Meningioma pressing on optic nerve

[Rocket20]

.Hi everyone. I'I'new to this page. Got told i have a meningioma pressing on my optic nerve, my vision in my left eye is nearly gone. Am waiting on an appointment with the neurosurgeon. I'm self employed a childminder and I've no idea what recovery time I'll need or how they'll go in etc. I know everyone heals differently.

[Cast_away]

Hi there. Last year I too had a meningioma pressing on my optic nerve. Although no implications on my vision it caused pressure on my brain and much confusion. I had urgent craniotomy surgery. Recovery was about 4 months. Now having annual M R I to check no recurrence. Like you say we all heal differently. All good wishes.

[Rocket20 in reply to Cast_away]

Thanks for your reply. Where are you located if you don’t mind me asking. I'm in Glasgow scotland.

[Cast_away in reply to Rocket20]

I’m so lucky being about 40 minutes drive from Addenbrookes - an amazing neurosurgery team with special skills and expertise. Please let me know if you need anything further from me - happy to support you if I can x

[Rocket20 in reply to Cast_away]

Thanks. I appreciate that x

[Hidden]

Welcome to the page . . . yes, everyone is different, or should I say unique in terms of how their Meningioma journey. However, what I would say is be persistent and assertive with your medics to keep on top of things in a timely manner . . .

[Hidden]

Mine’s near my optic nerve and pituitary gland - has been for 5 years - had Radiotherapy as they don’t want to go in at the risk of damaging the optic nerve, so been on ‘wait and watch’ ever since and I’m grateful that it’s remained stable. I wish you well and healing blessings . . .

[Brightgardener in reply to Hidden]

Pleased to hear that it has been stable for 5 years. In July I was diagnosed with a similar meningioma and am also on 'watch and wait'. When I spoke to the consultant he was reluctant to do radiotherapy. My eyesight is being monitored too.

[Billiewills]

I had intraosseous spheno orbital meningioma which was causing optic nerve neuropathy in my left eye. I had endonasal decompression of the optic nerve in June and then a craniotomy, removed part of my skull and replaced with a Peek implant in July this year. 2 weeks after surgery CS fluid starting leaking into my face so had a shunt fitted last Monday to help drain the fluid into my abdomen. Everyone's journey is different, I am documenting my experience on tiktok to help others as it is a scary time. Hope your journey goes well x

[Trvlr]

Hi Rocket,

I hope that your doctor can answer those questions. I will tell you that my next door neighbor had this issue and they went in through her nose. She is a kindergarten teacher and can see. She still works without issue, but she can no longer drive. An anecdote that may not match your situation, but I thought you might be interested. I wish you the best in your recovery!

T