headaches unbearable so tired . Feel left in the dark by doctors I wasn’t explained much about tumour it’s still bit surreal into hospital on a Thursday operated 6 days later and feel worse ever since I would love
anyone still suffering severe headaches that wake them I’m almost 14 weeks post surgery headaches unbearable so tired . Feel left in the dark by doctors I wasn’t explained much about tumour it’s still bit surreal into hospital on a Thursday operated 6 days later and feel worse ever since I would love
Clayden
in
Meningioma Support
1 year ago
Facebook support group
I highly recommend to follow
Meningioma
Support Group on Facebook. Great community of people and information ☀️.
I highly recommend to follow
Meningioma
Support Group on Facebook. Great community of people and information ☀️.
DeeMay16
in
Meningioma Support
1 year ago
Insomnia
My daughter had radiotherapy for a
meningioma
in the frontal lobe 8 months ago and has been suffering with severe insomnia.She is so tired but just cannot sleep.She has tried melatonin and zopiclone and neither has helped.Has anyone else had this problem and found something that helps?
My daughter had radiotherapy for a
meningioma
in the frontal lobe 8 months ago and has been suffering with severe insomnia.She is so tired but just cannot sleep.She has tried melatonin and zopiclone and neither has helped.Has anyone else had this problem and found something that helps?
stormcloud
in
Meningioma Support
11 months ago
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frustrated
Morning, I was diagnosed with a
meningioma
behind my left eye on the 19th of September this year, yesterday was my first meeting with a neurologist who was very nice and spent a good amount of time with me but knew nothing about me or my case as my lovely GP and his secretary pushed for an appointment
Morning, I was diagnosed with a
meningioma
behind my left eye on the 19th of September this year, yesterday was my first meeting with a neurologist who was very nice and spent a good amount of time with me but knew nothing about me or my case as my lovely GP and his secretary pushed for an appointment
Simply71
in
Meningioma Support
9 months ago
Atypical meningioma 2
I was diagnosed with atypical
meningioma
on the 25th May 23 got it removed 31st May was on my right front lobe after operation face was swollen and weakness in left leg and arm was transferred back to other hospital for physio after one month I returned home and since my quality of life poor I have extreme
I was diagnosed with atypical
meningioma
on the 25th May 23 got it removed 31st May was on my right front lobe after operation face was swollen and weakness in left leg and arm was transferred back to other hospital for physio after one month I returned home and since my quality of life poor I have extreme
Clayden
in
Meningioma Support
1 year ago
Meningioma pressing on optic nerve
Got told i have a
meningioma
pressing on my optic nerve, my vision in my left eye is nearly gone. Am waiting on an appointment with the neurosurgeon. I'm self employed a childminder and I've no idea what recovery time I'll need or how they'll go in etc. I know everyone heals differently.
Got told i have a
meningioma
pressing on my optic nerve, my vision in my left eye is nearly gone. Am waiting on an appointment with the neurosurgeon. I'm self employed a childminder and I've no idea what recovery time I'll need or how they'll go in etc. I know everyone heals differently.
Rocket20
in
Meningioma Support
11 months ago
Petrocival meningioma
Hi I’ve been diagnosed with a giant petroclival
Meningioma
and am awaiting surgery. I’m very worried about the outcome of the surgery and wanted to chat with someone whose had this surgery please
Hi I’ve been diagnosed with a giant petroclival
Meningioma
and am awaiting surgery. I’m very worried about the outcome of the surgery and wanted to chat with someone whose had this surgery please
Bordermum
in
Meningioma Support
1 year ago
drenching sweats
I had to stop hrt because of a
meningioma
i had last year. The drs said that hormone treatment could make it come back so I have to find natural remedies......this is killing me, I'm exhausted from lack of sleep, I wake up about 3 in morning with sweat, nausea and anxiety.
I had to stop hrt because of a
meningioma
i had last year. The drs said that hormone treatment could make it come back so I have to find natural remedies......this is killing me, I'm exhausted from lack of sleep, I wake up about 3 in morning with sweat, nausea and anxiety.
Hidden
in
Menopause and Perimenopause Support
10 months ago
supplements
hi everyone I’ve been diagnosed with
meningioma
2021 - currently seen some grown in past 12 months so dr us suggesting gamma knife - I don’t have any symptoms - I would like to continue with supplements in the meantime until I can have another consultation with the NS - I had 3 previous appointments
hi everyone I’ve been diagnosed with
meningioma
2021 - currently seen some grown in past 12 months so dr us suggesting gamma knife - I don’t have any symptoms - I would like to continue with supplements in the meantime until I can have another consultation with the NS - I had 3 previous appointments
Newbielondon
in
Neuropathy Support
9 months ago
intraventricular meningioma
just diagnosed with a
meningioma
, located in the ‘atrium’? of my right ventricle. Three options given, 1 recommended RST. How was it 4 u?
just diagnosed with a
meningioma
, located in the ‘atrium’? of my right ventricle. Three options given, 1 recommended RST. How was it 4 u?
ScooberDoo
in
Meningioma Support
1 year ago
newly diagnosed with left frontal lobe meningioma, and told not to worry
I have been having awful headaches since November 2023 I went to a&e in Jan from the advice of my doctors. I had a ct scan which showed a swollen mass on my brain but it’s most likely benign as it hasn’t grown since 2021. That was news to me as I didn’t even know I had this as back in 2021 I attended
I have been having awful headaches since November 2023 I went to a&e in Jan from the advice of my doctors. I had a ct scan which showed a swollen mass on my brain but it’s most likely benign as it hasn’t grown since 2021. That was news to me as I didn’t even know I had this as back in 2021 I attended
musicloving_girl
in
Meningioma Support
6 months ago
Meningioma recovery
16 months after surgery, still have trouble walking, fatigue, anyone feel the same?
16 months after surgery, still have trouble walking, fatigue, anyone feel the same?
Mj1976
in
Meningioma Support
1 year ago
Meningioma Recovery
27 days into my recovery from
meningioma
surgery. Starting week 5 with so many questions, I hear a dripping noise recently. Is that normal? Also, as the numbing decreases the weight of the surgery seems to become heavier. My face (right upper side) literally feels heavy.
27 days into my recovery from
meningioma
surgery. Starting week 5 with so many questions, I hear a dripping noise recently. Is that normal? Also, as the numbing decreases the weight of the surgery seems to become heavier. My face (right upper side) literally feels heavy.
DeeMay16
in
Meningioma Support
1 year ago
Update on my father
The radiology reports go back and forth, more likely a
meningioma
with direct leptomeningeal enhancement but could be from prostate cancer. They told us that they wanted to shrink or stop the tumor from growing and slow down the lepto enhancement to stop the headaches.
The radiology reports go back and forth, more likely a
meningioma
with direct leptomeningeal enhancement but could be from prostate cancer. They told us that they wanted to shrink or stop the tumor from growing and slow down the lepto enhancement to stop the headaches.
Radtech40
in
Advanced Prostate Cancer
7 months ago
Initial diagnosis Ataxia but then a Brain Tumour
Once I had my MRI I was diagnosed with a
Meningioma
Brain Tumour which was causing my Ataxic Gait. I was going to leave this group as it felt wrong as that is not what I have. Some really kind people asked me to stay and keep in touch on here. I had my surgery 3 Feb 2022.
Once I had my MRI I was diagnosed with a
Meningioma
Brain Tumour which was causing my Ataxic Gait. I was going to leave this group as it felt wrong as that is not what I have. Some really kind people asked me to stay and keep in touch on here. I had my surgery 3 Feb 2022.
Paper2021
in
Ataxia UK
8 months ago
Update on dads visit with his MO today
It has been 7 months now since finding the dural mass behind his brain which they think is a grade 2
meningioma
vs prostate ca. They gave him his lupron and xgeva shot and refilled his xtandi, follow up mid july in 6 months.
It has been 7 months now since finding the dural mass behind his brain which they think is a grade 2
meningioma
vs prostate ca. They gave him his lupron and xgeva shot and refilled his xtandi, follow up mid july in 6 months.
Radtech40
in
Advanced Prostate Cancer
7 months ago
Nerve Damage
Hi im 11 months post op, i had a right side
Meningioma
that was pushing on the nerves to my left side, since the op i have got clonus and spasticity and altered sensation down my left side, Has anyone else experienced this nerve damage and if so how are you getting on and how far down the line are you
Hi im 11 months post op, i had a right side
Meningioma
that was pushing on the nerves to my left side, since the op i have got clonus and spasticity and altered sensation down my left side, Has anyone else experienced this nerve damage and if so how are you getting on and how far down the line are you
endlar
in
Meningioma Support
1 year ago
looking for virtual support group
A dear friend of mine had two surgeries a month ago to remove a
meningioma
tumor. She’s interested in attending a
meningioma
support group (virtually, like via Zoom). I’ve been looking online but haven’t found many synchronous options for her. Does anyone know of any?
A dear friend of mine had two surgeries a month ago to remove a
meningioma
tumor. She’s interested in attending a
meningioma
support group (virtually, like via Zoom). I’ve been looking online but haven’t found many synchronous options for her. Does anyone know of any?
ForLalatha
in
Meningioma Support
1 year ago
Hormonal therapy and Meningioma brain tomors
Are there others out there that have been diagnosed with a
meningioma
while on or after hormonal therapy?
Are there others out there that have been diagnosed with a
meningioma
while on or after hormonal therapy?
Dr_WHO
in
Advanced Prostate Cancer
1 year ago
FORAMEN MASGNUM MENINGIOMA JOURNEYS
Experiences of persons who have gone through Alternative Treatment on Foramen Magnum
Meningioma
and those that have gone through Radiotherapy - success and side effects, challengres etc.
Experiences of persons who have gone through Alternative Treatment on Foramen Magnum
Meningioma
and those that have gone through Radiotherapy - success and side effects, challengres etc.
alphajiri
in
Meningioma Support
1 year ago
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