Meningioma recovery : 16 months after... - Meningioma Support

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Meningioma recovery

Mj1976 profile image
5 Replies

16 months after surgery, still have trouble walking, fatigue, anyone feel the same?

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Mj1976 profile image
Mj1976
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5 Replies
Paper2021 profile image
Paper2021

Yes I do. I’m also 16 months post op and have the same problems. My walking has improved but some days are so bad. I don’t feel confident walking alone outside. I’m annoyed with myself for not doing enough. 💜

tuppenceworth profile image
tuppenceworth

I think it would be worth you talking to your neurosurgeon and/or neurologist. I have had different side effects from you; I'm now 2 years post-surgery. I gather the effects vary depending on where the tumour was, the size of it and how the surgery effected your brain. Talk to the experts, they should give you some support. Good luck, hopefully you will keep improving.

Bluesunflower2 profile image
Bluesunflower2

I had fatigue until about 18-19 months post op. I’m a little over 2 years post op now and still notice issues if I over-do it (but I can do a lot more than I could even 6 months ago). My side effects were more related to my hand and arm and they are more noticeable when I’m tired. For me, things have continued to improve with time and rest. I know it can feel frustrating.

Albert07 profile image
Albert07

I'm sorry to hear this. I'm 3 months post surgery and just starting to feel almost normal. But now I am going to start radiation and who knows what that will do. If I were you I would be speaking to your neurologist.

endlar profile image
endlar

Hi Im 11 months post op and still having problems with fatigue but getting better slowly , and have nerve damage too which effects my left side so have clonus and shaking in my leg worse when im stressed or tired , and hardly any feeling in my left side, but can walk lots more now it just takes time and you cant push yourself as your fatigue will kick in and you will spend some days in bed asleep as ive found out .

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