Atypical meningioma 2: I was diagnosed... - Meningioma Support

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Atypical meningioma 2

Clayden profile image
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I was diagnosed with atypical meningioma on the 25th May 23 got it removed 31st May was on my right front lobe after operation face was swollen and weakness in left leg and arm was transferred back to other hospital for physio after one month I returned home and since my quality of life poor I have extreme headaches which I’ve been to A&E twice just to be told it’s part of recovery the headaches can be severe with such pressure I really believe it’s coming back so my doctor wrote me a letter for A&e to request an mri I don’t believe headache this severe 3 months after tumour removal is normal and I’ve had 3 full on seizures since operations and these seizures are nothing compare to the seizures I had before I found out about tumour

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Clayden
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Paper2021 profile image
Paper2021

I was also diagnosed with ATypical tumour. Mine was fully removed last February and on the Left Frontal Lobe. I’ve only had one seizure and it was immediately after surgery. I’m saddened to hear what you’re going through. Life for us is hard enough. I hope an MRI can give you some answers.

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